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SUTTLE, Markita L. ; GERHARDT, Cynthia A. ; FULTS, Marci Z.
OMEGA JOURNAL OF DEATH AND DYING, 2019, vol.79, n°4, p. 436-445

Soins palliatifs en pédiatrie - enjeux psychologiques pour les enfants et leurs familles

PERIFANO, Alessia ; CANOUI, Pierre ; SEGURET, Sylvie
Erès , 10/2019 , 250 p.

The parental experience of unexpectedly losing a child in the pediatric emergency department

BEKKERING, Holly J. ; WOODGATE, Roberta L.
OMEGA JOURNAL OF DEATH AND DYING, 23/09/2019, Pagination inconnue

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Les soins palliatifs en équipe mobile intrahospitalière pédiatrique

DAVID, Isabelle ; LE MOING, Sandy
SOINS PEDIATRIE PUERICULTURE, 10/2019, vol.40, n°310, p. 45-48

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Training in pediatric palliative care in Italy - still much to do

BENINI, Franca ; CAUZZO, Chiara ; CONGEDI, Sabrina ; DA DALT, Liviana ; COGO, Paola ; BISCAGLIA, Lilia ; GIACOMELLI, Luca
Annali dell'istituto superiore di sanita, 09/2019, vol.55, n°3, p. 240-245

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Differing thresholds for overriding parental refusals of life-sustaining treatment

GERDES, Hannah ; LANTOS, John
HEC forum, 18/09/2019, p. 1-8

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Integrating the comfort theory™ into pediatric primary palliative care to improve access to care

LAFOND, Deborah A. ; BOWLING, Sabrina ; FORTKIEWICZ, Justine Mize ; REGGIO, Cheryl ; HINDS, Pamela S.
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 10/2019, vol.21, n°5, p. 382-389

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Palliative extubation - a five-year experience in a pediatric hospital

DE ARAUJO AFFONSECA, Carolina ; DE CARVALHO, Luis Fernando Andrade ; DE PINHO BARROSO QUINET, Renata ; DA CUNHA GUIMARAES, Maila Cristina ; FERREIRA CURY, Veronica ; TELLECHEA ROTTA, Alexandre
Jornal de pediatria, 04/09/2019, p. 1-8

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Top ten tips palliative care clinicians should know about caring for children in neonatal and pediatric intensive care units

KOLMAR, Amanda ; HUECKEL, Rémi M. ; KAMAL, Arif ; DICKERMAN, Mindy
JOURNAL OF PALLIATIVE MEDICINE, 09/2019, vol.22, n°9, p. 1149-1153

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Failure to provide adequate palliative care may be medical neglect

LEVY, Carly ; WEEKS, Kristin S. ; BENSON, Rebecca J. ; MILLER, Jonathan M. ; HIGGINS, Jennifer ; DEUTSCH, Stephanie Anne ; LANTOS, John D.
Pediatrics, 10/2019, vol.144, n°4, Pagination inconnue

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Approaches to community-based palliative care provision by children's hospices in the UK

TATTERTON, Michael J.
Nursing children and young people, 03/09/2019, Pagination inconnue

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Barriers to palliative care in pediatric oncology in Switzerland - a focus group study

ROST, Michael ; DE CLERCQ, Eva ; RAKIC, Milenko ; WANGMO, Tenzin ; ELGER, Bernice
Journal of pediatric oncology nursing, 03/09/2019, Pagination inconnue

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Evaluation of the burdens and benefits of participation in research by parents of children with life-limiting illnesses

HOPPER, Audrey ; CRANE, Stacey
Nurse researcher, 24/07/2019, Pagination inconnue

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Aromatherapy improves nausea, pain, and mood for patients receiving pediatric palliative care symptom-based consults - a pilot design trial

WEAVER, Meaghann S. ; ROBINSON, Jacob ; WICHMAN, Christopher
Palliative and supportive care, 19/08/2019, p. 1-6

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Integrating palliative care to improve the care of children living with HIV in Indonesia

LIMARDI, Suryadi ; SAUNDERS, Ricky ; TASIA, Yenna ; HONG, Poon Wing
PROGRESS IN PALLIATIVE CARE, 04/07/2019, vol.27, n°4, p. 147-153

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Présentation de l'unité AJA (Adolescent et Jeune Adulte) à l'Institut Curie

QUIE, Sandra
ASP LIAISONS, 06/2019, n°58, p. 39-42

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Interdisciplinary perspectives on the value of massage therapy in a pediatric hospice

EGELI, Deetria ; BAINBRIDGE, Lesley ; MILLER, Tanice ; POTTS, James
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 08/2019, vol.21, n°4, p. 319-325

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Integration of pediatric palliative care into cardiac intensive care - a champion-based model

MOYNIHAN, Katie M. ; SNAMAN, Jennifer M. ; KAYE, Erica C. ; MORRISON, Wynne E. ; DEWITT, Aaron G. ; SACKS, Loren D. ; THOMPSON, Jess L. ; HWANG, Jennifer M. ; BAILEY, Valerie ; LAFOND, Deborah A. ; WOLFE, Joanne ; BLUME, Elizabeth D.
Pediatrics, 08/2019, vol.144, n°2, Pagination inconnue

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Thème : Age de la vie, situations spécifiques liées à la fin de vie.

PEDIATRIE ; DEMARCHE PALLIATIVE ; SOIN INTENSIF ; MODELE

Integration of pediatric palliative care (PPC) into management of children with serious illness and their families is endorsed as the standard of care. Despite this, timely referral to and integration of PPC into the traditionally cure-oriented cardiac ICU (CICU) remains variable. Despite dramatic declines in mortality in pediatric cardiac disease, key challenges confront the CICU community. Given increasing comorbidities, technological dependence, lengthy recurrent hospitalizations, and interventions risking significant morbidity, many patients in the CICU would benefit from PPC involvement across the illness trajectory. Current PPC delivery models have inherent disadvantages, insufficiently address the unique aspects of the CICU setting, place significant burden on subspecialty PPC teams, and fail to use CICU clinician skill sets. We therefore propose a novel conceptual framework for PPC-CICU integration based on literature review and expert interdisciplinary, multi-institutional consensus-building. This model uses interdisciplinary CICU-based champions who receive additional PPC training through courses and subspecialty rotations. PPC champions strengthen CICU PPC provision by (1) leading PPC-specific educational training of CICU staff; (2) liaising between CICU and PPC, improving use of support staff and encouraging earlier subspecialty PPC involvement in complex patients' management; and (3) developing and implementing quality improvement initiatives and CICU-specific PPC protocols. Our PPC-CICU integration model is designed for adaptability within institutional, cultural, financial, and logistic constraints, with potential applications in other pediatric settings, including ICUs. Although the PPC champion framework offers several unique advantages, barriers to implementation are anticipated and additional research is needed to investigate the model's feasibility, acceptability, and efficacy.

Origine : PubMed

Outcomes for pediatric patients with osteosarcoma treated with palliative radiotherapy

CHEN, Emily L. ; YOO, Christopher H. ; GUTKIN, Paulina M. ; MERRIOTT, David J. ; AVEDIAN, Raffi S. ; STEFFNER, Robert J. ; SPUNT, Sheri L. ; PRIBNOW, Allison K. ; MILLION, Lynn ; DONALDSON, Sarah S. ; HINIKER, Susan M.
Pediatric blood and cancer, 12/08/2019, Pagination inconnue

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Hospital to home transport at end of life - survey of clinician experience

RAED, Mona ; GROSSOEHME, Daniel H. ; BROWN, Miraides ; FRIEBERT, Sarah
PALLIATIVE MEDICINE, 21/08/2019, Pagination inconnue

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Thème : Santé.

FIN VIE ; RETOUR DOMICILE ; PRISE EN CHARGE ; ETUDE RETROSPECTIVE ; PEDIATRIE

BACKGROUND: Palliative transport is transport home of patients requiring critical care transport support with expectation of imminent death. Many parents prefer their child's death at home; evidence suggests death in the preferred location improves bereavement outcomes. Little is known about the clinical and demographic diversity of patients receiving palliative transport or the perspectives of participating staff.
AIM: The objectives of the present study were to (1) characterize demographic and clinical factors involved in palliative transport, (2) identify challenges encountered, and and (3) ascertain staff perspectives.
DESIGN: Ten-year retrospective chart review and cross-sectional staff survey using study-specific questionnaire.
SETTING/PARTICIPANTS: Twenty-three patients had palliative transport from a tertiary pediatric hospital from 2004 to 2013, of which 12 met inclusion criteria. Survey responses from 22 participating staff were received.
RESULTS: The cohort of 12 patients was 58% female, with a mean (range) age of 5.5 (0.01–22) years; racial composition was not significantly different than the palliative care clinical census over the same time period. Distances under 30 miles accounted for 50% of palliative transports. The majority of patients (75%) died within 2 days of palliative transport. Six unanticipated events are described. Staff reported palliative transport as a positive experience, regarding it as an important job component. However, 63% were dissatisfied or undecided about the plan should the patient die enroute, and 48% experienced some level of dissatisfaction with communication.
CONCLUSION: Palliative transport is a feasible option for some patients. Staff experienced palliative transport as valuable, although process concerns were noted. This study underscores the importance of preparedness, training, and education for palliative transports.

Origine : PubMed

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