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Hospital end-of-life care - families’ free-text notes

KURKOWSKI, Sandra ; RADON, Johannes ; VOGT, Annika R. ; WEBER, Martin ; STIEL, Stephanie ; OSTGATHE, Christoph ; HECKEL, Maria
BMJ supportive and palliative care, 26/11/2020, Pagination inconnue

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Improving regional care in the last year of life by setting up a pragmatic evidence-based plan–do–study–act cycle - results from a cross-sectional survey

VOLTZ, Raymond ; DUST, Gloria ; SCHIPPEL, Nicolas ; HAMACHER, Stefanie ; PAYNE, Sheila ; SCHOLTEN, Nadine ; PFAFF, Holger ; RIETZ, Christian ; STRUPP, Julia
BMJ Open, 01/11/2020, vol.10, n°11, p. 1-10

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Effects of an integrated palliative care pathway - more proactive GPs, well timed, and less acute care: a clustered, partially controlled before-after study

GROENEWOUD, A. Stef ; WICHMANN, Anne B. ; DIJKSTRA, Lara ; KNAPEN, Els ; WARMERDAM, Fabienne ; DE WEERDT-SPAETGENS, Chantal ; DOMINICUS, Wilbert ; AKKERMANS, Reinier ; MEIJERS, Judith
Journal of the American Medical Directors Association, 19/11/2020, p. 1-8

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End of life care for persons under guardianship

MOYE, Jennifer ; STOLZMANN, Kelly ; AUGUSTE, Elizabeth J. ; COHEN, Andrew B. ; CATLIN, Casey ; SAGER, Zachary S. ; WEISKITTLE, Rachel E. ; WOOLVERTON, Cindy B. ; CONNORS, Heather L. ; SULLIVAN, Jennifer L.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 16/11/2020, Pagination inconnue

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Thème : Soins.

TUTELLE ; FIN VIE ; QUALITE SOIN ; ETATS-UNIS ; MEDECINE PALLIATIVE

Context: Guardians are surrogate decision makers appointed by a court when other health care decision-makers are unable, unwilling, or unavailable to make decisions. Prior studies suggest that persons under guardianship may experience delays in transitions of care.
Objectives: To compare quality of end-of-life care for persons under guardianship to a matched group on objective indicators and to identify narrative themes characterizing potential obstacles to quality end-of-life care.
Methods: One hundred sixty-seven persons under guardianship who died between 2003 and 2019 within the Veterans Healthcare Administration in Massachusetts and Connecticut matched on a 1:1 basis to persons without guardians. The groups were compared on treatment specialty at death, days of hospice and intensive care unit care, and receipt of palliative care consultation. Additionally, patient narratives for those under guardianship with extended lengths in intensive care unit were subjected to qualitative analysis.
Results: Overall, <1% were under guardianship. Within this sample of persons who died within the Veterans Health Administration, persons under guardianship were as likely as patients in the comparison group to receive palliative care consultation (odds ratio [CI] = 0.93 [.590-1.46], P = .359), but were more likely to have ethics consultation (odds ratio [CI] = 0.25 [0.66–0.92], P = .036) and have longer lengths of ICU admission (ß = -.34, t = -2.70, P = .009). Qualitative findings suggest that issues related to family conflict, fluctuating medical course, and limitations in guardian authority may underlie extended lengths of stay.
Conclusion: Guardianship appears to be rare, and as a rule, those under guardianship have equal access to hospice and palliative care within Veterans Health Administration. Guardianship may be associated with health-care challenges in a small number of cases, and this may drive perceptions of adverse outcomes.

Origine : PubMed

Better continuity of care improves the quality of end-of-life care among elderly patients with end-stage renal disease

CHEN, Annie Y. ; CHEN, Bradley ; KUO, Chin-Chi
Scientific reports, 12/11/2020, vol.10, n°1, p. 1-10

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How do claims-based measures of end-of-life care compare to family ratings of care quality?

CHRISTIAN, Thomas J. ; HASSOL, Andrea ; BROOKS, Gabriel A. ; GU, Qian ; KIM, Seyoun ; LANDRUM, Mary Beth ; KEATING, Nancy L.
Journal of the American Geriatrics Society, 09/11/2020, Pagination inconnue

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Improving the quality of community primary palliative care in COPD - a qualitative study of health-care providers

HIRAKAWA, Yoshihisa ; HIRAHARA, Satoshi ; YAMAGUCHI, Yasuhiro ; YAMANAKA, Takashi ; Arai, Hidenori ; MIURA, Hisayuki
Home health care services quarterly, 06/11/2020, p. 1-15

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Associations between informal care costs, care quality, carer rewards, burden and subsequent grief - the international, access, rights and empowerment mortality follow-back study of the last 3 months of life (IARE I study)

HIGGINSON, Irene J. ; YI, Deokhee ; JOHNSTON, Bridget M. ; RYAN, Karen ; McQUILLAN, Regina ; SELMAN, Lucy ; PANTILAT, Stephen Z. ; DAVESON, Barbara A. ; MORRISON, R. Sean ; NORMAND, Charles E.
BMC medicine, 03/11/2020, vol.18, n°1, p. 1-13

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End-of-life care in amyotrophic lateral sclerosis - a comparative registry study

ELJAS AHLBERG, Eva ; AXELSSON, Bertil
Acta neurologica Scandinavica, 03/11/2020, Pagination inconnue

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Staff training interventions to improve end-of-life care of nursing home residents - a systematic review

LAMPPU, Pauli J. ; PITKALA, Kaisu H.
Journal of the American Medical Directors Association, 26/10/2020, Pagination inconnue

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Barriers to high quality end of life care in the surgical intensive care unit

DIAZ MILIAN, Ricardo
The American journal of hospice and palliative care, 29/10/2020, Pagination inconnue

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End-of-life-care quality in ICUs is associated with family surrogates' severe anxiety and depressive symptoms during their first 6 months of bereavement

TANG, Siew Tzuh ; HUANG, Chung-Chi ; HU, Tsung-Hui ; LO, Mei-Ling ; CHOU, Wen-Chi ; CHUANG, Li-Pang ; CHIANG, Ming Chu
Critical care medicine, 28/10/2020, Pagination inconnue

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Exploring the experiences of patients in the oncology care model

FRANKLIN, Elizabeth F. ; NICHOLS, Helen M. ; BOHANNON, Linda
JCO oncology practice, 07/10/2020, Pagination inconnue

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Family and friend perceptions of quality of end-of-life care in medicare advantage vs traditional medicare

ANKUDA, Claire K. ; KELLEY, Amy S. ; MORRISON, R. Sean ; FREEDMAN, Vicki A. ; TENO, Joan M.
JAMA network open, 01/10/2020, vol.3, n°10, p. 1-11

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Adaptation and piloting for hospice social workers of Aliviado Dementia Care, a dementia symptom management program

JONES, Tessa M. ; BRODY, Abraham A.
The American journal of hospice and palliative care, 05/10/2020, Pagination inconnue

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Effectiveness and reach of the primary palliative care for emergency medicine (PRIM-ER) pilot study - a qualitative analysis

CHUNG, Frank R. ; TURECAMO, Sarah ; CUTHEL, Allison M. ; GRUDZEN, Corita R. ; PRIM-ER INVESTIGATORS
Journal of general internal medicine, 27/10/2020, Pagination inconnue

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Were clinical routines for good end-of-life care maintained in hospitals and nursing homes during the first three months of the outbreak of Covid-19? - a national register study

MARTINSSON, Lisa ; STRANG, Peter M. ; BERGSTROM, Jonas ; LUNDSTROM, Staffan
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 06/10/2020, p. 1-23

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Association between receipt of emotional support and caregivers' overall hospice rating

PARAST, Layla ; ELLIOTT, Marc N. ; HAAS, Ann ; TENO, Joan M. ; BRADLEY, Melissa ; WEECH-MALDONADO, Robert ; ANHANG PRICE, Rebecca
JOURNAL OF PALLIATIVE MEDICINE, 06/10/2020, Pagination inconnue

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Assessment of the quality of end-of-life care - translation and validation of the German version of the “Care of the Dying Evaluation” (CODE-GER) - a questionnaire for bereaved relatives

VOGT, Annika ; STIEL, Stephanie ; HECKEL, Maria ; GOEBEL, Swantje ; MAI, Sandra Stephanie ; SEIFERT, Andreas ; GERLACH, Christina ; OSTGATHE, Christoph ; WEBER, Martin
Health and quality of life outcomes, 22/09/2020, vol.18, n°1, p. 1-15

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Earlier multidisciplinary palliative care intervention for people with lung cancer - a systematic review and meta-analysis

KOCHOVSKA, Slavica ; FERREIRA, Diana H. ; LUCKETT, Tim ; PHILLIPS, Jane L. ; CURROW, David
Translational lung cancer research, 08/2020, vol.9, n°4, p. 1699-1709

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