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An exploration of spousal caregivers’ well-being after the death of their partners who were older cancer patients - a phenomenological approach

VAN HOUT, E. ; PETERS, S. ; JANSEN, L. ; ROBER, P. ; VAN DEN AKKER, M.
European journal of oncology nursing, 01/08/2020, vol.47, p. 1-6

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Content validation of the EORTC QLQ-C15-PAL with advanced cancer patients and health care professionals from palliative care services in Chile

ROJAS-CONCHA, Leslye ; HANSEN, Maiken Bang ; PETERSEN, Morten Aagaard ; GROENVOLD, Mogens
BMC palliative care, 09/06/2020, vol.19, n°1, p. 1-10

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Primary palliative care - skills for all clinicians

SREEDHAR, Sue S. ; KRAFT, Colleen ; FRIEBERT, Sarah
Current problems in pediatric and adolescent health care, 29/06/2020, Pagination inconnue

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Rehabilitation for cancer patients in inpatient hospices / palliative care units and achievement of a good death - analyses of combined data from nationwide surveys among bereaved family members

HASEGAWA, Takaaki ; SEKINE, Ryuichi ; AKECHI, Tatsuo ; OSAGA, Satoshi ; TSUJI, Tetsuya ; OKUYAMA, Toru ; SAKURAI, Haruka ; MASUKAWA, Kento ; AOYAMA, Maho ; MORITA, Tatsuya ; KIZAWA, Yoshiyuki ; TSUNETO, Satoru ; SHIMA, Yasuo ; MIYASHITA, Mitsunori
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 29/06/2020, p. 1-29

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Understanding experiences in hospice - exploring temporal, occupational, and relational dimensions using pictor technique

BULK, Laura Yvonne ; KIMEL, Gil ; KING, Nigel ; NIMMON, Laura
Qualitative health research, 20/06/2020, Pagination inconnue

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Characteristics and health related quality of life in a population with advanced chronic obstructive pulmonary disease, a cross-sectional study

BOVE, D. G. ; LAVESEN, M. ; LINDEGAARD, B.
BMC palliative care, 18/06//2020, vol.19, n°1, p. 1-9

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Rationale and resources to accelerate advanced practice palliative care competency

KOIRALA, Binu ; DAVIDSON, Patricia ; FERRELL, Betty R. ; HIMMELFARB, Cheryl Dennison
AACN advanced critical care, 15/06/2020, vol.31, n°2, p. 191-195

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Exploring the issues of advance directives in patients with mild dementia in Taiwan

CHOU, H.H.
Acta medica Okayama, 06/2020, vol.74, n°3, p. 215-220

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Exploring family caregiver communication difficulties and caregiver quality of life and anxiety

WITTENBERG, Elaine ; KERR, Anna M. ; GOLDSMITH, Joy
American journal of hospice and palliative medicine, 26/06/2020, Pagination inconnue

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Home parenteral nutrition in patients with advanced cancer - a systematic review and meta-analysis

O’HANLON, Francis J. ; FRAGKOS, Konstantinos C. ; FINI, Lucia ; PATEL, Pinal S. ; MEHTA, Shameer J. ; RAHMAN, Farooq ; DI CARO, Simona
Nutrition and cancer, 25/06/2020, p. 1-13

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The impact of palliative care team consultation on quality of life of patients with advanced cancer in Dutch hospitals - an observational study

BRINKMAN-STOPPELENBURG, Arianne ; VERGOUWE, Yvonne ; BOOMS, Monique ; HENDRIKS, Mathijs P. ; PETERS, Liesbeth A. ; QUARLES VAN UFFORD-MANNESSE, Patricia ; TERHEGGEN, Frederiek ; VERHAGE, Sylvia ; VAN DER VORST, Maurice J.D.L. ; WILLEMEN, Ingrid ; POLINDER, Suzanne ; VAN DER HEIDE, Agnes
Oncology research and treatment, 24/06/2020, p. 1-7

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Should analyses of large, national palliative care data sets with patient reported outcomes (PROs) be restricted to services with high patient participation? - a register-based study

HANSEN, Maiken Bang ; PETERSEN, Morten Aagaard ; ROSS, Lone ; GROENVOLD, Mogens
BMC palliative care, 2020, vol.19, n°1, p. 1-11

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End of life experiences of patients with advanced cancer in Myanmar - results from the APPROACH study

MON, Ssu Wynn ; OZDEMIR, Semra ; ZU, Wah Wah Myint ; WIN, Han ; MAW, Myo Myint ; WIN, Khin Cho ; THANT, Kyaw Zin ; TEO, Irene ; KRISHNAN, Anirudh ; GOH, Cynthia Ruth ; FINKELSTEIN, Eric A. ; MALHOTRA, Chetna
Asia-Pacific journal of clinical oncology, 23/06/2020, Pagination inconnue

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Hearing and heeding the voices of those with advanced illnesses

PIDERMAN, Katherine M. ; RADECKI BREITKOPF, Carmen ; JENKINS, Sarah M. ; INGRAM, Cory ; SYTSMA, Terin T. ; LAPID, Maria I. ; TATA, Beba S. ; CHATTERJEE, Krishanu ; EGGINTON, Jason S. ; JATOI, Aminah
JOURNAL OF PALLIATIVE CARE, 28/05/2020, Pagination inconnue

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Thème : Religions, spiritualité.

SPIRITUALITE ; OUTIL ; QUALITE VIE ; EVALUATION ; ECHELLE MESURE

Objectives:To describe the feasibility of a chaplain-led spiritually focused life review interview and the development of a spiritual legacy document (SLD) for patients with advanced diseases and to describe changes in spiritual well-being (SWB), spiritual coping strategies (SC), and quality of life (QOL) after receiving the SLD.
Patients and Methods: In all, 130 patients and support person (SP) pairs were recruited from July 2012 to January 2019. Following enrollment, demographic information was gathered and baseline questionnaires were administered. Functional Assessment of Chronic Illness Therapy'Spiritual Well-Being Scale (FACIT-Sp-12) and a linear analog scale assessment (LASA) measured SWB. LASAs also measured QOL and emotional well-being (EWB). Positive Religious Coping Scale (RCOPE) measured SC. After completion of baseline forms, participants were interviewed (individually) by a chaplain. Interviews were digitally recorded, transcribed, and verified. Transcripts were edited and participants were given the opportunity to make adaptations. The participant-approved draft was then developed into a professionally printed SLD. Follow-up questionnaires were administered to assess change.
Results: Significant improvements from baseline to post-SLD follow-up were found for patients on the LASAs: SWB (average 7.7-8.3, P = .01), QOL (average 6.7-7.3, P = .03), EWB (average 6.9-7.5, P = .01), and on the positive RCOPE (average 1.8-2.0, P = .007). Effect sizes were approximately 0.25. Considering any improvement, 61.0% improved their positive RCOPE score, 46.6% improved EWB, and 39.7% improved SWB. No significant changes were found on the FACIT-Sp-12. No significant changes were found for SPs.
Conclusion: The results suggest that the primary participants who completed the study benefited by significantly increasing their QOL, SWB, EWB, and SC.

Origine : SAGE Journals

Heart failure - a palliative medicine review of disease, therapies, and medications with a focus on symptoms, function, and quality of life

MCGUINTY, Caroline ; LEONG, Derek ; WEISS, Andrea ; MACIVER, Jane ; KAYA, Ebru ; HURLBURT, Lindsay ; BILLIA, Filio ; ROSS, Heather ; WENTLANDT, Kirsten
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 05/2020, vol.59, n°5, p. 1127-1146

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Opportunities for palliative care in patients with burn injury - a systematic review

COOK, Allyson C. ; LANGSTON, Jessica A. ; JARAMILLO, Joshua D. ; EDWARDS, Kristin E. ; WONG, Hong-Nei ; ASLAKSON, Rebecca A. ; The American Academy of Hospice and Palliative Medicine Research Committee Writing Group
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 04/2020, vol.59, n°4, p. 916-931

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Impact of a nurse-led advance care planning intervention on satisfaction, health-related quality of life, and health care utilization among patients with severe respiratory disease - a randomized patient-preference trial

SINCLAIR, Craig ; AURET, Kirsten Anne ; EVANS, Sharon Frances ; JANE, Fiona ; DORMER, Siobhan ; WILKINSON, Anne ; GREEVE, Kim ; KOAY, M. Audrey ; BRIMS, Fraser
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 04/2020, vol.59, n°4, p. 848-855

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Stability and impact of symptom clusters in patients with end-stage renal disease undergoing dialysis

NAM, Marques Shek ; KWOK SO, Winnie ; WONG, Cho Lee ; HUI, Yun Ho ; HAU SIM HO, Eva ; CHOI, Kai Chow ; COOPER, Bruce ; MIASKOWSKI, Christine
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 01/2020, vol.59, n°1, p. 67-76

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Covid-19 crisis triage - optimizing health outcomes and disability rights

SOLOMON, Mildred Z. ; WYNIA, Matthew K. ; GOSTIN, Lawrence O.
The New England journal of medicine, 19/05/2020, p. 1-3

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Architecture and well-being in a hospice unit - a qualitative exploration

ANNEMANS, Margo ; COOMANS, Koen ; HEYLIGHEN, Ann
BMJ supportive and palliative care, 14/05/2020, Pagination inconnue

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