VigiPallia : Résultats

PAYS-BAS

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Variation in the implementation of PaTz - a method to improve palliative care in general practice - a prospective observational study

KOPER, Ian ; PASMAN, H. Roeline W. ; SCHWEITZER, Bart P. M. ; VAN DER ZWEEP, Greet ; UYTTEWAAL, Gon ; ONWUTEAKA-PHILIPSEN, Bregje D.
BMC palliative care, 16/01/2020, vol.19, n°1, p. 1-11

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Thème : Santé. Cote : eD01.02.01

HOSPITALISATION DOMICILE SOINS PALLIATIFS ; PAYS-BAS ; ETUDE PROSPECTIVE ; INTERDISCIPLINARITE

BACKGROUND: PaTz (palliative care at home) is a method to improve palliative care in the primary care setting in the Netherlands. PaTz has three basic principles: (1) local GPs and DNs meet at least six times per year to identify and discuss their patients with a life-threatening illness; (2) these meetings are supervised by a specialist palliative care professional; (3) groups use a palliative care register on which all identified patients are listed. Since the start in 2010, the number of PaTz-groups in the Netherlands has been growing consistently. Although the theory of all PaTz-groups is the same, the practical functioning of PaTz-groups may vary substantially, which may complicate further implementation of PaTz as well as interpretation of effect studies. This study aims to describe the variation in practice of PaTz-groups in the Netherlands.
METHOD: In this prospective observational study, ten PaTz-groups logged and described the activities in their meetings as well as the registered and discussed patients and topics of discussions in registration forms for a 1 year follow-up period. In addition, non-participatory observations were performed in all participating groups. Meeting and patient characteristics were analysed using descriptive statistics. Conventional content analysis was performed in the analysis of topic discussions.
RESULTS: While the basic principles of PaTz are found in almost every PaTz-group, there is considerable variation in the practice and content of the meetings of different PaTz-groups. Most groups spend little time on other topics than their patients, although the number of patients discussed in a single meeting varies considerably, as well as the time spent on an individual patient. Most registered patients were diagnosed with cancer and patient discussions mainly concerned current affairs and rarely concerned future issues.
CONCLUSION: The basic principles are the cornerstone of any PaTz-group. At the same time, the observed variation between PaTz-groups indicates that tailoring a PaTz-group to the needs of its participants is important and may enhance its sustainability. The flexibility of PaTz-groups may also provide opportunity to modify the content and tools used, and improve identification of palliative patients and advance care planning.

Origine : PubMed

Complexities in consultations in case of euthanasia or physician-assisted suicide - a survey among SCEN physicians

BERGMAN, Tessa D. ; PASMAN, H. Roeline W. ; ONWUTEAKA-PHILIPSEN, Bregje D.
BMC family practice, 09/01/2020, vol.21, n°1, p. 1-11

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Prevalence of diabetes mellitus at the end of life - an investigation using individually linked cause-of-death and medical register data

MITRATZA, Marianna ; KUNST, Anton E. ; PM HARTELOH, Peter ; MJ NIELEN, Markus ; KLIJS, Bart
Diabetes research and clinical practice, 02/2020, vol.160, n°108003, p. 1-9

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Experiences and needs of patients with incurable cancer regarding advance care planning - results from a national cross-sectional survey

STEGMANN, Mariken E. ; GEERSE, Olaf P. ; TANGE, Dorien ; RICHEL, Carol ; BROM, Linda ; ENGELEN, Vivian ; DUIJTS, Saskia F. A.
Supportive care in cancer, 03/01/2020, Pagination inconnue

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Experiences with counselling to people who wish to be able to self-determine the timing and manner of one's own end of life - a qualitative in-depth interview study

HAGENS, Martijn ; SNIJDEWIND, Marianne C. ; EVENBLIJ, Kirsten ; ONWUTEAKA-PHILIPSEN, Bregje D. ; PASMAN, H. Roeline W.
Journal of medical ethics, 23/12/2019, p. 1-8

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Screening with the double surprise question to predict deterioration and death - an explorative study

VELDHOVEN, C. M. M. ; NUTMA, N. ; DE GRAAF, W. ; SCHERS, H. ; VERHAGEN, C. a. H. H. V. M. ; VISSERS, K. C. P. ; ENGELS, Yvonne
BMC palliative care, 27/12/2019, vol.18, n°1, p. 1-9

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The association between palliative care team consultation and hospital costs for patients with advanced cancer - an observational study in 12 Dutch hospitals

BRINKMAN-STOPPELENBURG, Arianne ; POLINDER, Suzanne ; OLIJ, Branko F. ; VAN DEN BERG, Barbara ; GUNNINK, Nicolette ; HENDRIKS, Mathijs P. ; VAN DER LINDEN, Yvette M. ; NIEBOER, Daan ; VAN DER PADT-PRUIJSTEN, Annemieke ; PETERS, Liesbeth A. ; ROGGEVEEN, Brenda ; TERHEGGEN, Frederiek ; VERHAGE, Sylvia ; VAN DER VORST, Maurice J. ; WILLEMEN, Ingrid ; VERGOUWE, Yvonne ; VAN DER HEIDE, Agnes
European journal of cancer care, 11/12/2019, p. 1-11

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Chemotherapy and tyrosine kinase inhibitors in the last month of life in patients with metastatic lung cancer - a patient file study in the Netherlands

MIERAS, Adinda ; BECKER-COMMISSARIS, Annemarie ; PASMAN, H. Roeline W. ; DINGEMANS, Anne-Marie M. C. ; KOK, Edith V. ; CORNELISSEN, Robin ; JACOBS, Wouter ; VAN DEN BERG, Jan Willem ; WELLING, Alle ; BOGAARTS, Brigitte A. H. A. ; PRONK, Lemke ; ONWUTEAKA-PHILIPSEN, Bregje D.
European journal of cancer care, 21/12/2019, p. 1-10

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Care and decision-making at the end of life for patients with a non-western migration background living in the Netherlands - a nationwide mortality follow-back study

TORENSMA, Marieke ; SUURMOND, Jeanine L. ; VAN DER HEIDE, Agnes ; ONWUTEAKA-PHILIPSEN, Bregje D.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 11/12/2019, Pagination inconnue

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Palliative chemotherapy for patients with synchronous metastases of small-bowel adenocarcinoma - a reflection of daily practice

LEGUE, Laura M. ; BERNARDS, Nienke ; LEMMENS, Valery Epp ; DE HINGH, Ignace Hjt ; CREEMERS, Geert-Jan ; VAN ERNING, Felice N.
United European gastroenterology journal, 12/2019, vol.7, n°10, p. 1380-1388

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Physicians' experiences with euthanasia - a cross-sectional survey amongst a random sample of Dutch physicians to explore their concerns, feelings and pressure

EVENBLIJ, Kirsten ; PASMAN, H. Roeline W. ; VAN DELDEN, Johannes J. M. ; VAN DER HEIDE, Agnes ; VAN DE VATHORST, Suzanne ; WILLEMS, Dick L. ; ONWUTEAKA-PHILIPSEN, Bregje D.
BMC family practice, 17/12/2019, vol.20, n°1, p. 1-10

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Who are hospice patients and what care is provided in hospices? - a pilot study

KOORN, Remco M. ; VAN KLINKEN, Merel ; DE GRAAF, Everlien ; BRESSERS, Rick E. G. W. ; JOBSE, Adri P. ; VAN DER BAAN, Frederieke ; TEUNISSEN, Saskia C. C. M.
The American journal of hospice and palliative care, 13/12/2019, Pagination inconnue

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What do future hospice patients expect of hospice care - expectations of patients in the palliative phase who might be in need of hospice care in the future: a qualitative exploration

VAN KLINKEN, Merel ; DE GRAAF, Everlien ; BRESSERS, Rick ; KOORN, Remco ; VAN DER BAAN, Frederieke ; TEUNISSEN, Saskia
The American journal of hospice and palliative care, 09/12/2019, Pagination inconnue

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First prosecution of a Dutch doctor since the euthanasia act of 2002 - what does the verdict mean?

ASSCHER, Eva Constance Alida ; VAN DE VATHORST, Suzanne
Journal of medical ethics, 05/12/2019, p. 1-5

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Educating Dutch general practitioners in dementia advance care planning - a cluster randomized controlled trial

TILBURGS, Bram ; KOOPMANS, Raymond ; VERNOOIJ-DASSEN, Myrra JFJ. ; ADANG, Eddy ; SCHERS, Henk ; TEERENSTRA, Steven ; VAN DE POL, Marjolein ; SMITS, Carolien ; ENGELS, Yvonne ; PERRY, Marieke
Journal of the American Medical Directors Association, 20/11/2019, p. 1-10

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Home care for terminally ill patients - the experiences of family caregivers with and without paid work

BIJNSDORP, Femmy M. ; VAN DER BEEK, Allard J. ; PASMAN, H. Roeline W. ; BOOT, Cécile R. L. ; DE BOER, Alice H. ; PLAISIER, Inger ; ONWUTEAKA-PHILIPSEN, Bregje D.
BMJ supportive and palliative care, 20/11/2019, Pagination inconnue

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Geographical variation in palliative cancer care in a tax-based healthcare system - drug reimbursement in Denmark

DAUGAARD, Cecilie ; ASBJOERN NEERGAARD, Mette ; HOY SEEMANN VESTERGAARD, Anne ; KJÆRGAARD NIELSEN, Mette ; GOODMAN, David C. ; JOHNSEN, Soren P.
European journal of public health, 20/11/2019, Pagination inconnue

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Considerations by Dutch psychiatrists regarding euthanasia and physician-assisted suicide in psychiatry - a qualitative study

PRONK, Rosalie ; EVENBLIJ, Kirsten ; WILLEMS, Dick L. ; VAN DE VATHORST, Suzanne
The journal of clinical psychiatry, 05/11/2019, vol.80, n°6, Pagination inconnue

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Views of professionals and volunteers in palliative care on patient-centred care - a Q-methodology study in the Netherlands

GALEKOP, Milanne M. J. ; VAN DIJK, Hanna M. ; VAN EXEL, Job ; CRAMM, Jane M.
BMC palliative care, 08/11/2019, vol.18, n°1, p. 1-9

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