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PEDIATRIE

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Les soignants face au temps du mourir en réanimation pédiatrique

DUBOIS, Caroline ; LESAGE, Fabrice ; SEGURET, Sylvie
" Handicap et mort ", Erès , 2019 , p. 49-61

Sowing across a state - development and delivery of a grassroots pediatric palliative care nursing curriculum

WEAVER, Meaghann S. ; JENKINS, Rebecca ; WICHMAN, Christopher ; ROBINSON, Jacob E. ; POTTHOFF, Meghan R ; MENICUCCI, Traci ; VAIL, Catherine A.
JOURNAL OF PALLIATIVE CARE, 26/11/2019, Pagination inconnue

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Long-term nurse-parent relationships in paediatric palliative care - a narrative literature review

BRIMBLE, Mandy J. ; ANSTEY, Sally ; DAVIES, Jane
International Journal of Palliative Nursing, 11/2019, vol.25, n°11, p. 542-550

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Buccal opioids for breakthrough pain in children with life-limiting conditions receiving end-of-life care

NORMAN, Cheryl ; MAYNARD, Linda
International Journal of Palliative Nursing, 10/2019, vol.25, n°10, p. 472-479

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Palliative care in 9 children with neurodegeneration with brain iron accumulation

DANGEL, Tomasz ; KMIEC, Tomasz ; JANUSZANIEC, Artur ; WAZNY, Barbara
Neurological sciences, 22/11/2019, Pagination inconnue

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Finding a way with words - Delphi study to develop a discussion prompt list for paediatric palliative care

EKBERG, Stuart ; HERBERT, Anthony ; JOHNS, Kristi ; TARRANT, Gabrielle ; SANSONE, Holly ; YATES, Patsy ; DANBY, Susan ; BRADFORD, Natalie K.
PALLIATIVE MEDICINE, 22/11/2019, Pagination inconnue

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Parents' perspectives on hospital care for children and adolescents with life-limiting conditions - a grounded theory analysis of narrative interviews

ENGLER, Jennifer ; GRUBER, Dania ; ENGLER, Fabian ; HACH, Michaela ; SEIPP, Hannah ; KUSS, Katrin ; GERLACH, Ferdinand M. ; ULRICH, Lisa-R. ; ERLER, Antje
JOURNAL OF PALLIATIVE MEDICINE, 15/11/2019, Pagination inconnue

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Pediatric palliative care - a literature review of best practices in oncology nursing education programs

NEGRETE, Tabitha N. ; TARIMAN, Joseph D.
Clinical journal of oncology nursing, 01/12/2019, vol.23, n°6, p. 565-568

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A new palliative surgical technique for high risk total anomalous pulmonary venous connection (Sarmast-Takriti Shunt)

SARMAST, Hossein ; TAKRITI, Ahmad
Journal of cardiothoracic surgery, 01/07/2019, vol.14, n°1, p. 1-5

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Pediatric interventional oncology - endovascular, percutaneous, and palliative procedures

SHPANSKAYA, Katie ; LUNGREN, Matthew P. ; TULIN-SILVER, Sheryl
Seminars in roentgenology, 10/2019, vol.54, n°4, p. 359-366

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Early integration of palliative care in families of children with single ventricle congenital heart defects - a quality improvement project to enhance family support

DAVIS, Jo Ann M. ; BASS, Alice ; HUMPHREY, Lisa ; TEXTER, Karen ; GAREE, Amy
Pediatric cardiology, 01/11/2019, Pagination inconnue

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Thème : Age de la vie, situations spécifiques liées à la fin de vie.

DEMARCHE PALLIATIVE ; PEDIATRIE ; CARDIOLOGIE ; QUALITE SOIN

Children with single ventricle congenital heart defects (SVCHD) experience a significant risk of early mortality throughout their lifespan, particularly during their first year of life. Due to the intense care needed for these children and families, pediatric palliative care (PPC) team consults should be routine; however, medical staff are often reluctant to broach the idea of PPC to families. The involvement of PPC for many carries with it an association to end-of-life (EOL) care. Setting the standard of PPC involvement from the time of admission for the first palliative surgery led to increased family support, decreased days to consult, improved acceptance and communication. The purpose of this article is to describe a quality improvement project of early integration of PPC with families of children with SVCHD. Lessons learned will be presented, including the resources needed and the barriers encountered in assimilating PPC into the standard of care for all patients with SVCHD. The single ventricle (SV) and PPC teams collaborated to enhance the support given to SV families. Education was initiated with cardiology and PPC providers to understand the goal of consistent PPC consults beginning after birth for patients with SVCHD. Parents were educated during fetal consultation regarding the involvement of the PPC team. The SV team ensured compliance with the PPC initiative by identifying eligible patients and requesting consult orders from the primary providers. PPC consultation increased significantly over the 40 month study period to nearly 100% compliance for children with SVCHD who are undergoing pre-Fontan surgery. In addition, mean days to consult decreased dramatically during the study to a current average of 3 days into the patient's hospitalization; the data likely suggest that more PPC consults were routinely ordered versus urgently placed for unexpected complications. Data indicate that patients are being followed by the PPC team at an earlier age and stage in their SV journey which allows for more opportunity to provide meaningful support to these patients and families. The early involvement of the PPC team for children with SV physiology was operationally feasible and was accepted by families, thus allowing PPC providers to establish a therapeutic relationship early in the disease trajectory with the family. It allowed more continuity throughout the SV journey in a proactive fashion rather than a reactive manner.

Origine : PubMed

Enjeux des soins palliatifs pédiatriques en France aujourd’hui

GABOLDE, Martine ; FRACHE, Sandra
LAENNEC SANTE MEDECINE ETHIQUE, 10/2019, vol.67, n°4, p. 43-52

An objective approach to decisions to withdraw or withhold life-sustaining medical treatment

SAVULESCU, Julian ; CAMERON, James
Journal of law and medicine, 10/2019, vol.27, n°1, p. 192-210

Nebulized vasopressin for the control of hematemesis and hemoptysis in a child with recurrent, refractory stage III burkitt lymphoma

DULIN, Jennifer D. ; COYNE, Patrick J.
JOURNAL OF PALLIATIVE CARE, 03/11/2019, Pagination inconnue

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Insights into the perception that research ethics committees are a barrier to research with seriously ill children - a study of committee minutes and correspondence with researchers studying seriously ill children

BUTLER, Ashleigh E. ; VINCENT, Katherine ; BLUEBOND-LANGNER, Myra
PALLIATIVE MEDICINE, 04/11/2019, Pagination inconnue

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Core outcome domains of pediatric palliative care for children with severe neurological impairment and their families - a qualitative interview study

RIBBERS, Sophie ; WAGER, Julia ; HARTENSTEIN-PINTER, Almut ; ZERNIKOW, Boris ; REUTHER, Mandira
PALLIATIVE MEDICINE, 04/11/2019, Pagination inconnue

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Addressing multidrug resistant pathogens in pediatric palliative care patients-the nurses point of view - a qualitative study

SCHMIDT, Pia ; HARTENSTEIN-PINTER, Almut ; WAGER, Julia ; HASAN, Carola ; ZERNIKOW, Boris
PALLIATIVE MEDICINE, 29/10/2019, Pagination inconnue

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Palliative and end-of-life care for infants and their families in the NICU - building a program of research

FORTNEY, Christine A.
Journal of pediatric nursing, 24/10/2019, Pagination inconnue

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End-of-life milieu of critically sick children admitted to a pediatric hospital - a comparative study of survivors versus nonsurvivors

DAS, Asmita ; BHARTI, Bhavneet ; MALHI, Prahbhjot ; SINGHI, Sunit
Indian journal of palliative care, 12/2019, vol.25, n°4, p. 550-555

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Soins palliatifs du nouveau-né à l'adolescent

FRACHE, Sandra ; SCHELL, Matthias
Elsevier Masson , 11/2019 , 260 p.

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