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Consensus document and recommendations on palliative care in heart failure of the heart failure and geriatric cardiology working groups of the Spanish Society of Cardiology

GARCIA PINILLA, José Manuel ; DÍEZ-VILLANUEVA, Pablo ; BOVER FREIRE, Ramón ; FORMIGA, Francesc ; COBO MARCOS, Marta ; BONANAD, Clara ; CRESPO LEIRO, Maria G. ; RUIZ GARCIA, Juan ; DIAZ MOLINA, Beatriz ; ENJUANES GRAU, Cristina ; GARCIA, Lluisa ; REXACH, Lourdes ; ESTEBAN, Alberto ; MARTINEZ-SELLES, Manuel
Revista Espanola de cardiologia, 21/11/2019, Pagination inconnue

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Resource utilization in hospitalized patients with cancer from hospice decision to discharge and provider-type differences

SHAH, Ruchi J. ; KORENSTEIN, Deborah ; FLYNN, Jessica R. ; KOO, Douglas J.
The American journal of hospice and palliative care, 21/11/2019, Pagination inconnue

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Parents' perspectives on hospital care for children and adolescents with life-limiting conditions - a grounded theory analysis of narrative interviews

ENGLER, Jennifer ; GRUBER, Dania ; ENGLER, Fabian ; HACH, Michaela ; SEIPP, Hannah ; KUSS, Katrin ; GERLACH, Ferdinand M. ; ULRICH, Lisa-R. ; ERLER, Antje
JOURNAL OF PALLIATIVE MEDICINE, 15/11/2019, Pagination inconnue

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Quality indicators of end-of-life care among privately insured people with cancer in Brazil

SOARES, Luiz Guilherme L. ; GOMES, Renato V. ; PALMA, Alberto ; JAPIASSU, André M.
The American journal of hospice and palliative care, 14/11/2019, Pagination inconnue

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The quality of dying and death for patients in intensive care units - a single center pilot study

CHOI, Yanghwan ; PARK, Myoungrin ; KANG, Da Hyun ; LEE, Jooseon ; MOON, Jae Young ; AHN, Heejoon
Acute and critical care, 08/2019, vol.34, n°3, p. 192-201

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End-of-life care of persons with Alzheimer disease - an update for clinicians

TRINH, Eric ; LEE, Andrew ; KIM, Kye Y.
The American journal of hospice and palliative care, 11/11/2019, Pagination inconnue

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Quality measurement of serious illness communication - recommendations for health systems based on findings from a symposium of national experts

SANDERS, Justin J. ; PALADINO, Joanna ; REAVES, Erica ; LUETKE-STAHLMAN, Hannah ; ANHANG PRICE, Rebecca ; LORENZ, Karl A. ; HANSON, Laura C. ; CURTIS, J. Randall ; MEIER, Diane E. ; FROMME, Erik K. ; BLOCK, Susan D.
JOURNAL OF PALLIATIVE MEDICINE, 13/11/2019, Pagination inconnue

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Communication quality predicts psychological well-being and satisfaction in family surrogates of hospitalized older adults - an observational study

TORKE, Alexia M. ; CALLAHAN, Christopher M. ; SACHS, Greg A. ; WOCIAL, Lucia D. ; HELFT, Paul R. ; MONAHAN, Patrick O. ; SLAVEN, James E. ; MONTZ, Kianna ; BURKE, Emily S. ; INGER, Lev
Journal of general internal medicine, 01/01/2018, vol.33, n°3, p. 298-304

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Quality of end-of-life care in the emergency department

ECONOMOS, Guillaume ; CAVALLI, Pascale ; GUERIN, Thomas ; FILBET, Marilene ; PERCEAU-CHAMBARD, Elise
Turkish journal of emergency medicine, 10/2019, vol.19, n°4, p. 141-145

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What are essential elements of high-quality palliative care at home? - an interview study among patients and relatives faced with advanced cancer

OOSTERVELD-VLUG, M. G. ; CUSTERS, B. ; HOFSTEDE, J. ; DONKER, G. A. ; RIJKEN, P. M. ; KOREVAAR, J. C. ; FRANCKE, A. L.
BMC palliative care, 06/11/2019, vol.18, n°1, p. 1-10

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Thème : Soins. Cote : eD02.07

QUALITE SOIN ; HOSPITALISATION DOMICILE SOINS PALLIATIFS ; CANCER ; RECHERCHE QUALITATIVE

BACKGROUND: In the Netherlands, general practitioners (GPs) and community nurses play a central role in the palliative care for home-dwelling patients with advanced cancer and their relatives. To optimize the palliative care provision at home, it is important to have insight in the elements that patients and relatives consider essential for high-quality palliative care, and whether these essentials are present in the actual care they receive.
METHODS: Qualitative semi-structured interviews were conducted with 13 patients with advanced cancer and 14 relatives. The participants discussed their experiences with the care and support they received from the GP and community nurses, and their views on met and unmet needs. Interview data were analysed according to the principles of thematic analysis.
RESULTS: Patients as well as relatives considered it important that their GP and community nursing staff are medically proficient, available, person-focused and proactive. Also, proper information transfer between care professionals and clear procedures when asking for certain resources or services were considered essential for good palliative care at home. Most interviewees indicated that these essential elements were generally present in the care they received. However, the requirements of 'proper information transfer between professionals' and 'clear and rapid procedures' were mentioned as more difficult to meet in actual practice. Patients and relatives also emphasized that an alert and assertive attitude on their own part was vital in ensuring they received the care they need. They expressed worries about other people who are less vigilant regarding the care they receive, or who have no family to support them in this.
CONCLUSIONS: Medical proficiency, availability, a focus on the person, proper information transfer between professionals, clear procedures and proactivity on the part of GPs and community nursing staff are considered essential for good palliative care at home. Improvements are particularly warranted with regard to collaboration and information transfer between professionals, and current bureaucratic procedures. It is important for care professionals to ensure that the identified essential elements for high-quality palliative care at home are met, particularly for patients and relatives who are not so alert and assertive.

Origine : PubMed

Natural language processing to assess palliative care and end-of-life process measures in patients with breast cancer with leptomeningeal disease

BRIZZI, Kate ; ZUPANC, Sophia N. ; UDELSMAN, Brooks V. ; TULSKY, James A. ; WRIGHT, Alexi A. ; POORT, Hanneke ; LINDVALL, Charlotta
The American journal of hospice and palliative care, 07/11/2019, Pagination inconnue

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Factors associated with non-beneficial treatments in end of life hospital admissions - a multicentre retrospective cohort study in Australia

CARTER, Hannah Elizabeth ; LEE, Xing Ju ; GALLOIS, Cindy ; WINCH, Sarah ; CALLAWAY, Leonie ; WILLMOTT, Lindy ; WHITE, Ben ; PARKER, Malcolm ; CLOSE, Eliana ; GRAVES, Nicholas
BMJ Open, 04/11/2019, vol.9, n°11, p. 1-8

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Short-stay palliative pain management for southwestern VA - process improvement plan

RUMSEY, Christopher Michael
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 12/2019, vol.211, n°6, p. 489-495

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Barriers and facilitators to a "good death" in heart failure - an integrative review

ASANO, Reiko ; ABSHIRE, Martha ; DENNISON-HIMMELFARB, Cheryl ; DAVIDSON, Patricia M.
Collegian, 12/2019, vol.26, n°6, p. 651-665

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Involving consumers with palliative care needs and their families in research - a case study

VIRDUN, Claudia ; LUCKETT, Tim ; GILMORE, Imelda ; BRASSIL, Meg ; LILIAN, Ruth ; LORENZ, Karl A. ; PHILLIPS, Jane
Collegian, 12/2019, vol.26, n°6, p. 645-650

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Early integration of palliative care in families of children with single ventricle congenital heart defects - a quality improvement project to enhance family support

DAVIS, Jo Ann M. ; BASS, Alice ; HUMPHREY, Lisa ; TEXTER, Karen ; GAREE, Amy
Pediatric cardiology, 01/11/2019, Pagination inconnue

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Thème : Age de la vie, situations spécifiques liées à la fin de vie.

DEMARCHE PALLIATIVE ; PEDIATRIE ; CARDIOLOGIE ; QUALITE SOIN

Children with single ventricle congenital heart defects (SVCHD) experience a significant risk of early mortality throughout their lifespan, particularly during their first year of life. Due to the intense care needed for these children and families, pediatric palliative care (PPC) team consults should be routine; however, medical staff are often reluctant to broach the idea of PPC to families. The involvement of PPC for many carries with it an association to end-of-life (EOL) care. Setting the standard of PPC involvement from the time of admission for the first palliative surgery led to increased family support, decreased days to consult, improved acceptance and communication. The purpose of this article is to describe a quality improvement project of early integration of PPC with families of children with SVCHD. Lessons learned will be presented, including the resources needed and the barriers encountered in assimilating PPC into the standard of care for all patients with SVCHD. The single ventricle (SV) and PPC teams collaborated to enhance the support given to SV families. Education was initiated with cardiology and PPC providers to understand the goal of consistent PPC consults beginning after birth for patients with SVCHD. Parents were educated during fetal consultation regarding the involvement of the PPC team. The SV team ensured compliance with the PPC initiative by identifying eligible patients and requesting consult orders from the primary providers. PPC consultation increased significantly over the 40 month study period to nearly 100% compliance for children with SVCHD who are undergoing pre-Fontan surgery. In addition, mean days to consult decreased dramatically during the study to a current average of 3 days into the patient's hospitalization; the data likely suggest that more PPC consults were routinely ordered versus urgently placed for unexpected complications. Data indicate that patients are being followed by the PPC team at an earlier age and stage in their SV journey which allows for more opportunity to provide meaningful support to these patients and families. The early involvement of the PPC team for children with SV physiology was operationally feasible and was accepted by families, thus allowing PPC providers to establish a therapeutic relationship early in the disease trajectory with the family. It allowed more continuity throughout the SV journey in a proactive fashion rather than a reactive manner.

Origine : PubMed

Improved quality of death and dying in care home - a palliative care stepped wedge randomized control trial in Australia

LIU, Wai-Man ; KOERNER, Jane ; LAM, Lawrence ; JOHNSTON, Nikki ; SAMARA, Juliane ; CHAPMAN, Michael ; FORBAT, Liz
Journal of the American Geriatrics Society, 04/11/2019, Pagination inconnue

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Assessing end-of-life care across settings in an integrated health care delivery system

WANG, Margaret C. ; JOHNSON, Daniel J. ; GLASS, David ; MARTEL, Helene ; MULARSKI, Richard A. ; BELLOWS, Jim
JOURNAL OF PALLIATIVE MEDICINE, 29/10/2019, Pagination inconnue

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Impact of the Liverpool care pathway on quality end-of- care in residential care homes and home care-nurses' perceptions

OLSSON, Cecilia ; KLING, Elisabeth ; GRUNDEL PERSSON, Karina ; LARSSON, Maria
Nursing open, 10/2019, vol.6, n°4, p. 1589-1599

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Dying in acute hospitals - voices of bereaved relatives

O COIMIN, Diarmuid ; PRIZEMAN, Geraldine ; KORN, Bettina ; DONNELLY, Sarah ; HYNES, Geralyn
BMC palliative care, 31/10/2019, vol.18, n°1, p. 1-16

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