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Le grand jour

ROMBOUTS, Catherine ; RICHELLE, Sophie
Loco , 09/2020 , 112 p.

Creating evidence - findings from a grounded theory of memory-making in neonatal bereavement care in Australia

THORNTON, Rebecca ; NICHOLSON, Patricia ; HARMS, Louise
Journal of pediatric nursing, 25/04/2020, vol.53, p. 29-35

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When a child is sick - the role of social tourism in palliative and end-of-life care

HUNTER-JONES, Philippa ; SUDBURY-RILEY, Lynn ; AL-ABDIN, Ahmed ; MENZIES, Laura ; NEARY, Katie
Annals of tourism research, Elsevier, 07/2020, vol.83, Pagination inconnue

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Hospice photography's effects on patients, families, and social work practice

SHUBER, Charlotte ; KOK, Adrian
Journal of social work in end-of-life and palliative care, 20/12/2019, p. 1-23

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The experience of pediatric palliative caregiving - a qualitative analysis from the photographs of meaning program

LEVY, Kathryn ; GRANT, Pei C. ; TENZEK, Kelly E. ; DEPNER, Rachel M. ; PAILLER, Megan E. ; BEAUPIN, Lynda K.
The American journal of hospice and palliative care, 05/2020, vol.37, n°5, p. 364-370

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Laisser sa trace - parler de la mort pour mieux goûter à la vie

LANDRY, Geneviève ; BRIERE, Emmanuelle
Editions Druide , 2019 , 272 p.

Palliative care nurses' strategies when working in private homes - a photo elicitation study

ALVARIZA, Anette ; MJORNBERG, Maria ; GOLIATH, Ida
Journal of clinical nursing, 19/09/2019, Pagination inconnue

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Thème : Soins.

DEMARCHE PALLIATIVE ; INFIRMIERE ; FIN VIE ; STRATEGIE COMPORTEMENTALE ; PHOTOGRAPHIE

AIMS AND OBJECTIVES: To explore palliative care nurses work experiences caring for patients at the end of life in private homes.
BACKGROUND: The home continues to be a desired place for care and dying, however professional competence is needed and specialist palliative care nurses play a crucial role, often highly valued by patients and their family members. The private home as a physical work environment for nurses is explored, with both positive and negative aspects being described. To ensure future high-quality end-of-life care, there is a need to describe how palliative care nurses work in private homes.
DESIGN: Interpretative descriptive.
METHODS: Participant generated photographs were used in conjunction with follow-up interviews with ten palliative home care nurses. Interpretive description was used for analysis. This study follows the COREQ checklist.
RESULTS: The analysis process resulted in four constructed themes, presented here as strategies used by palliative care nurses: Adjusting interactions and actions depending on the environment when entering each unique private home; Supporting patients and family members in finding a balance between self-care, independence and safe care; Guiding patients and family members towards and through environmental changes supporting end-of-life care at home; and Using transitions between homes to reflect, recuperate and prepare.
CONCLUSION: Working as a palliative care nurse in private homes clearly requires a variety of skills and competences, here operationalized in different strategies used to promote high quality care.
RELEVANCE TO CLINICAL PRACTICE: Palliative care nurses' considerations, insights and competence when performing end-of-life care in the diverse environments of private homes can contribute to the development of clinical practice. Knowledge about strategies can be used in nursing practice during everyday work, in nursing education and in the organisation of care, and can inform policy to ensure future high-quality palliative home care.

Origine : PubMed

A photovoice study on the bereavement experience of mothers after the death of a child

KIM, Min Ah ; YI, Jaehee ; SANG, Jina ; JUNG, Daehee
DEATH STUDIES, 16/08/2019, p. 1-15

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The photographs of meaning program for pediatric palliative caregivers - feasibility of a novel meaning-making intervention

LEVY, Kathryn ; GRANT, Pei C. ; DEPNER, Rachel M. ; TENZEK, Kelly E. ; PAILLER, Megan E. ; BEAUPIN, Lynda K. ; BREIER, Jennifer M. ; BYRWA, David J.
The American journal of hospice and palliative care, 07/2019, vol.36, n°7, p. 557-563

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Professional bereavement photography in the setting of perinatal loss - a qualitative analysis

RAMIREZ, Faustine D. ; BOGETZ, Jori F. ; KUFELD, Megan ; YEE, Lynn M.
Global pediatric health, 2019, vol.6, 12 p.

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Men on losing a male to suicide - a gender analysis

OLIFFE, John L. ; BROOM, Alex ; KELLY, Mary T. ; BOTTORFF, Joan L. ; CREIGHTON, Genevieve M. ; FERLATTE, Olivier
Qualitative health research, 2018, vol.28, n°9, p. 1383-1394

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No struggle when i'm looking

GELO, Florence
The journal of pastoral care and counseling:, 06/2019, vol.73, n°2, p. 72-73

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A picture paints a thousand words …

CHAN, Fiona
JOURNAL OF PALLIATIVE MEDICINE, 06/2019, vol.22, n°6, p. 728-729

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Scoping review of memory making in bereavement care for parents after the death of a newborn

THORNTON, Rebecca ; NICHOLSON, Patricia ; HARMS, Louise
Journal of obstetric, gynecologic and neonatal nursing, 01/04/2019, Pagination inconnue

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Que faites-vous de vos morts ?

CALLE, Sophie
Actes Sud , 2019 , 265 p.

Memory making in end-of-life care in the adult intensive care unit - a scoping review of the research literature

RIEGEL, Melissa ; RANDALL, Sue ; BUCKLEY, Thomas
Australian critical care, 17/01/2019, Pagination inconnue

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Dying in the intensive care unit - a candle vigil using illustrations

JOHNSON, Elizabeth K. N. ; WIJDICKS, Eelco F. M.
Mayo clinic proceedings. Innovations, quality and outcomes, 12/2018, vol.2, n°4, p. 378-381

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Macabre - traité illustré de la mort

EBENSTEIN, Joanna ; HARRIS, Richard ; SELF, Will
Cernunnos , 11/2018 , 368 p.

Family members´ experiences of the end-of-life care environments in acute care settings - a photo-elicitation study

HAJRADINOVIC, Yvonne ; TISHELMAN, Carol ; LINDQVIST, Olav ; GOLIATH, Ida
International journal of qualitative studies on health and well-being, 12/2018, vol.13, n°1, p. 1-15

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Household concepts of wellbeing and the contribution of palliative care in the context of advanced cancer - a photovoice study from Blantyre, Malawi

BATES, M. Jane ; MPHWATIWA, Treza ; ARDREY, Jane ; DESMOND, Nicola ; NIESSEN, Louis W. ; SQUIRE, S. Bertel
Plos one, 2018, vol.13, n°8, p. 1-18

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