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Psychometric properties of the Korean version of the positive aspects of caregiving scale for family caregivers of people with amyotrophic lateral sclerosis

CHU, Hyeon Sik ; TAK, Young Ran
Palliative and supportive care, 22/06/2020, p. 1-8

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Thème : Soins.

REPUBLIQUE DE COREE ; AIDANT ; SCLEROSE LATERALE AMYOTROPHIQUE ; PROPRIETE PSYCHOMETRIQUE ; ECHELLE MESURE

OBJECTIVE: Many caregivers report finding positive meanings in their caregiving roles and activities. The positive aspects of caregiving (PAC) scale was designed to measure positive appraisals of caregiving. This study assessed the reliability and validity of the Korean version of the PAC for family caregivers of people with amyotrophic lateral sclerosis (ALS).
METHOD: The instrument's content and semantic equivalence were established using translation and back translation of the PAC. A convenience sample of 127 family caregivers of patients with ALS in Korea was recruited. Content, construct, and convergent validity of the Korean PAC were evaluated. Cronbach's a was used to assess reliability. This study used secondary data; the primary study received approval from the Institutional Review Board of H Hospital, from where data were collected. The consent forms did not mention the future use of data. Therefore, we have applied for approval regarding this study's protocol and exemption from informed consent.
RESULTS: The Cronbach's a was 0.92, and internal consistency was acceptable. Exploratory factor analysis supported the construct validity with a two-factor solution explaining 74.73% of the total variance. Regarding convergent validity, the Korean PAC score negatively correlated with caregiver burden and depression and positively with self-rated health status. We were unable to evaluate the suitability of the suggested structural dimensionality through confirmatory factor analysis. Furthermore, as we used secondary data, we could not assess retest reliability for the evaluation of the scale's stability.
SIGNIFICANCE OF RESULTS: The Korean PAC was found to be an applicable instrument with satisfactory reliability and validity and suitable for further use as a measure for positive appraisals of caregiving for family caregivers of people with ALS. It may be effective for measuring caregivers' psychological resources.

Origine : PubMed

Assessing palliative care education in undergraduate medical students - translation and validation of the Self-Efficacy in Palliative Care and Thanatophobia Scales for Brazilian Portuguese

GRYSCHEK, Guilherme ; CECILIO-FERNANDES, Dario ; MASON, Stephen ; DE CARVALHO-FILHO, Marco Antonio
BMJ Open, 06/2020, vol.10, n°6, 7 p.

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Development of a short form of the questionnaire quality from the patient's perspective for palliative care (QPP-PC)

SANDSDALEN, Tuva ; GRONDAHL, Vigdis Abrahamsen ; WILDE-LARSSON, Bodil
Journal of multidisciplinary healthcare, 2020, vol.13, p. 495-506

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Spanish version of the attitude towards euthanasia scale

FERNANDEZ-MARTINEZ, Elia ; FERNANDEZ-MUNOZ, Juan José ; ROMERO-BLANCO, Cristina ; PARRA-FERNANDEZ, María Laura ; ONIEVA-ZAFRA, María Dolores
International journal of environmental research and public health, 29/05/2020, vol.17, n°11, p. 1-8

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Sequential use of the demoralization scale in palliative care - feasibility, strain, and personal benefits of participation for patients at the end of life

MAI, Sandra Stephanie ; VOGT, Annika Renate ; SCHMIDTMANN, Irene ; MAIER, Bernd Oliver ; WAGNER, Bernd ; DVIR, Martina ; WEBER, Martin
Supportive care in cancer, 16/06/2020, Pagination inconnue

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Psychometric properties of the death anxiety scale-extended among patients with end-stage renal disease

SHARIF NIA, Hamid ; PAHLEVAN SHARIF, Saeed ; KOOCHER, Gerald P. ; YAGHOOBZADEH, Ameneh ; HAGHDOOST, Ali Akbar ; MAR WIN, Ma Thin ; SOLEIMANI, Mohammad Ali
OMEGA JOURNAL OF DEATH AND DYING, 02/2020, vol.80, n°3, p. 380-396

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OCCHIOGROSSO, Jessica ; HEMMINGER, Lauryn ; BURKE, Joy ; IBEGBU, Chinazom ; SERVENTI, Jennifer ; MOHILE, Nimish
JOURNAL OF PALLIATIVE MEDICINE, 02/2020, vol.23, n°2, p. 264-267

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Validation of the English and translated Chinese version of the Comprehensive Needs Assessment Tool for cancer caregivers (CNAT-C)

YANG, Grace Meijuan ; PANG, Grace Su-Yin ; LEE Geok Ling ; NEO, Patricia Soek Hui ; WONG, Yin Yee ; QU, Debra Limin ; CHEUNG, Yin Bun
PROGRESS IN PALLIATIVE CARE, 2019, vol.27, n°3, p. 103-108

Spanish adaptation of the Frommelt Attitude Toward Care Of the Dying Scale (FATCOD-S) in nursing undergraduates

EDO-GUAL, Montserrat ; TOMAS-SABADO, Joaquin ; GOMEZ-BENITO, Juana ; MONTFORTE-ROYO, Cristina ; ARADILLA-HERRERO, Amor
OMEGA JOURNAL OF DEATH AND DYING, 2018, vol.78, n°2, p. 120-142

Psychometrics of the PTSD and depression screener for bereaved youth

BROWN, Elissa J. ; GOODMAN, Robin F. ; RITHOLTZ, Shira F. ; SWIECICKI, Carole C.
DEATH STUDIES, 2019, vol.43, n°1, p. 20-31

Development and validation of the palliative care attitudes scale (PCAS-9) - a measure of patient attitudes toward palliative care

PERRY, Laura M. ; HOERGER, Michael ; MALHOTRA, Sonia ; GERHART, James I. ; MOHILE, Supriya ; DUBERSTEIN, Paul R.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 02/2020, vol.59, n°2, p. 293-301

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Selecting the best instrument to measure family perceptions of end-of-life communication in intensive care units

CHEN, Chiahui ; MEIER, Scott T.
The American journal of hospice and palliative care, 02/2020, vol.37, n°2, p. 154-160

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Suffering measurement instruments in palliative care - protocol for a systematic psychometric review

GUTIERREZ SANCHEZ, Daniel ; GOMEZ GARCIA, Rafael ; LOPEZ-MEDINA, Isabel María ; CUESTA-VARGAS, Antonio I.
BMJ Open, 03/04/2019, vol.9, n°4, 4 p.

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Feasibility study of physician orders for life-sustaining treatment for patients with terminal cancer

AN, Ho Jung ; JEON, Hyun Jeong ; CHUN, Sang Hoon ; JUNG, Hyun Ae ; AHN, Hee Kyung ; LEE, Kyung Hee ; KIM, Min-Ho ; KIM, Ju Hee ; CHEON, Jaekyung ; KIM, JinShil ; KOH, Su-Jin
Cancer research and treatment, 18/04/2019, 21 p.

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Observational pain assessment instruments for use with nonverbal patients at the end-of-life - a systematic review

TAPP, Diane ; CHENACHER, Sara ; GERARD, Ngangue Patrice Alain ; BERUBE-MERCIER, Philippe ; GELINAS, Celine ; DOUVILLE, Frédéric ; DESBIENS, Jean-François
JOURNAL OF PALLIATIVE CARE, 10/2019, vol.34, n°4, p. 255-266

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Are repeated self-reports of psychological variables feasible for patients near the end of life at a palliative care unit?

MAI, Sandra Stephanie ; GERLACH, Christina ; SCHMIDTMANN, Irene ; VOGT, Annika Renate ; ZELLER, Viola ; RENNER, Karl-Heinz ; WEBER, Martin
JOURNAL OF PALLIATIVE MEDICINE, 07/2018, vol.21, n°7, p. 1005-1010

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Validation of the decisional conflict scale for evaluating advance care decision conflict in community-dwelling older adults

KIM, JinShil ; KIM, Shinmi ; HONG, Sun Woo ; KANG, Se-Won ; AN, Minjeong
Asian nursing research, 12/2017, vol.11, n°4, p. 297-303

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Reliability and utility of the surprise question in CKD stages 4 to 5

JAVIER, Andrei D. ; FIGUEROA, Rocio ; SIEW, Edward D. ; SALAT, Huzaifah ; MORSE, Jennifer ; STEWART, Thomas G. ; MALHOTRA, Rakesh ; JHAMB, Manisha ; SCHELL, Jane O. ; CARDONA, Cesar Y. ; MAXWELL, Cathy A. ; IKIZLER, T. Alp ; ABDEL-KADER, Khaled
American Journal of Kidney Diseases, 07/2017, vol.70, n°1, p. 93-101

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Early palliative care for patients with advanced cancer - a cluster-randomised controlled trial

ZIMMERMANN, Camilla ; SWAMI, Nadia ; KRZYZANOWSKA, Monika ; HANNON, Breffni ; LEIGHL, Natasha ; OZA, Amit ; MOORE, Malcolm ; RYDALL, Anne ; RODIN, Gary ; TANNOCK, Ian ; DONNER, Allan ; LO, Christopher
The Lancet, 05/2014, vol.383, n°9930, p. 1721-1730

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Relationship between three palliative care outcome scales

HIGGINSON, Irene J. ; DONALDSON, Nora
Health and quality of life outcomes, BioMed Central, 11/2004, vol.2, 15 p.

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