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Advance directive preferences of patients with chronic and terminal illness towards end of life decisions - a sample from Saudi Arabia

BAHAROON, Salim ; ALZAHRANI, Mohsen ; ALSAFI, Eiman ; LAYQAH, Laila ; AL-JAHDALI, Hamdan ; AHMED, Anwar
Eastern Mediterranean health journal, 25/11/2019, vol.25, n°11, p. 791-797

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Impact of informational and relational continuity for people with palliative care needs - a mixed methods rapid review

HUDSON, Briony F. ; BEST, Sabine ; STONE, Patrick ; NOBLE, Thomas Bill
BMJ Open, 01/01/2019, vol.9, n°5, p. 1-14

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Effect of family centered (FACE®) advance care planning on longitudinal congruence in end-of-life treatment preferences - a randomized clinical trial

LYON, Maureen E. ; SQUIRES, Leah ; SCOTT, Rachel K. ; BENATOR, Debra ; BRIGGS, Linda ; GREENBERG, Isabella ; D'ANGELO, Lawrence J. ; CHENG, Yao Iris ; WANG, Jichuan
AIDS and behavior, 12/05/2020, Pagination inconnue

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Decisional control preferences in the Hispanic population in the Bronx

CARDENAS, Jhosselini ; INFANTE, Pamela ; INFANTE, Abel ; CHUANG, Elizabeth ; SELWYN, Peter
Journal of cancer education, 01/01/2019, vol.34, n°3, p. 472-477

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Preferred and actual place of death in haematological malignancies - a report from the UK haematological malignancy research network

SHERIDAN, Rebecca ; ROMAN, Eve ; SMITH, Alex G. ; TURNER, Andrew ; GARRY, Anne C. ; PATMORE, Russell ; HOWARD, Martin R. ; HOWELL, Debra A.
BMJ supportive and palliative care, 11/05/2020, p. 1-10

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Understanding end of life preferences - predicting life prolonging treatment preferences among community dwelling older Americans

BRENNER, Allison B. ; SKOLARUS, Lesli E. ; PERUMALSWAMI, Chithra R. ; BURKE, James F.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 03/05/2020, p. 1-10

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Advance directives for dementia can elicit preferences to improve patient care

MEREL, Susan E. ; GASTER, Barak
Journal of the American Geriatrics Society, 06/05/2020, Pagination inconnue

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Managing death - navigating divergent logics in end-of-life care

BAILEY, Simon ; HODGSON, Damian ; LENNIE, Sarah-Jane ; BRESNEN, Mike ; HYDE, Paula
Sociology of health and illness, 06/05/2020, p. 1-19

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Passing on wisdom - exploring the end-of-life wishes of Aboriginal people from the midwest of Western Australia

THOMPSON, Sandra ; LYFORD, Marilyn ; PAPERTALK, Lennelle ; HOLLOWAY, Michele
Rural and remote health, 01/01/2019, vol.19, n°4, p. 1-9

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Thème : Soins. Cote : eD02.03

AUSTRALIE ; FIN VIE ; ETHNICITE ; PREFERENCE

INTRODUCTION: Indigenous patients with life-limiting conditions have complex needs, experience reduced access to and uptake of treatment, and have lower utilisation of palliative care services than the general population. Lack of understanding of the role of palliative care and poor availability of culturally safe specialist palliative care services impact on Indigenous people's end-of-life decision-making.
METHODS: To understand Aboriginal people's perspectives and experiences at the end of life, an exploratory study using facilitated group discussions in community settings in a region of Western Australia was undertaken. Local Aboriginal people were engaged to talk frankly about their wishes and concerns around end of life. The community consultations included two meetings at the local Aboriginal corporation, an evening meeting for invited community members, a meeting at the local Aboriginal community controlled health service and two further meetings of community members at local gathering places. These were supplemented by the analysis of previous in-depth video-recorded interviews that were undertaken with Aboriginal people with cancer reporting on their concerns and wishes.
RESULTS: The community consultations raised considerable discussion about wills, where to die, burial versus cremation, and the cost of funerals. Possibilities emerging from participants' reflections on the issue were public celebrations to honour someone's life, the potential use of sorting cards to help discussions about end-of-life personal wishes, and interest in making and decorating coffins. Aboriginal people with cancer raised similar issues, and focused on avoiding family disharmony by ensuring their family were aware of their end-of-life wishes.
CONCLUSION: Within a safe space, Aboriginal people were happy to talk about end-of-life wishes, although certain aspects of death remain contentious. Sorting cards, ceremonies, education and care roles involving Aboriginal people offer potential means for effectively engaging Aboriginal people in preparing for death and dealing with grief.

Origine : PubMed

Realizing better doctor-patient dialogue about choices in palliative care and early phase clinical trial participation - towards an online value clarification tool (OnVaCT)

VAN LENT, Liza G. G. ; STOEL, Nicole K. ; VAN WEERT, Julia C. M. ; VAN GURP, Jelle ; DE JONGE, Maja J. A. ; LOLKEMA, Martijn P. ; GORT, Eelke H. ; PULLEMAN, Saskia M. ; OOMEN-DE HOOP, Esther ; HASSELAAR, Jeroen ; VAN DER RIJT, Carin C. D.
BMC palliative care, 29/11/2019, vol.18, n°1, p. 1-10

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Patients' preferences and factors influencing initial advance care planning discussions' timing - a cross-cultural mixed-methods study

MIYASHITA, Jun ; KOHNO, Ayako ; CHENG, Shao-Yi ; HSU, Su-Hsuan ; YAMAMOTO, Yosuke ; SHIMIZU, Sayaka ; HUANG, Wei-Sheng ; KASHIWAZAKI, Motohiro ; KAMIHIRO, Noriki ; OKAWA, Kaoru ; FUJISAKI, Masami ; TSAI, Jaw-Shiun ; FUKUHARA, Shunichi
PALLIATIVE MEDICINE, 01/05/2020, Pagination inconnue

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Associations of end-of-life preferences and trust in institutions with public support for assisted suicide evidence from nationally representative survey data of older adults in Switzerland

VILPERT, Sarah ; BORRAT-BESSON, Carmen ; BORASIO, Gian Domenico ; MAURER, Jurgen
Plos one, 04/2020, vol.15, n°4, p. 1-18

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Crisis hits end-of-life care

WILSON, Clare
New scientist, 25/04/2020, vol.246, n°3279, p. 10

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Preferred place of death in paediatric, teenage and young adult haemato-oncology patients - a retrospective review

STILWELL, Philippa ; BHATT, Ankit ; MEHTA, Keval ; CARTER, Ben ; BISSET, Maggie ; SOANES, Louise ; SHANKAR, Ananth
BMJ supportive and palliative care, 24/03/2020, Pagination inconnue

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End-of-life care preferences of the general public and recommendations of healthcare providers - a nationwide survey in Japan

HAMANO, Jun ; HANARI, Kyoko ; TAMIYA, Nanako
BMC palliative care, 2020, vol.19, n°1, p. 1-11

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Preferences for end-of-life care - a study protocol for a cross-sectional survey of Chinese frail elderly home residents in Hong Kong

YAN, Bo ; XU, Xinyi ; CHAU, Patsy PH ; TAKEMURA, Naomi ; CHEUNG, Derek YT ; CHAN, Felix HW ; LIN, Chia-Chin
BMJ Open, 03/2020, vol.10, n°3, p. 1-6

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Place-of-death preferences among patients with cancer and family caregivers in inpatient and outpatient palliative care

VIDAL, Marieberta ; RODRIGUEZ-NUNEZ, Alfredo ; HUI, David ; ALLO, Julio ; WILLIAMS, Janet L ; PARK, Minjeong ; LIU, Diane ; BRUERA, Eduardo
BMJ supportive and palliative care, 06/04/2020, Pagination inconnue

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Seriously ill patients’ willingness to trade survival time to avoid high treatment intensity at the end of life

RUBIN, Emily B. ; BUEHLER, Anna ; HALPERN, Scott D.
JAMA internal medicine, 06/04/2020, Pagination inconnue

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Identifying end-of-life preferences among Chinese patients with cancer using the heart to heart card game

LI, Tong-Du ; PEI, Xianbo ; CHEN, Xiaoli ; ZHANG, Shuqin
American journal of hospice and palliative medicine, 09/04/2020, Pagination inconnue

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Effects of brief nurse advance care planning intervention with visual materials on goal-of-care preference of Japanese elderly patients with chronic disease - a pilot randomized-controlled trial

KIZAWA, Yoshiyuki ; OKADA, Hiroko ; KAWAHARA, Takuya ; MORITA, Tatsuya
JOURNAL OF PALLIATIVE MEDICINE, 15/04/2020, Pagination inconnue

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