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Nurse-led advance care planning with older people who have end-stage kidney disease - feasibility of a deferred entry randomised controlled trial incorporating an economic evaluation and mixed methods process evaluation (ACReDiT)

O'HALLORAN, Peter ; NOBLE, Helen ; NORWOOD, Kelly ; MAXWELL, Peter ; MURTAGH, Fliss ; SHIELDS, Joanne ; MULLAN, Robert ; MATTHEWS, Michael ; CARDWELL, Christopher ; CLARKE, Mike ; MORTON, Rachael ; SHAH, Karan ; FORBES, Trisha ; BRAZIL, Kevin
BMC nephrology, 13/11/2020, vol.21, n°1, p. 1-17

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Effective palliative care in the trauma setting

SCHULTZ, Kristen L. ; BRASEL, Karen J. ; ZONIES, David H. ; COOK, Mackenzie R.
The American surgeon, 06/11/2020, Pagination inconnue

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End-of-life-care quality in ICUs is associated with family surrogates' severe anxiety and depressive symptoms during their first 6 months of bereavement

TANG, Siew Tzuh ; HUANG, Chung-Chi ; HU, Tsung-Hui ; LO, Mei-Ling ; CHOU, Wen-Chi ; CHUANG, Li-Pang ; CHIANG, Ming Chu
Critical care medicine, 28/10/2020, Pagination inconnue

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Understanding Asian Indian Americans' knowledge and attitudes toward hospice care

SHIRSAT, Nikita ; HOE, Deborah ; ENGUIDANOS, Susan
The American journal of hospice and palliative care, 27/10/2020, Pagination inconnue

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Ethical and legal considerations related to disorders of consciousness

RISSMAN, Lauren ; PAQUETTE, Erin Talati
Current opinion in pediatrics, 12/2020, vol.32, n°6, p. 765-771

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The impact of no next of kin decision makers on end-of-life care

OTA, Ryan K. ; JOHNSON, Maxwell B. ; PICKERING, Trevor A. ; GARNER, Warren L. ; GILLENWATER, T. Justin ; YENIKOMSHIAN, Haig A.
Journal of burn care and research, 10/10/2020, Pagination inconnue

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The impact of an advance care planning intervention for patients hospitalized with acute decompensated heart failure

PRENTICE, Therese Crowley ; LAWSON, Robin
Heart and lung, 08/10/2020, Pagination inconnue

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Do life-sustaining treatment orders match patient and surrogate preferences? - the role of POLST

HICKMAN, Susan E. ; TORKE, Alexia M. ; SACHS, Greg A. ; SUDORE, Rebecca L. ; TANG, Qing ; BAKOYANNIS, Giorgos ; SMITH, Nicholette Heim ; MYERS, Anne L. ; HAMMES, Bernard J.
Journal of general internal medicine, 27/10/2020, Pagination inconnue

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Integrating palliative care on an adult trauma service

SCHOCKETT, Erica R. ; PRATHER, Christina P. ; BENJENK, Ivy ; ESTROFF, Jordan M.
JOURNAL OF PALLIATIVE MEDICINE, 22/09/2020, Pagination inconnue

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Deconstructing the complexities of advance care planning outcomes - what do we know and where do we go? A scoping review

MCMAHAN, Ryan D. ; TELLEZ, Ismael ; SUDORE, Rebecca L.
Journal of the American Geriatrics Society, 07/09/2020, Pagination inconnue

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Precedent autonomy and surrogate decisionmaking after severe brain injury

GRAHAM, Mackenzie
Cambridge quarterly of healthcare ethics, 10/2020, vol.29, n°4, p. 511-526

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Factors underlying surrogate medical decision-making in Middle Eastern and East Asian women - a Q-methodology study

HAMMAMI, Muhammad M. ; AL BALKHI, Areej ; DE PADUA, Sophia S. ; ABUHDEEB, Kafa
BMC palliative care, 01/09/2020, vol.19, n°1, p. 1-14

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POLST signature requirements - responding with compassion while ensuring informed consent

MACAULEY, Robert ; TOLLE, Susan
The American journal of hospice and palliative care, 01/09/2020, p. 1-4

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Family perceptions of quality of end-of-life care in stroke

MARKOVITZ, Netana ; MORGENSTERN, Lewis B. ; SHAFIE-KHORASSANI, Fatema ; CORNETT, Bridget A. ; KIM, Sehee ; ORTIZ, Carmen ; LANK, Rebecca J. ; CASE, Erin ; ZAHURANEC, Darin B.
Palliative medicine reports, 2020, vol.1, n°1, p. 129-134

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Development and usability testing of understanding stroke, a tailored life-sustaining treatment decision support tool for stroke surrogate decision makers

CHEN, Emily P. ; ARSLANIAN-ENGOREN, Cynthia ; NEWHOUSE, William ; EGLESTON, Diane ; SAHGAL, Savina ; YANDE, Aneesha ; FAGERLIN, Angela ; ZAHURANEC, Darin B.
BMC palliative care, 20/07/2020, vol.19, n°1, p. 1-8

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Thème : Santé. Cote : eD01.03

PERSONNE CONFIANCE ; OUTIL ; AIDE DECISION ; ACCIDENT CEREBRAL

BACKGROUND: Surrogate decision makers of stroke patients are often unprepared to make critical decisions on life-sustaining treatments. We describe the development process and key features for the Understanding Stroke web-based decision support tool.
METHODS: We used multiple strategies to develop a patient-centered, tailored decision aid. We began by forming a Patient and Family Advisory Council to provide continuous input to our multidisciplinary team on the development of the tool. Additionally, focus groups consisting of nurses, therapists, social workers, physicians, stroke survivors, and family members reviewed key elements of the tool, including prognostic information, graphical displays, and values clarification exercise. To design the values clarification exercise, we asked focus groups to provide feedback on a list of important activities of daily living. An ordinal prognostic model was developed for ischemic stroke and intracerebral hemorrhage using data taken from the Virtual International Stroke Trials Archive Plus, and incorporated into the tool.
RESULTS: Focus group participants recommended making numeric prognostic information optional due to possible emotional distress. Pie charts were generally favored by participants for graphical presentation of prognostic information, though a horizontal stacked bar chart was also added due to its prevalence in stroke literature. Plain language descriptions of the modified Rankin Scale were created to accompany the prognostic information. A values clarification exercise was developed consisting of a list of 13 situations that may make an individual consider comfort measures only. The final version of the web based tool (which can be viewed on tablets) included the following sections: general introduction to stroke, outcomes (prognostic information and recovery), in-hospital and life-sustaining treatments, decision making and values clarification, post-hospital care, tips for talking to the health care team, and a summary report. Preliminary usability testing received generally favorable feedback.
CONCLUSION: We developed Understanding Stroke, a tailored decision support tool for surrogate decision makers of stroke patients. The tool was well received and will be formally pilot tested in a group of stroke surrogate decision makers.

Origine : PubMed

Accuracy in surrogate end-of-life medical decision-making - a critical review

SPALDING, Rachael
Applied psychology. Health and well-being, 23/08/2020, Pagination inconnue

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What would people think? - perceived social norms, willingness to serve as a surrogate, and end-of-life treatment decisions

SPALDING, Rachael ; STROUGH, JoNell ; EDELSTEIN, Barry
Palliative and supportive care, 15/07/2020, p. 1-9

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Thème : Soins.

PERSONNE CONFIANCE ; PRISE DECISION ; FIN VIE ; FACTEUR

BACKGROUND: Population aging has increased the prevalence of surrogate decision making in healthcare settings. However, little is known about factors contributing to the decision to become a surrogate and the surrogate medical decision-making process in general. We investigated how intrapersonal and social-contextual factors predicted two components of the surrogate decision-making process: individuals' willingness to serve as a surrogate and their tendency to select various end-of-life treatments, including mechanical ventilation and palliative care options.
METHOD: An online sample (N = 172) of adults made hypothetical surrogate decisions about end-of-life treatments on behalf of an imagined person of their choice, such as a parent or spouse. Using self-report measures, we investigated key correlates of willingness to serve as surrogate (e.g., decision-making confidence, willingness to collaborate with healthcare providers) and choice of end-of-life treatments.
RESULTS: Viewing service as a surrogate as a more typical practice in healthcare was associated with greater willingness to serve. Greater decision-making confidence, greater willingness to collaborate with patients' physicians, and viewing intensive, life-sustaining end-of-life treatments (e.g., mechanical ventilation) as more widely accepted were associated with choosing more intensive end-of-life treatments.
SIGNIFICANCE OF RESULTS: The current study's consideration of both intrapersonal and social-contextual factors advances knowledge of two key aspects of surrogate decision making - the initial decision to serve as surrogate, and the surrogate's selection of various end-of-life treatment interventions. Providers can use information about the role of these factors to engage with surrogates in a manner that better facilitates their decision making. For instance, providers can be sensitive to potential cultural differences in surrogate decision-making tendencies or employing decision aids that bolster surrogates' confidence in their decisions.

Origine : PubMed

Advance directives in Austrian intensive care units - an analysis of prevalence and barriers

KOSTENBERGER, Markus ; DIEGELMANN, Svenja ; TERLUTTER, Ralf ; BIDMON, Sonja ; NEUWERSCH, Stefan ; LIKAR, Rudolf
Resuscitation plus, 01/09/2020, vol.3, p. 1-7

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Low rates of advance care planning (ACP) discussions despite readiness to engage in ACP among liver transplant candidates

WANG, Connie W. ; LEBSACK, Adrienne ; SUDORE, Rebecca L. ; LAI, Jennifer C.
Digestive diseases and sciences, 04/06/2020, Pagination inconnue

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Surrogate satisfaction with decision making after intracerebral hemorrhage

SAHGAL, Savina ; YANDE, Aneesha ; THOMPSON, Bradford B. ; CHEN, Emily P. ; FAGERLIN, Angela ; MORGENSTERN, Lewis B. ; ZAHURANEC, Darin B.
Neurocritical care, 15/06/2020, Pagination inconnue

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Thème : Soins.

PRISE DECISION ; PERSONNE CONFIANCE ; RESSENTI ; ETUDE PROSPECTIVE ; SATISFACTION

Background/Objective: Surrogate decision makers for patients with intracerebral hemorrhage (ICH) are frequently asked to make difficult decisions on use of life-sustaining treatments. We explored ICH surrogate satisfaction with decision making and experience of decision regret using validated measures in a prospective multicenter study.
Methods: Cases of non-traumatic ICH were enrolled from three hospitals (September 2015–December 2016), and surrogate decision makers were invited to complete a self-administered survey. The primary outcome was the 10-item decision-making subscale of the Family Satisfaction in the Intensive Care Unit scale (FSICU-DM, range 0–100, higher is greater satisfaction), and the secondary outcome was the decision regret scale (range 0–100, higher is greater regret). Linear regression models were used to assess the association between satisfaction with decision making and pre-specified covariates using manual backward selection.
Results: A total of 73 surrogates were approached for participation (in person or mail), with 48 surrogates returning a completed survey (median surrogate age 60.5 years, 63% female, 77% white). Patients had a median age of 72.5, 54% were female, with a median admission Glasgow coma scale of 10, in-hospital mortality of 31%, and 56% with an in-hospital DNR order. Physicians commonly made treatment recommendation (> 50%) regarding brain surgery or transitions to comfort measures, but rarely made recommendations (< 20%) regarding DNR orders. Surrogate satisfaction with decision making was generally high (median FSICU-DM 85, IQR 57.5–95). Factors associated with higher satisfaction on multivariable analysis included greater use of shared decision making (P < 0.0001), younger patient age (p = 0.02), ICH score of 3 or higher (p = 0.03), and surrogate relationship (spouse vs. other, p = 0.02). Timing of DNR orders was not associated with satisfaction (P > 0.25). Decision regret scores were generally low (median 12.5, IQR 0–31.3).
Conclusions: Considering the severity and abruptness of ICH, it is reassuring that surrogate satisfaction with decision making was generally high and regret was generally low. However, more work is needed to define the appropriate outcome measures and optimal methods of recruitment for studies of surrogate decision makers of ICH patients.

Origine : DOI.org (Crossref

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