VigiPallia : Résultats

PEDIATRIE

0 sélectionnée(s) / 1166 réponse(s)

(1) 2 3 4 ... 59 > »

Emotional communication in advanced pediatric cancer conversations

SISK, Bryan A. ; FRIEDRICH, Annie B. ; DUBOIS, James ; MACK, Jennifer W.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 04/2020, vol.59, n°4, p. 808-817

Document en ligne

Seven types of uncertainty when clinicians care for pediatric patients with advanced cancer

HILL, Douglas L. ; WALTER, Jennifer K. ; SZYMCZAK, Julia E. ; DIDOMENICO, Concetta ; PARIKH, Shefali ; FEUDTNER, Chris
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 01/2020, vol.59, n°1, p. 86-94

Document en ligne

Pediatric concurrent hospice care - a scoping review and directions for future nursing research

LINDLEY, Lisa C. ; KEIM-MALPASS, Jessica ; SVYNARENKO, Radion ; COZAD, Melanie J. ; MACK, Jennifer W. ; HINDS, Pamela S.
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 06/2020, vol.22, n°3, p. 238-245

Document en ligne

Le rôle de la puéricultrice au sein d’une équipe ressource régionale en soins palliatifs pédiatriques

DURAND DU REPAIRE, Patricia ; JOUNIS-JAHAN, Florence
CAHIERS DE LA PUERICULTRICE, 02/2020, vol.57, n°334, p. 29-32

A virtual children's hospice in response to Covid-19 - the Scottish experience

ELLIS, Kirsteen ; LINDLEY, Lisa C.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 13/05/2020, p. 1-4

Document en ligne

Characteristics of parental decision-making for children with advanced cancer who are offered enrollment in early-phase clinical trials - a systematic review

LE ROUZIC, Marie-Amelyne ; CLAUDOT, Frédérique
Pediatric hematology and oncology, 13/05/2020, p. 1-30

Document en ligne

Bereaved parents' views on end-of-life care for children with cancer - quality marker implications

JOHNSTON, Emily E. ; MOLINA, Jannelle ; MARTINEZ, Isaac ; DIONNE-ODOM, J. Nicholas ; CURRIE, Erin R. ; CROWL, Terra ; BUTTERWORTH, Lori ; CHAMBERLAIN, Lisa J. ; BHATIA, Smita ; ROSENBERG, Abby R.
Cancer, 08/05/2020, Pagination inconnue

Document en ligne

Thème : Soins.

QUALITE SOIN ; PEDIATRIE ; CANCEROLOGIE ; PARENT ; RECHERCHE QUALITATIVE

Background: End-of-life (EOL) quality markers in adult oncology include home death and intensive care unit avoidance. Corresponding markers are lacking in pediatric oncology. This study was aimed at describing bereaved parents' perspectives of high-quality EOL care in pediatric oncology.
Methods: this study enrolled a convenience sample of 28 bereaved parents (English- or Spanish-speaking) whose children (0-21 years old) had died of cancer =6 months before. Semistructured interviews were conducted to elicit parental perceptions of medically intense/quality EOL care. Interviews were recorded and transcribed verbatim (30 hours), and study team consensus and content analyses identified themes related to EOL quality markers. Related quotes were scored on a 5-point Likert scale ranging from 1 (supported comfort care) to 5 (supported medically aggressive care).
Results: The children died in 1998-2017 at a mean age of 10 years (SD, 5.2 years); 50% had a solid tumor, and 46% were Spanish-speaking. Themes included 1) home death preference (unless home support was inadequate; median score, 1.6), nonaggressive care (median score, 2.4), and continued anticancer therapy (median score, 3.2); 2) programs/policies that could alleviate barriers limiting a family's time with a dying child (visiting restrictions and financial strains); 3) the need to prepare the family for death (eg, what would happen to the child's body), and 4) perceived abandonment.
Conclusions: This is the first qualitative study to identify quality makers for children dying of cancer from bereaved parents' perspectives. Natural death is generally preferred, and quality measures that address barriers to parents' spending time with their children, a lack of preparation for the events surrounding death, and feelings of abandonment are critical. Future studies need to validate these findings and develop targeted interventions.

Origine : PubMed

Continuous deep sedation at the end of life in children with cancer - experience at a single center in Japan

MAEDA, Sayaka ; KATO, Itaru ; UMEDA, Katsutsugu ; HIRAMATSU, Hidefumi ; TAKITA, Junko ; ADACHI, Souichi ; TSUNETO, Satoru
Pediatric hematology and oncology, 07/05/2020, p. 1-10

Document en ligne

Palliative care skills in cf - perspectives of adults with cf, caregivers, and cf care team members

TRANDEL, Elizabeth T. ; KAVALIERATOS, Dio ; BASILE, Melissa ; HOBLER, Mara R. ; GEORGIOPOULOS, Anna M. ; CHEN, Elaine ; GOGGIN, Jessica L. ; GOSS, Christopher H. ; HEMPSTEAD, Sarah E. ; FARO, Albert ; DELLON, Elisabeth P.
Pediatric pulmonology, 08/05/2020, Pagination inconnue

Document en ligne

Palliative care for pediatric intensive care patients and families

ROTHSCHILD, Charles B. ; DERRINGTON, Sabrina F.
Current opinion in pediatrics, 06/2020, vol.32, n°3, p. 428-435

Document en ligne

Palliative care, resuscitation status, and end-of-life considerations in pediatric anesthesia

ERONDU, Mgbechi U. ; MAHONEY, Daniel P.
Current opinion in anaesthesiology, 06/2020, vol.33, n°3, p. 354-360

Document en ligne

Supporting pediatric patients and their families at the end of life - perspectives from bereaved parents

SEDIG, Laura K. ; SPRUIT, Jessica L. ; PAUL, Trisha K. ; COUSINO, Melissa K. ; MCCAFFERY, Harlan ; PITUCH, Kenneth ; HUTCHINSON, Raymond
The American journal of hospice and palliative care, 06/05/2020, Pagination inconnue

Document en ligne

Specialist paediatric palliative care for children and young people with cancer - a mixed-methods systematic review

TAYLOR, Johanna ; BOOTH, Alison ; BERESFORD, Bryony ; PHILLIPS, Bob ; WRIGHT, Kath ; FRASER, Lorna
PALLIATIVE MEDICINE, 02/05/2020, p. 731-775

Document en ligne

Thème : Age de la vie, situations spécifiques liées à la fin de vie. Cote : e00.07PAL

DEMARCHE PALLIATIVE ; PEDIATRIE ; CANCER ; REVUE SYSTEMATIQUE

Background: Specialist paediatric palliative care services are promoted as an important component of palliative care provision, but there is uncertainty about their role for children with cancer.
Aim: To examine the impact of specialist paediatric palliative care for children and young people with cancer and explore factors affecting access.
Design: mixed-methods systematic review and narrative synthesis (PROSPERO Registration No. CRD42017064874).
Data sources: Database (CINAHL, Cochrane Database of Systematic Reviews, Embase, MEDLINE, PsycINFO) searches (2000–2019) identified primary studies of any design exploring the impact of and/or factors affecting access to specialist paediatric palliative care. Study quality was assessed using The Mixed Methods Appraisal Tool.
Results: An evidence base of mainly low- and moderate-quality studies (n = 42) shows that accessing specialist paediatric palliative care is associated with less intensive care at the end of life, more advance care planning and fewer in-hospital deaths. Current evidence cannot tell us whether these services improve children’s symptom burden or quality of life. Nine studies reporting provider or family views identified uncertainties about what specialist paediatric palliative care offers, concerns about involving a new team, association of palliative care with end of life and indecision about when to introduce palliative care as important barriers to access. There was evidence that children with haematological malignancies are less likely to access these services.
Conclusion: Current evidence suggests that children and young people with cancer receiving specialist palliative care are cared for differently. However, little is understood about children’s views, and research is needed to determine whether specialist input improves quality of life.

Origine : PubMed

Ethical dilemmas at the beginning and end of life - a needs-based, experience-informed, small-group, case-based curriculum for pediatric residents

HERBST, Lori A. ; DESANTE-BERTKAU, Jennifer
MedEdPORTAL, 03/04/2020, vol.16, p. 1-7

Document en ligne

Pediatric palliative transport in critically ill children - a single center's experience and parents' perspectives

MENON, Anuradha P. ; MOK, Yee Hui ; LOH, Lik Eng ; LEE, Jan Hau
Journal of pediatric intensive care, 06/2020, vol.9, n°2, p. 99-105

Document en ligne

Racial and ethnic differences in communication and care for children with advanced cancer

MACK, Jennifer W. ; UNO, Hajime ; TWIST, Clare J. ; BAGATELL, Rochelle ; ROSENBERG, Abby R. ; MARACHELIAN, Araz ; GRANGER, M. Meaghan ; BENDER, Julia Glade ; BAKER, Justin N. ; PARK, Julie R. ; COHN, Susan L. ; FERNANDEZ, Jorge H. ; DILLER, Lisa R. ; SHUSTERMAN, Suzanne
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 30/04/2020, p. 1-8

Document en ligne

Consulting with a folk deity before making decisions - spiritual practices in parents facing end-of-life decisions for their child on life support with brain stem dysfunction

LIN, Shih-Chun ; HUANG, Mei-Chih
International journal of qualitative studies on health and well-being, 2020, vol.15, n°1, p. 1-10

Document en ligne

How do children die in PICUs nowadays? - a multicenter study from Spain

AGRA-TUNAS, Carme ; RODRIGUEZ-RUIZ, Emilio ; RODRIGUEZ MERINO, Elva ; MODOS DE MORIR EN UCI PEDIÁTRICA-2 (MOMUCI-2) STUDY GROUP OF THE SPANISH SOCIETY OF PAEDIATRIC INTENSIVE CARE (SECIP)
Pediatric critical care medicine, 23/04/2020, Pagination inconnue

Document en ligne

Medical assistance in dying at a paediatric hospital

DEMICHELIS, Carey ; ZLOTNIK SHAUL, Randi ; RAPOPORT, Adam
Journal of medical ethics, 01/01/2019, vol.45, n°1, p. 60-67

Document en ligne

End-of-life care of hospitalized children with advanced heart disease

LEE, Joowon ; KIM, Gi Beom ; SONG, Mi Kyoung ; LEE, Sang Yun ; KIM, Min Sun ; BAE, Eun Jung
Journal of Korean medical science, 27/04/2020, vol.35, n°16, p. 1-10

Document en ligne

(1) 2 3 4 ... 59 > »

Actions

##titre_notice##