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Old problems in need of new (narrative) approaches? - a young physician-bioethicist's search for ethical guidance in the practice of physician-assisted dying in the Netherlands

ROEST, Bernadette
Journal of medical ethics, 06/05/2020, Pagination inconnue

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Characteristics for a tool for timely identification of palliative needs in heart failure - the views of Dutch patients, their families and healthcare professionals

JANSSEN, Daisy JA ; AMENT, Stephanie Mc ; BOYNE, Josiane ; SCHOLS, Jos Mga ; LA ROCCA, Hans-Peter Brunner ; MAESSEN, José Mc ; VAN DEN BEUKEN-VAN EVERDINGEN, Marieke Hj
European journal of cardiovascular nursing, 05/05/2020, p. 1-10

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Realizing better doctor-patient dialogue about choices in palliative care and early phase clinical trial participation - towards an online value clarification tool (OnVaCT)

VAN LENT, Liza G. G. ; STOEL, Nicole K. ; VAN WEERT, Julia C. M. ; VAN GURP, Jelle ; DE JONGE, Maja J. A. ; LOLKEMA, Martijn P. ; GORT, Eelke H. ; PULLEMAN, Saskia M. ; OOMEN-DE HOOP, Esther ; HASSELAAR, Jeroen ; VAN DER RIJT, Carin C. D.
BMC palliative care, 29/11/2019, vol.18, n°1, p. 1-10

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End-of-life communication in advanced cancer - international trends (2009-2014)

VERKISSEN, Mariëtte N. ; PENDERS, Yolanda W. H. ; ONWUTEAKA-PHILIPSEN, Bregje D. ; MOREELS, Sarah ; DONKER, Gé A. ; VEGA ALONSO, Tomás ; VAN DEN BLOCK, Lieve ; DELIENS, Luc
BMJ supportive and palliative care, 27/04/2020, Pagination inconnue

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Doctors can fulfil euthanasia request if patient develops dementia, rules Dutch supreme court

SHELDON, Tony
BMJ (Clinical research ed.), 24/04/2020, vol.369, Pagination inconnue

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Advance euthanasia directives and the Dutch prosecution

HUGHES, Jonathan A
Journal of medical ethics, 06/04/2020, Pagination inconnue

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Bioethical implications of end-of-life decision-making in patients with dementia - a tale of two societies

MONDRAGON, Jaime D. ; SALAME-KHOURI, Latife ; KRAUS-WEISMAN, Arnoldo S. ; DE DEYN, Peter P.
Monash bioethics review, 25/04/2020, p. 49-67

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Providing quality end of life care to older people in the era of Covid-19 - perspectives from five countries

LAPID, Maria I. ; KOOPMANS, Raymond ; SAMPSON, Elizabeth L. ; VAN DEN BLOCK, Lieve ; PEISAH, Carmelle
International psychogeriatrics, 11/05/2020, p. 1-18

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Quality of collaboration and information handovers in palliative care - a survey study on the perspectives of nurses in the Southwest region of the Netherlands

ENGEL, Marijanne ; VAN DER ARK, Andrée ; TAMERUS, Rosanne ; VAN DER HEIDE, Agnes
European journal of public health, 28/03/2020, p. 1-8

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Humour and laughing in patients with prolonged incurable cancer - an ethnographic study in a comprehensive cancer centre

BUITING, Hilde M. ; DE BREE, Remco ; BROM, Linda ; MACK, Jennifer W. ; VAN DEN BREKEL, Michiel W. M.
Quality of life research, 06/04/2020, Pagination inconnue

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Thème : Soins.

CANCEROLOGIE ; HUMOUR ; PAYS-BAS ; ETHNOGRAPHIE

Purpose: Most people are familiar with the expression ‘laughter is the best medicine’. By enhancing cognitive flexibility and strengthening relationships, laughter can be considered a holistic care-approach. Yet, in medical oncology, especially the palliative phase, using humour can be considered inappropriate or taboo. We aimed to explore the acceptability and functions of humour and laughter in patients with prolonged incurable cancer.
Methods: This study was performed in a Dutch Comprehensive Cancer Centre. We included four short conversations with patients, eighteen in-depth patient-interviews and eleven observational fieldnotes in which humour was a major topic of the conversation. We further administered an online questionnaire to thirty-three oncology clinicians about their experiences with humour. Qualitative data were thematically analysed. We specifically distinguished between humour and laughter.
Results: Nearly all specialists reported using humour (97%), and all reported sometimes laughing during consultations; 83% experienced a positive effect of laughter. These results were in line with patients’ experiences: Patients noted that humour always stayed alive despite medical difficulties. Apart from this human aspect, patients also used humour to broach difficult topics and downplay challenges. Patients and specialists acknowledged that using humour is sometimes inappropriate, partly because they did not always share the same humour. Laughter, in contrast, was regarded as ‘lighter’ than humour, and could, accordingly, more easily be implemented. Specialists cautioned against patients using laughter to avoid broaching difficult topics.
Conclusion: Many conversations were full of laughter. Hierarchy as usually experienced between healthcare professionals and patients/relatives seemed to disappear when using laughter. If applied appropriately, adding shared laughter may help optimize shared decision-making.

Origine : DOI.org (Crossref

Variability of cost trajectories over the last year of life in patients with advanced breast cancer in the Netherlands

SCHNEIDER, Paul P. ; POUWELS, Xavier G. L. V. ; PASSOS, Valéria Lima ; RAMAEKERS, Bram L. T. ; GEURTS, Sandra M. E. ; IBRAGIMOVA, Khava I. E. ; DE BOER, Maaike ; ERDKAMP, Frans ; VRIENS, Birgit E. P. J. ; VAN DE WOUW, Agnes J. ; DEN BOER, Marien O. ; PEPELS, Manon J. ; TJAN-HEIJNEN, Vivianne C. G. ; JOORE, Manuela A.
Plos one, 09/04/2020, vol.15, n°4, p. 1-14

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Opioid underuse in terminal care of long-term care facility residents with pain and/or dyspnoea - a cross-sectional pace-survey in six European countries

TANGHE, Marc ; VAN DEN NOORTGATE, Nele ; DELIENS, Luc ; SMETS, Tinne ; ONWUTEAKA-PHILIPSEN, Bregje ; SZCZERBINSKA, Katarzyna ; FINNE-SOVERI, Harriet ; PAYNE, Sheila ; GAMBASSI, Giovanni ; VAN DEN BLOCK, Lieve ; PIERS, Ruth
PALLIATIVE MEDICINE, 14/04/2020, Pagination inconnue

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Comparing symptom ratings by staff and family carers in residents dying in long-term care facilities in three European countries, results from a PACE-survey

TANGHE, Marc ; VAN DEN NOORTGATE, Nele ; DELIENS, Luc ; SMETS, Tinne ; ONWUTEAKA-PHILIPSEN, Bregje ; FINNE-SOVERI, Harriet ; VAN DEN BLOCK, Lieve ; PIERS, Ruth
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 10/03/2020, Pagination inconnue

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Regional variation in hospital care at the end-of-life of Dutch patients with lung cancer exists and is not correlated with primary and long-term care

DE MAN, Yvonne ; GROENEWOUD, Stef ; OOSTERVELD-VLUG, Mariska G. ; BROM, Linda ; ONWUTEAKA-PHILIPSEN, Bregje D. ; WESTERT, Gert P. ; ATSMA, Femke
International journal for quality in health care, 18/03/2020, p. 1-6

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Comfort and clinical events at the end of life of nursing home residents with and without dementia - the six-country epidemiological PACE study

MIRANDA, Rose ; VAN DER STEEN, Jenny T. ; SMETS, Tinne ; VAN DEN NOORTGATE, Nele ; DELIENS, Luc ; PAYNE, Sheila ; KYLANEN, Marika ; SZCZERBINSKA, Katarzyna ; GAMBASSI, Giovanni ; VAN DEN BLOCK, Lieve ; PACE
International journal of geriatric psychiatry, 03/03/2020, Pagination inconnue

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Palliative care consultations in primary care - a cross-sectional survey among Dutch general practitioners

HOEK, Patrick D. ; SCHERS, Henk J. ; HENDRIKS, Jan C. M. ; VISSERS, Kris C. P. ; HASSELAAR, Jeroen G. J.
BMJ supportive and palliative care, 12/2019, vol.9, n°4, Pagination inconnue

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The facts on psychiatric euthanasia in the Netherlands

VAN DEN EYNDE, Vincent
Australasian psychiatry, 11/03/2020, Pagination inconnue

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Impact of multidisciplinary tumor board discussion on palliation of patients with esophageal or gastro-esophageal junction cancer - a population-based study

VERMEULEN, Bram D. ; BRUGGEMAN, Lukas ; BAC, Dirk J. ; SCHRAUWEN, Ruud W. M. ; EPPING, Ludger S. M. ; SCHEFFER, Robert C. H. ; TAN, Adriaan C. I. T. L. ; GROENEN, Marcel J. M. ; VERHOEVEN, Rob H. A. ; SIERSEMA, Peter D.
Acta oncologica, 18/02/2020, p. 410-416

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Thème : Soins. Cote : eD02.04.01

PAYS-BAS ; CANCER DIGESTIF ; COMMUNICATION ; PROJET SOIN

Background: The Dutch guidelines for esophageal and gastro-esophageal junction (GEJ) cancer recommend discussion of patients by a multidisciplinary tumor board (MDT). Despite this recommendation, one previous study in the Netherlands suggested that therapeutic guidance was missing for palliative care of patients with esophageal cancer. The aim of the current study was therefore to assess the impact of an MDT discussion on initial palliative treatment and outcome of patients with esophageal or GEJ cancer.
Material and methods: The population-based Netherlands Cancer Registry was used to identify patients treated for esophageal or GEJ cancer with palliative intent between 2010 and 2017 in 7 hospitals. We compared patients discussed by the MDT with patients not discussed by the MDT in a multivariate analysis. Primary outcome was type of initial palliative treatment. Secondary outcome was overall survival.
Results: A total of 389/948 (41%) patients with esophageal or GEJ cancer were discussed by the MDT before initial palliative treatment. MDT discussion compared to non-MDT discussion was associated with more patients treated with palliative intent external beam radiotherapy (38% vs. 21%, OR 2.7 [95% CI 1.8–3.9]) and systemic therapy (30% vs. 23%, OR 1.6 [95% CI 1.0–2.5]), and fewer patients treated with stent placement (4% vs. 12%, OR 0.3 [95% CI 0.1–0.6]) and best supportive care alone (12% vs. 33%, OR 0.2 [95% CI 0.1–0.3]). MDT discussion was also associated with improved survival (169 days vs. 107 days, HR 1.3 [95% CI 1.1–1.6]).
Conclusion: Our study shows that MDT discussion of patients with esophageal or GEJ cancer resulted in more patients treated with initial palliative radiotherapy and chemotherapy compared with patients not discussed by the MDT. Moreover, MDT discussion may have a positive effect on survival, highlighting the importance of MDT meetings at all stages of treatment.

Origine : PubMed

Witnesses of hope in times of despair: chaplains in palliative care - a qualitative study

OLSMAN, Erik
Journal of health care chaplaincy, 22/02/2020, p. 1-12

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Nursing staff needs in providing palliative care for persons with dementia at home or in nursing homes - a survey

BOLT, Sascha R. ; MEIJERS, Judith M. M. ; VAN DER STEEN, Jenny T. ; SCHOLS, Jos M. G. A. ; ZWAKHALEN, Sandra M. G.
Journal of nursing scholarship, 10/02/2020, p. 164-173

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