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Adults’ perspectives on cultural, social and professional support on end-of-life preferences

HUANG, Ya-Ling ; YATES, Patsy ; THORBERG, Fred Arne ; WU, Chiung-Jung (Jo)
Collegian, 05/10/2019, Pagination inconnue

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Disparity in pre-emptive end-of-life conversation experience caused by subjective economic status among general Japanese elderly people - a cross-sectional study with stratified random sampling

HIDAKA, Tomoo ; ENDO, Shota ; KASUGA, Hideaki ; MASUISHI, Yusuke ; KAKAMU, Takeyasu ; KUMAGAI, Tomohiro ; SAITO, Keiko ; ABE, Kouichi ; FUKUSHIMA, Tetsuhito
BMJ Open, 07/10/2019, vol.9, n°10, p. 1-7

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Against autonom - how proposed solutions to the problems of living wills forgot its underlying principle

MAST, Laurel
Bioethics, 02/10/2019, Pagination inconnue

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Visiting nurses' perspectives on practices to achieve end-of-life cancer patients' wishes for death at home - a qualitative study

TERUYA, Noriko ; SUNAGAWA, Yoko ; SUNAGAWA, Haru ; TOYOSATO, Takehiko
Asia-Pacific journal of oncology nursing, 12/2019, vol.6, n°4, p. 389-396

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A more directive living will for older adult patients with end-stage medical conditions?

DEPRIEST, Jack ; JAGANNATH, Priyanka ; IANNETTI, Michael ; KEMPER, Suzanne
Southern medical journal, 10/2019, vol.112, n°10, p. 531-534

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Medical and end-of-life decision making in adolescents' pre-heart transplant - a descriptive pilot study

COUSINO, Melissa K. ; MILLER, Victoria A. ; SMITH, Cynthia ; UZARK, Karen ; LOWERY, Ray ; ROTTACH, Nichole ; BLUME, Elizabeth D. ; SCHUMACHER, Kurt R.
PALLIATIVE MEDICINE, 24/10/2019, Pagination inconnue

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Death at home - predictive factors in a medical home care unit

RASCH-WESTIN, Martina ; HELDE-FRANKLING, Maria ; BJORKHEM-BERGMAN, Linda
BMJ supportive and palliative care, 19/09/2019, Pagination inconnue

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Preferences for end-of-life care and decision-making among older and seriously ill inpatients - a cross-sectional study

WALLER, Amy ; SANSON-FISHER, Rob ; KICHU NAIR, Balakrishnan R. ; EVANS, Tiffany
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 17/09/2019, Pagination inconnue

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End-of-life travel - a bucket list desire for patients with life-limiting illnesses

AISPORNA, Cheryl ; ERICKSON-HURT, Carma
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 10/2019, vol.21, n°5, p. 397-403

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Capacity for preferences - respecting patients with compromised decision-making

WASSERMAN, Jason Adam ; NAVIN, Mark Christopher
The Hastings center report, 01/01/2018, vol.48, n°3, p. 31-39

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Thème : Ethique et déontologie.

PERSONNE CONFIANCE ; PRISE DECISION ; AUTONOMIE ; PREFERENCE ; PATIENT

When a patient lacks decision-making capacity, then according to standard clinical ethics practice in the United States, the health care team should seek guidance from a surrogate decision-maker, either previously selected by the patient or appointed by the courts. If there are no surrogates willing or able to exercise substituted judgment, then the team is to choose interventions that promote a patient's best interests. We argue that, even when there is input from a surrogate, patient preferences should be an additional source of guidance for decisions about patients who lack decision-making capacity. Our proposal builds on other efforts to help patients who lack decision-making capacity provide input into decisions about their care. For example, "supported," "assisted," or "guided" decision-making models reflect a commitment to humanistic patient engagement and create a more supportive process for patients, families, and health care teams. But often, they are supportive processes for guiding a patient toward a decision that the surrogate or team believes to be in the patient's medical best interests. Another approach holds that taking seriously the preferences of such a patient can help surrogates develop a better account of what the patient's treatment choices would have been if the patient had retained decision-making capacity; the surrogate then must try to integrate features of the patient's formerly rational self with the preferences of the patient's currently compromised self. Patients who lack decision-making capacity are well served by these efforts to solicit and use their preferences to promote best interests or to craft would-be autonomous patient images for use by surrogates. However, we go further: the moral reasons for valuing the preferences of patients without decision-making capacity are not reducible to either best-interests or (surrogate) autonomy considerations but can be grounded in the values of liberty and respect for persons. This has important consequences for treatment decisions involving these vulnerable patients.

Origine : PubMed

"My family wants something different" - discordance in perceived personal and family treatment preference and its association with Do-not-resuscitate order placement

GEORGE, Login S. ; BREITBART, William S. ; PRIGERSON, Holly G.
Journal of oncology practice, 11/09/2019, Pagination inconnue

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Serious illness treatment preferences for older adults with advanced CKD

BADDOUR, Nicolas Awad ; SIEW, Edward D. ; ROBINSON-COHEN, Cassianne ; SALAT, Huzaifah ; MASON, Olivia J. ; STEWART, Thomas G. ; KARLEKAR, Mohana ; EL-SOURADY, Maie H. ; LIPWORTH, Loren ; ABDEL-KADER, Khaled
Journal of the American Society of Nephrology, 11/09/2019, Pagination inconnue

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Palliative care in the neuro-ICU - perceptions, practice patterns, and preferences of neurointensivists

BAR, Barak ; CREUTZFELDT, Claire J. ; RUBIN, Michael A.
Neurocritical care, 29/08/2019, p. 1-4

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Implementing the serious illness care program in primary care

MASSMANN, Jill A. ; REVIER, Sara S. ; PONTO, Julie
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 08/2019, vol.21, n°4, p. 291-299

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Parents’ wishes for what they had or had not done and their coping after their infant’s or child’s neonatal intensive care unit/pediatric intensive care unit/emergency department death

CAICEDO, Carmen ; BROOTEN, Dorothy ; YOUNGBLUT, JoAnne M. ; DANKANICH, Julia
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 08/2019, vol.21, n°4, p. 333-343

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Associations of advance directive knowledge, attitudes, and barriers/benefits with preferences for advance treatment directives among patients with heart failure and their caregivers

KIM, JinShil ; SHIN, Mi-Seung ; PARK, YAE MIN ; LEE, HYANG-NANG ; HEO, Seongkum ; OUNPRASEUTH, SONGTHIP
Journal of cardiac failure, 22/07/2019, Pagination inconnue

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An observational study on quality of life and preferences to sustain life in locked-in state

KUZMA-KOZAKIEWICZ, Magdalena ; ANDERSEN, Peter M. ; CIECWIERSKA, Katarzyna ; VAZQUEZ, Cynthia ; HELCZYK, Olga ; LOOSE, Markus ; UTTNER, Ingo ; LUDOLPH, Albert C. ; LULE, Dorothée
Neurology, 09/2019, vol.93, n°10, p. 938-945

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Living wills - GPs should do more to support patients, says charity

IACOBUCCI, Gareth
BMJ, 07/08/2019, vol.366, p. l5065

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Older adults' preferred and perceived roles in decision-making about palliative chemotherapy, decision priorities and information preferences

MOTH, Erin B. ; KIELY, Belinda E. ; MARTIN, Andrew ; NAGANATHAN, Vasi ; DELLA-FIORENTINA, Stephen ; HONEYBALL, Florian ; ZIELINSKI, Rob ; STEER, Christopher ; MANDALIYA, Hiren ; RAGUNATHAN, Abiramy ; BLINMAN, Prunella
Journal of geriatric oncology, 19/08/2019, Pagination inconnue

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Engaging multidisciplinary stakeholders to drive shared decision-making in oncology

ROCQUE, Gabrielle ; MILLER-SONNET, Ellen ; BALCH, Alan ; STRICKER, Carrie ; SEIDMAN, Josh ; STILES, Susan ; RUGGERIO, John ; PAYNTER, Nancy ; LEWIS, Mark ; KAMAL, Arif
JOURNAL OF PALLIATIVE CARE, 01/2019, vol.34, n°1, p. 29-31

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