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Autism and advance directives - determining capability and the use of health-care tools to aid in effective communication and decision-making

SATKOSKE, Valerie ; MIGYANKA, Joann M. ; KAPPEL, David
The American journal of hospice and palliative care, 21/11/2019, Pagination inconnue

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Advance care planning - a communitarian approach?

EVANS CHAN, Tracey
Journal of law and medicine, 07/2019, vol.26, n°4, p. 896-921

Communication quality predicts psychological well-being and satisfaction in family surrogates of hospitalized older adults - an observational study

TORKE, Alexia M. ; CALLAHAN, Christopher M. ; SACHS, Greg A. ; WOCIAL, Lucia D. ; HELFT, Paul R. ; MONAHAN, Patrick O. ; SLAVEN, James E. ; MONTZ, Kianna ; BURKE, Emily S. ; INGER, Lev
Journal of general internal medicine, 01/01/2018, vol.33, n°3, p. 298-304

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A psychometric evaluation of the family decision-making self-efficacy scale among surrogate decision-makers of the critically ill

PIGNATIELLO, Grant A. ; IRANI, Elliane ; TAHIR, Sadia ; TSIVITSE, Emily ; HICKMAN, Ronald L.
Palliative and supportive care, 08/11/2019, p. 1-7

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Advance care planning - a communitarian approach?

CHAN, Tracey Evans
Journal of law and medicine, 07/2019, vol.26, n°4, p. 896-921

Concordancein advance care preferences among high-risk surgical patients and surrogate health care decision makers in the perioperative setting

UDELSMAN, Brooks V. ; GOVEA, Nicolas ; COOPER, Zara ; CHANG, David C. ; BADER, Angela ; MEYER, Matthew J.
Surgery, 23/10/2019, Pagination inconnue

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Surrogate decision makers' perspectives on family members' prognosis after intracerebral hemorrhage

ZAHURANEC, Darin B. ; ANSPACH, Renee R. ; RONEY, Meghan E. ; FUHREL-FORBIS, Andrea ; CONNOCHIE, Daniel M. ; CHEN, Emily P. ; THOMPSON, Bradford B. ; VARELAS, Panayiotis N. ; MORGENSTERN, Lewis B. ; FAGERLIN, Angela
JOURNAL OF PALLIATIVE MEDICINE, 07/2018, vol.21, n°7, p. 956-962

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Decision support intervention (Plan Well Guide) for patients and their substitute decision-makers to improve engagement in advance care planning - protocol for a randomised trial

HOWARD, Michelle ; SLAVEN, Marissa ; BERNARD, Carrie ; BORHAN, Sayem ; ELSTON, Dawn ; ARORA, Neha ; TAN, Amy ; HEYLAND, Daren K.
BMJ Open, 20/09/2019, vol.9, n°9, p. 1-8

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The association of surrogate decision makers' religious and spiritual beliefs with end of life decisions

TORKE, Alexia M. ; FITCHETT D MIN, George Fitchett ; MAIKO, Saneta ; BURKE, Emily S. ; SLAVEN, James E. ; NEWTON WATSON, Beth ; IVY, Steven ; MONAHAN, Patrick O.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 17/09/2019, Pagination inconnue

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A multidisciplinary team-based approach to improve communication with surrogates of patients with chronic critical illness

GREENBERG, Jared A. ; GERHART, James ; HORST, Jacqueline N. ; CHEN, Elaine ; HUNTER, Rebecca L. ; O'MAHONY, Sean ; YEOW, Mei-Ean ; FOSLER, Laura ; LAGORIO, Lisa A. ; MEKSRAITYTE, Edita ; WEISS, Tyler T. ; NOWAK, Kristen ; GEDDES, Jacqueline ; LAMBE, Stacy S. ; FENTON, Kara ; SHAH, Raj C.
The American journal of hospice and palliative care, 16/09/2019, Pagination inconnue

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Gaps in public preparedness to be a substitute decision-maker and the acceptability of high school education on resuscitation and end-of-life care - a mixed-methods study

WONG, Michael K. Y. ; MEDOR, Maria Cassandre ; YELLE LABRE, Katerina ; JIANG, Mengzhu ; FRANK, Jason R. ; FISCHER, Lisa M. ; CHEUNG, Warren J.
CMAJ open, 09/2019, vol.7, n°3, p. E573-E581

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Thème : Soins. Cote : eD02.03

OPINION PUBLIQUE ; PERSONNE CONFIANCE ; CANADA ; COMMUNICATION

BACKGROUND: When a patient is incapable of making medical decisions for him- or herself, a substitute decision-maker makes choices according to the patient's previously expressed wishes, values and beliefs; however, little is known about public readiness to act as a substitute decision-maker in Canada. Our primary objective was to measure public self-reported preparedness to act as a substitute decision-maker, and explore the attitudes, barriers and enablers associated with preparedness.
METHODS: From November 2017 to June 2018, we conducted a mixed-methods street intercept survey at 12 pedestrian areas in Ottawa, Ontario. We used descriptive statistics and logistic regression analysis to assess predictors of perceived preparedness to be a substitute decision-maker and determine support for high school education. We analyzed qualitative interview questions using inductive thematic analysis.
RESULTS: Of the 626 eligible respondents, 196 refused to participate, leaving 430 participants (response rate 68.7%). A total of 404 surveys (94.0%) were fully complete with no missing data. The respondents were mostly female (243 [56.5%]) and residents of Ontario (364 [84.6%]). The average age was 33.9 years. Although 314 respondents (73.0%) felt prepared to be a substitute decision-maker, 194 (45.1%) reported never having had meaningful conversations with loved ones to understand their wishes in the event of critical illness. A total of 293 participants (68.1%) identified important barriers to feeling prepared. Most respondents (309 [71.9%]) agreed that high school students should learn about being a substitute decision-maker, citing age appropriateness, potential societal benefit and improved decision-making, while cautioning the need to respect different maturity levels, cultures and experiences.
INTERPRETATION: the lack of conversation between loved ones reveals a gap between perceived and actual preparedness to be a substitute decision-maker for a loved one with a critical illness. The overall acceptability of high school education warrants further exploration.

Origine : PubMed

Advance care planning in frail older adult - a cluster randomized controlled trial

OVERBEEK, Anouk ; KORFAGE, Ida J. ; JABBARIAN, Lea J. ; BILLEKENS, Pascalle ; HAMMES, Bernard J. ; POLINDER, Suzanne ; SEVERIJNEN, Johan ; SWART, Siebe J. ; WITKAMP, Frederika E. ; VAN DER HEIDE, Agnes ; RIETJENS, Judith A. C.
Journal of the American Geriatrics Society, 01/01/2018, vol.66, n°6, p. 1089-1095

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Capacity for preferences - respecting patients with compromised decision-making

WASSERMAN, Jason Adam ; NAVIN, Mark Christopher
The Hastings center report, 01/01/2018, vol.48, n°3, p. 31-39

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Thème : Ethique et déontologie.

PERSONNE CONFIANCE ; PRISE DECISION ; AUTONOMIE ; PREFERENCE ; PATIENT

When a patient lacks decision-making capacity, then according to standard clinical ethics practice in the United States, the health care team should seek guidance from a surrogate decision-maker, either previously selected by the patient or appointed by the courts. If there are no surrogates willing or able to exercise substituted judgment, then the team is to choose interventions that promote a patient's best interests. We argue that, even when there is input from a surrogate, patient preferences should be an additional source of guidance for decisions about patients who lack decision-making capacity. Our proposal builds on other efforts to help patients who lack decision-making capacity provide input into decisions about their care. For example, "supported," "assisted," or "guided" decision-making models reflect a commitment to humanistic patient engagement and create a more supportive process for patients, families, and health care teams. But often, they are supportive processes for guiding a patient toward a decision that the surrogate or team believes to be in the patient's medical best interests. Another approach holds that taking seriously the preferences of such a patient can help surrogates develop a better account of what the patient's treatment choices would have been if the patient had retained decision-making capacity; the surrogate then must try to integrate features of the patient's formerly rational self with the preferences of the patient's currently compromised self. Patients who lack decision-making capacity are well served by these efforts to solicit and use their preferences to promote best interests or to craft would-be autonomous patient images for use by surrogates. However, we go further: the moral reasons for valuing the preferences of patients without decision-making capacity are not reducible to either best-interests or (surrogate) autonomy considerations but can be grounded in the values of liberty and respect for persons. This has important consequences for treatment decisions involving these vulnerable patients.

Origine : PubMed

Older adult and surrogate perspectives on serious, difficult, and important medical decisions

PETRILLO, Laura A. ; MCMAHAN, Ryan D. ; TANG, Victoria ; DOHAN, Daniel ; SUDORE, Rebecca L.
Journal of the American Geriatrics Society, 01/01/2018, vol.66, n°8, p. 1515-1523

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Factors predicting collaborative willingness of surrogates making medical decisions on the Physician Order for Scope of Treatment (POST)

SPALDING, Rachael ; EDELSTEIN, Barry
Aging and mental health, 09/09/2019, p. 1-10

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How to help a patient choose a surrogate decision maker #378

KETTERER, Briana ; ARNOLD, Robert M.
JOURNAL OF PALLIATIVE MEDICINE, 09/2019, vol.22, n°9, p. 1162-1163

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Advance care planning to improve end-of-life decision-making consistency between older people and their surrogates in Taiwan

KE, Li-Shan ; HU, Wen-Yu ; CHEN, Mei-Jung ; CHENG, Hui-Chuan ; LIN, Li-Hwa
JOURNAL OF PALLIATIVE MEDICINE, 04/09/2019, Pagination inconnue

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Feasibility of advance care planning in primary care for homeless adults

KAPLAN-WEISMAN, Laura ; SANSONE, Sara ; WALTER, Eve ; CRUMP, Casey
Journal of aging and health, 15/07/2019, Pagination inconnue

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Association of surrogate decision-making interventions for critically ill adults with patient, family, and resource use outcomes - a systematic review and meta-analysis

BIBAS, Lior ; PERETZ-LAROCHELLE, Maude ; ADHIKARI, Neill K. ; GOLDFARB, Michael J. ; LUK, Adriana ; ENGLESAKIS, Marina ; DETSKY, Michael E. ; LAWLER, Patrick R.
JAMA network open, 03/07/2019, vol.2, n°7, p. 1-12

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