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QUALITE VIE

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Closeness and conflict with the deceased - exploring the factor structure of the quality of relationships inventory in a bereaved student sample

BOTTOMLEY, Jamison S. ; SMIGELSKY, Melissa A. ; FLOYD, Randy G. ; NEIMEYER, Robert A.
OMEGA JOURNAL OF DEATH AND DYING, 2019, vol.79, n°4, p. 377-393

Effectiveness of a self-monitoring quality of life intervention for patients with cancer receiving palliative care - a randomized controlled clinical trial

MATSUDA, Ayako ; YAMADA, Yosuke ; ISHIZUKA, Noriko ; MATSUSHIMA, Eisuke ; KOBAYASHI, Kunihiko ; OHKUBO, Takayoshi ; YAMAOKA, Kazue
Asian Pacific journal of cancer prevention, 01/09/2019, vol.20, n°9, p. 2795-2802

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Does palliative chemotherapy really palliate and are we measuring it correctly? - a mixed methods longitudinal study of health related quality of life in advanced soft tissue sarcoma

GOUGH, Nicholas ; KOFFMAN, Jonathan ; ROSS, Joy R. ; RILEY, Julia ; JUDSON, Ian
Plos one, 2019, vol.14, n°9, p. 1-24

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Thème : Médecine. Cote : eD03.05.01

CHIMIOTHERAPIE ; QUALITE VIE ; ETUDE LONGITUDINALE

OBJECTIVE: Soft tissue sarcoma (STS) is a rare cancer type that when locally advanced or metastatic, is predominantly treated with palliative chemotherapy with the aim of improving both quantity and quality of life. Given modest survival data after commencing first line chemotherapy, this study examines (i) what constitutes health related quality of life (HRQoL), (ii) whether the most commonly used HRQoL assessment tool measures this and (iii) to what extent HRQoL, and its components, change during and after treatment.
DESIGN: Mixed-methods longitudinal study of 66 sarcoma patients living with STS (42 commencing chemotherapy, 24 under surveillance after completing chemotherapy) involving serial EORTC QLQ-C30 questionnaires and nested-qualitative semi-structured interviews with a sub-sample of participants. EORTC QLQ-C30 score change from baseline to primary evaluation point was examined using a paired t-test. Interviews were analysed using the framework approach before both datasets were integrated.
RESULTS: Five main factors, including control of pain, were identified by study participants as important components of HRQoL; these are examined within the EORTC QLQ-C30. However, others e.g. independence loss and common causes of anxiety, are not. Whilst social and psychological domains are addressed by the EORTC QLQ-C30, the quantitative change over time did reflect qualitative descriptions of decline. The mean overall EORTC QLQ-C30 HRQoL score deteriorated from baseline (60.4) to the primary evaluation point (50.2) [change of -10.2, t-test: -2.70, p = 0.01] for those receiving chemotherapy; this was in concordance with patients' qualitative accounts. Baseline overall HRQoL scores were higher in the surveillance group suggesting a correlation with chemotherapy response and longer-term improvement in HRQoL. The evidence from both HRQoL scores and qualitative accounts indicated that the presence and control of physical symptoms were particularly important in maintaining HRQoL. Whilst fatigue deteriorated on chemotherapy (baseline 41.7 to 52.8; change of +11.1, t-test +2.51, p<0.05), pain (baseline 41.5 to 32.1; change -9.4, t-test -2.06 p<0.05) and sleep disturbance (43.1 to 28.5; change -14.6, t-test -3.05, p<0.05) both improved.
CONCLUSION: A key finding was that the EORTC QLQ-C30 assesses some but not all of the patient-reported components of HRQoL in sarcoma patients highlighting the need for either STS specific modules within the EORTC QLQ-C30 or a completely new STS specific HRQoL tool. First line palliative chemotherapy improves specific symptoms known to be prevalent and to influence HRQoL in this patient group which in some patients may translate to sustained improvement in HRQoL: further exploration and validation of these findings in larger prospective studies are warranted.

Origine : PubMed

Qualité de vie en soins palliatifs

DAIRE, Rodolphe ; DONABEDIAN, Héléna ; TAMBOURAS, Valérie ; SAGOT, Catherine
SOINS GERONTOLOGIE, 10/2019, vol.24, n°139, p. 25-27

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Advance care planning in frail older adult - a cluster randomized controlled trial

OVERBEEK, Anouk ; KORFAGE, Ida J. ; JABBARIAN, Lea J. ; BILLEKENS, Pascalle ; HAMMES, Bernard J. ; POLINDER, Suzanne ; SEVERIJNEN, Johan ; SWART, Siebe J. ; WITKAMP, Frederika E. ; VAN DER HEIDE, Agnes ; RIETJENS, Judith A. C.
Journal of the American Geriatrics Society, 01/01/2018, vol.66, n°6, p. 1089-1095

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Withdrawing life-sustaining treatment - a stock-take of the legal and ethical position

RUCK KEENE, Alexander Charles Edward ; LEE, Annabel
Journal of medical ethics, 05/09/2019, Pagination inconnue

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Quality of life in patients with advanced non-small-cell lung cancer receiving palliative chemotherapy

DAROSZEWSKI, Cyryl ; STASIEWICZ, Malgorzata ; JAZWINSKA-TARNAWSKA, Ewa ; RACHWALIK, Anna ; MURA, Ewa ; LUBOCH-KOWAL, Joanna ; DRYS, Andrzej ; BOGUCKI, Zdzislaw A. ; BRZECKA, Anna
Advances in experimental medicine and biology, 2019, vol.1160, p. 11-18

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After the burden is lifted - caregivers' recovery of life satisfaction after the death or recovery of a spouse

LANGNER, Laura A. ; FURSTENBERG, Frank F.
The Journals of gerontology. Series B, psychological sciences and social sciences, 10/09/2019, p. 1-26

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Mental wellbeing in bereaved carer - a health survey for England population study

HODIAMONT, Farina ; ALLGAR, Victoria ; CURROW, David ; JOHNSON, Miriam J.
BMJ supportive and palliative care, 06/09/2019, Pagination inconnue

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A randomized, controlled trial of the efficacy of percutaneous transesophageal gastro-tubing (PTEG) as palliative care for patients with malignant bowel obstruction - the JIVROSG0805 trial

ARAMAKI, Takeshi ; ARAI, Yasuaki ; TAKEUCHI, Yoshito ; SONE, Miyuki ; SATO, Rui ; BEKKU, Emima ; MORIGUCHI, Michihisa
Supportive care in cancer, 07/09/2019, Pagination inconnue

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The effect of palliative care intervention program on the quality of life among Jordanian caregivers of cancer patients

BANI YOUNIS, Mohammad K. ; AL-RAWASHDEH, Ahmad ; ALNAJADAT, Rafi M.
Home health care services quarterly, 13/09/2019, p. 1-11

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Early integrated telehealth versus in-person palliative care for patients with advanced lung cancer - a study protocol

CHUA, Isaac S. ; ZACHARIAH, Finly ; DALE, William ; FELICIANO, Josephine ; HANSON, Laura ; BLACKHALL, Leslie ; QUEST, Tammie ; CURSEEN, Kimberly ; GREY, Carl ; RHODES, Ramona ; SHOEMAKER, Laura ; SILVEIRA, Maria J. ; FISCHER, Stacy ; O'MAHONY, Sean ; LEVENTAKOS, Kostantinos ; TROTTER, Chardria ; SERENO, Isabella ; KAMDAR, Mihir ; TEMEL, Jennifer ; GREER, Joseph A.
JOURNAL OF PALLIATIVE MEDICINE, 09/2019, vol.22, n°S1, p. 7-19

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Community-dwelling and recently widowed older adults - effects of spousal loss on psychological well-being, perceived quality of life, and health-care costs

VAN BOEKEL, L. C. ; CLOIN, J. C. M. ; LUIJKX, K. G.
International journal of aging and human development, 03/09/2019, p. 1-18

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La dynamique de l’entretien motivationnel dans un contexte de soins palliatifs

NGUEPY KEUBO, François Roger ; MBOUA, Pierre Célestin ; TATEPONG NCHANKOU, André Merlin ; SOBGOUM ZITA, Nanken ; NDENDJIE, Hélène
REVUE DE L'INFIRMIERE, 08/2019, vol.68, n°253, p. 32-34

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Kennedy terminal ulcers - a scoping review

LATIMER, Sharon ; SHAW, Joanie ; HUNT, Tracey ; MACKRELL, Kristyn ; GILLESPIE, Brigid M.
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 08/2019, vol.21, n°4, p. 257-263

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Beyond the technical - determining real indications for vascular access and hemodialysis initiation in end-stage renal disease

KETTELER, Erika R.
Surgical clinics of North America, 01/10/2019, vol.99, n°5, p. 967-975

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Nurses’ perspectives on family caregiver medication management support and deprescribing

TJIA, Jennifer ; DESANTO-MADEYA, Susan ; MAZOR, Kathleen M. ; HAN, Paul ; NGUYEN, Bryan ; CURRAN, Tess ; GALLAGHER, Julia ; CLAYTON, Margaret F.
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 08/2019, vol.21, n°4, p. 312-318

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Palliative short-course radiotherapy in advanced pelvic cancer - a phase II study (SHARON Project)

FARINA, Eleonora ; MACCHIA, Gabriella ; SIEPE, Giambattista ; ZAMAGNI, Alice ; BUWENGE, Milly ; SCIROCCO, Erica ; CELLINI, Francesco ; DERESSA, Biniyam T. ; TIGENEH, Wondemagegnehu ; UDDIN, Kamal A. F. M. ; SUMON, Mostafà Aziz ; CARAVATTA, Luciana ; GENOVESI, Domenico ; MAURO, Flora Anna ; CAMMELLI, Silvia ; CILLA, Savino ; MORGANTI, Alessio G. ; DEODATO, Francesco
Anticancer research, 08/2019, vol.39, n°8, p. 4237-4242

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The use of personal narratives in hospital-based palliative care interventions - an integrative literature review

ROIKJAER, Stine Gundtoft ; MISSEL, Malene ; BERGENHOLTZ, Heidi Maria ; SCHONAU, Mai Nanna ; TIMM, Helle Ussing
PALLIATIVE MEDICINE, 01/08/2019, Pagination inconnue

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Mindfulness training supports quality of life and advance care planning in adults with metastatic cancer and their caregivers - results of a pilot study

JOHNS, Shelley A. ; BECK-COON, Kathleen ; STUTZ, Patrick V. ; TALIB, Tasneem L. ; CHINH, Kelly ; COTTINGHAM, Ann H. ; SCHMIDT, Karen ; SHIELDS, Cleveland ; STOUT, Madison E. ; STUMP, Timothy E. ; MONAHAN, Patrick O. ; TORKE, Alexia M. ; HELFT, Paul R.
The American journal of hospice and palliative care, 04/08/2019, Pagination inconnue

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