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Advance directives in Austrian intensive care units - an analysis of prevalence and barriers

KOSTENBERGER, Markus ; DIEGELMANN, Svenja ; TERLUTTER, Ralf ; BIDMON, Sonja ; NEUWERSCH, Stefan ; LIKAR, Rudolf
Resuscitation plus, 01/09/2020, vol.3, p. 1-7

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Low rates of advance care planning (ACP) discussions despite readiness to engage in ACP among liver transplant candidates

WANG, Connie W. ; LEBSACK, Adrienne ; SUDORE, Rebecca L. ; LAI, Jennifer C.
Digestive diseases and sciences, 04/06/2020, Pagination inconnue

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Surrogate satisfaction with decision making after intracerebral hemorrhage

SAHGAL, Savina ; YANDE, Aneesha ; THOMPSON, Bradford B. ; CHEN, Emily P. ; FAGERLIN, Angela ; MORGENSTERN, Lewis B. ; ZAHURANEC, Darin B.
Neurocritical care, 15/06/2020, Pagination inconnue

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Thème : Soins.

PRISE DECISION ; PERSONNE CONFIANCE ; RESSENTI ; ETUDE PROSPECTIVE ; SATISFACTION

Background/Objective: Surrogate decision makers for patients with intracerebral hemorrhage (ICH) are frequently asked to make difficult decisions on use of life-sustaining treatments. We explored ICH surrogate satisfaction with decision making and experience of decision regret using validated measures in a prospective multicenter study.
Methods: Cases of non-traumatic ICH were enrolled from three hospitals (September 2015–December 2016), and surrogate decision makers were invited to complete a self-administered survey. The primary outcome was the 10-item decision-making subscale of the Family Satisfaction in the Intensive Care Unit scale (FSICU-DM, range 0–100, higher is greater satisfaction), and the secondary outcome was the decision regret scale (range 0–100, higher is greater regret). Linear regression models were used to assess the association between satisfaction with decision making and pre-specified covariates using manual backward selection.
Results: A total of 73 surrogates were approached for participation (in person or mail), with 48 surrogates returning a completed survey (median surrogate age 60.5 years, 63% female, 77% white). Patients had a median age of 72.5, 54% were female, with a median admission Glasgow coma scale of 10, in-hospital mortality of 31%, and 56% with an in-hospital DNR order. Physicians commonly made treatment recommendation (> 50%) regarding brain surgery or transitions to comfort measures, but rarely made recommendations (< 20%) regarding DNR orders. Surrogate satisfaction with decision making was generally high (median FSICU-DM 85, IQR 57.5–95). Factors associated with higher satisfaction on multivariable analysis included greater use of shared decision making (P < 0.0001), younger patient age (p = 0.02), ICH score of 3 or higher (p = 0.03), and surrogate relationship (spouse vs. other, p = 0.02). Timing of DNR orders was not associated with satisfaction (P > 0.25). Decision regret scores were generally low (median 12.5, IQR 0–31.3).
Conclusions: Considering the severity and abruptness of ICH, it is reassuring that surrogate satisfaction with decision making was generally high and regret was generally low. However, more work is needed to define the appropriate outcome measures and optimal methods of recruitment for studies of surrogate decision makers of ICH patients.

Origine : DOI.org (Crossref

Does the public feel prepared to be substitute decision-makers? Gaps in preparedness and support for a high school curriculum - a national survey

WONG, Michael K Y ; JIANG, Mengzhu ; MEDOR, Maria Cassandre ; LABRE, Katerina Yelle ; FRANK, Jason R ; FISCHER, Lisa M ; CHEUNG, Warren J
Age and ageing, 27/05/2020, Pagination inconnue

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Freins et leviers à la mise en place de la démarche palliative en EHPAD

ELIE, Edwige ; ALLUIN, Raphaël
MEDECINE PALLIATIVE, 06/2020, vol.19, n°3, p. 150-159

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The prisoner dilemma - inconsistent decisions for continuing life-sustaining treatment between a patient with very limited communication and their surrogate

BRUMMETT, Abram
Clinical ethics, 06/06/2020, Pagination inconnue

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All things considered - surrogate decision-making on behalf of patients in the minimally conscious state

JOHNSON, L Syd M ; CERMINARA, Kathy L
Clinical ethics, 27/05/2020, Pagination inconnue

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"Please keep mom one more day" - clashing directives of a dying patient and her surrogate

LATCHA, Sheron ; LINEBERRY, Cammile ; LENDVAI, Nikoletta ; TRAN, Christine A. ; MATSOUKAS, Konstantina ; SCHARF, Amy E. ; VOIGT, Louis P.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 05/2020, vol.59, n°5, p. 1147-1152

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During Covid-19, outpatient advance care planning is imperative - we need all hands on deck

BLOCK, Brian L. ; SMITH, Alexander K. ; SUDORE, Rebecca L.
Journal of the American Geriatrics Society, 02/05/2020, p. 1-3

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Rethinking patient involvement in healthcare priority setting

SANDMAN, Lars ; HOFMANN, Bjorn ; BOGNAR, Greg
Bioethics, 05/2020, vol.34, n°4, p. 403-411

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Protocol for a randomised trial of an interprofessional team-delivered intervention to support surrogate decision-makers in ICUs

LINCOLN, Taylor ; SHIELDS, Anne-Marie ; BUDDADHUMARUK, Praewpannarai ; CHANG, Chung-Chou H ; PIKE, Francis ; CHEN, Hsiangyu ; BROWN, Elke ; KOZAR, Veronica ; PIDRO, Caroline ; KAHN, Jeremy M ; DARBY, Joseph M ; MARTIN, Susan ; ANGUS, Derek C ; ARNOLD, Robert M ; WHITE, Douglas B
BMJ Open, 03/2020, vol.10, n°3, p. 1-12

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A mixed methods investigation of end-of-life surrogate decisions among older adults

BATTEUX, Eleonore ; FERGUSON, Eamonn ; TUNNEY, Richard J.
BMC palliative care, 2020, vol.19, n°1, p. 1-12

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Effects of brief nurse advance care planning intervention with visual materials on goal-of-care preference of Japanese elderly patients with chronic disease - a pilot randomized-controlled trial

KIZAWA, Yoshiyuki ; OKADA, Hiroko ; KAWAHARA, Takuya ; MORITA, Tatsuya
JOURNAL OF PALLIATIVE MEDICINE, 15/04/2020, Pagination inconnue

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Impact of end-of-life planning on surrogate decision-maker anxiety in the US

ALOIAU, April ; BENTON, Melissa J. ; MOUCHAWAR, Alan ; SEGAL, Daniel L.
International Journal of Palliative Nursing, 02/2020, vol.26, n°2, p. 75-82

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Community knowledge of law on end-of-life decision-making - an Australian telephone survey

TILSE, Cheryl ; WILSON, Jill ; WHITE, Ben ; WILLMOTT, Lindy ; LAWSON, Deborah ; DUNN, Jeffrey ; AITKEN, Joanne F. ; PEARCE, Angela ; FERGUSON, Michele
Journal of law and medicine, 12/2019, vol.27, n°2, p. 399-414

Dying in the neurointensive care unit after withdrawal of life-sustaining therapy - associations of advance directives and health-care proxies with timing and treatment intensity

STACHULSKI, Frank ; SIEGERINK, Bob ; BOSEL, Julian
Journal of intensive care medicine, 24/02/2020, Pagination inconnue

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Promoting patients' rights at the end of life in a geriatric setting in France - the healthcare professionals’ level of knowledge about surrogate decision-makers and advance directives

RWABIHAMA, Jean Paul ; BELMIN, Joël ; RAKOTOARISOA, De Rozier ; HAGEGE, Meoïn ; AUDUREAU, Etienne ; BENZENGLI, Hind ; AMBIME, Gabin ; RABUS, Marie-Thérèse ; BASTUJI-GARIN, Sylvie ; PAILLAUD, Elena ; OUBAYA, Nadia
Patient education and counseling, 31/01/2020, Pagination inconnue

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Advance care planning among older adults with advanced non–dialysis-dependent CKD and their care partners - perceptions versus reality?

OSKOUI, Tira ; PANDYA, Renuka ; WEINER, Daniel E. ; WONG, John B. ; KOCH-WESER, Susan ; LADIN, Keren
Kidney medicine, 31/01/2020, p. 1-9

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Surrogate decision making of chemotherapy consent - do we really provide informed consent of chemotherapy for patients?

KWON, Jung Hye ; BAEK, Sun Kyung ; KIM, Bong-Seog ; KOH, Su-Jin ; AHN, Hee Kyung ; LIM, Joo Han ; LIM, Chiyeon ; KIM, Do Yeun
The Korean journal of internal medicine, 05/2019, vol.34, n°3, p. 626-633

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Enhancing & Mobilizing the POtential for Wellness & Emotional Resilience (EMPOWER) among surrogate decision-makers of ICU patients - study protocol for a randomized controlled trial

PRIGERSON, Holly G. ; VIOLA, Martin ; BREWIN, Chris R. ; COX, Christopher ; OUYANG, Daniel ; ROGERS, Madeline ; PAN, Cynthia X. ; RABIN, Shayna ; XU, Jiehui ; VAUGHAN, Susan ; GORDON-ELLIOT, Janna S. ; BERLIN, David ; LIEF, Lindsay ; LICHTENTHAL, Wendy G.
Trials, 09/07/2019, vol.20, n°1, p. 1-13

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