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Exploring quality of life in end-of-life discussions

EGGENBERGER, Terry ; HOWARD, Heather ; PRESCOTT, Dana ; LUCK, George
The American journal of hospice and palliative care, 06/2020, vol.37, n°6, p. 465-473

Spirituality, quality of life, and end of life among indigenous peoples - a scoping review

TERPSTRA, Jodi ; LEHTO, Rebecca ; WYATT, Gwen K.
Journal of transcultural nursing, 27/08/2020, Pagination inconnue

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Using targeted therapies at the end of life

DELAYE, Matthieu ; SCOTTE, Florian ; VOISIN-SALTIEL, Sabine ; PAVLIUC, Elena ; VIGOURET-VIANT, Laurence ; DAUCHY, Sarah ; MATEUS, Christine
BMJ supportive and palliative care, 27/08/2020, p. 1-3

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Quality of life and added value of a tailored palliative care intervention in patients with soft tissue sarcoma undergoing treatment with trabectedin - a multicentre, cluster-randomised trial within the German interdisciplinary sarcoma group (GISG)

HENTSCHEL, Leopold ; RICHTER, Stephan ; KOPP, Hans-Georg ; KASPER, Bernd ; KUNITZ, Annegret ; GRUNWALD, Viktor ; KESSLER, Torsten ; CHEMNITZ, Jens Marcus ; PELZER, Uwe ; SCHULER, Ulrich ; FREITAG, Janet ; SCHILLING, Andrea ; HORNEMANN, Beate ; ARNDT, Karin ; BORNHAUSER, Martin ; SCHULER, Markus Kajo
BMJ Open, 27/08/2020, vol.10, n°8, p. 1-9

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Comparison of patient self-reported quality of life and health care professional-assessed symptoms in terminally ill patients with cancer

MATSUMURA, Chikako ; KOYAMA, Nanako ; SAKO, Morito ; KUROSAWA, Hideo ; NOMURA, Takehisa ; EGUCHI, Yuki ; OHBA, Kazuki ; YANO, Yoshitaka
The American journal of hospice and palliative care, 24/07/2020, Pagination inconnue

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Randomized control trial of advanced cancer patients at a private hospital in Kenya and the impact of dignity therapy on quality of life

WERU, John ; GATEHI, Miriam ; MUSIBI, Alice
BMC palliative care, 23/07/2020, vol.19, n°1, p. 1-12

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Factors influencing health-related quality of life of patients with multiple sclerosis and their caregivers

BUZGOVA, Radka ; KOZAKOVA, Radka ; SKUTOVA, Monika
European neurology, 28/07/2020, p. 331-339

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Refining a taxonomy of goals for older adults with functional limitations and their caregivers to inform care planning

CLAIR, Catherine A. ; HENRY, Maureen ; JENNINGS, Lee A. ; REUBEN, David B. ; SANDBERG, Shana F. ; GIOVANNETTI, Erin R.
Journal of applied gerontology, 28/07/2020, Pagination inconnue

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Source of social support and caregiving self-efficacy on caregiver burden and patient's quality of life - a path analysis on patients with palliative care needs and their caregivers

LEUNG, Doris Y. P. ; CHAN, Helen Y. L. ; CHIU, Patrick K. C. ; LO, Raymond S. K. ; LEE, Larry L. Y.
International journal of environmental research and public health, 29/07/2020, vol.17, n°15, p. 1-13

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Art therapy in a palliative care unit - symptom relief and perceived helpfulness in patients and their relatives

COLLETTE, Nadia ; GÜELL, Ernest ; FARIÑAS, Oscar ; PASCUAL, Antonio
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 30/07/2020, p. 1-9

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Research on the quality hospice care of elderly cancer patients in China under social work intervention

WANG, Li ; WANG, Zhizhong
ENVIRONMENTAL HEALTH AND PREVENTIVE MEDICINE, 01/08/2020, vol.25, n°1, p. 1-9

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Enhancing spiritual harmony in palliative care

NYATANGA, Brian
British journal of community nursing, 02/08/2020, vol.25, n°8, p. 411

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Benefits of a support programme for family caregivers of patients at the end of life - a randomised controlled trial

SOTO-RUBIO, Ana Lucila ; VALERO-MORENO, Selene ; PÉREZ-MARIN, Marian
Journal of health psychology, 10/08/2020, Pagination inconnue

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Case discussions in advanced care planning

KRECHOWICZ, Regine ; GUPTA, Melini ; GRATTON, Valerie ; HICKEY, Carly ; THOMPSON, Laura H. ; KYEREMANTENG, Kwadwo
The American journal of hospice and palliative care, 13/08/2020, Pagination inconnue

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Occupational therapy and physiotherapy interventions in palliative care - a cross-sectional study of patient-reported needs

HOGDAL, Nina ; EIDEMAK, Inge ; LARSEN, Henrik ; CHRISTENSEN, Jan ; SJOGREN, Per ; SORENSEN, Jonas
BMJ supportive and palliative care, 11/08/2020, Pagination inconnue

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Symptom burden and unmet needs in MPM - exploratory analyses from the respect-meso study

HOON, Siao Nge ; LAWRIE, Iain ; QI, Cathy ; RAHMAN, Najib ; MASKELL, Nick A. ; FORBES, Karen ; GERRY, Stephen ; MONTEROSSO, Leanne ; CHAUHAN, Anoop ; BRIMS, Fraser J. H.
JOURNAL OF PALLIATIVE CARE, 14/08/2020, Pagination inconnue

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Thème : Médecine.

MALADIE RESPIRATOIRE ; MEDECINE PALLIATIVE ; QUALITE VIE ; ESSAI RANDOMISE ; CONTROLE SYMPTOME

Objective: Malignant Pleural Mesothelioma (MPM) has a poor prognosis and high symptom burden. RESPECT-Meso was a multicenter randomized study examining the role of early specialist palliative care (SPC) on quality of life (QoL) with MPM. This is a post-hoc exploratory analysis of the symptom burden and unmet needs identified from RESPECT-Meso participants.
Methods: Exploratory analysis from 174 participants using the General Health Status (GHS) measure (from the EORTC QLQ-C30 QoL questionnaire) and 87 participants using validated assessment questionnaires in those randomized to SPC. Eligibility for the study included confirmed MPM with diagnosis <6 weeks prior, performance score (PS) 0 or 1, no significant physical or psychological comorbidity. Cox proportional hazards models were derived to examine for relationships with survival. Free text was assessed using content analysis, looking for common themes and words.
Results: Participants were predominantly male (79.9%), mean age 72.8 years, PS was 0 in 38%, 78% of MPM was epithelioid. At least 3 symptoms were reported in 69.8% of participants, including fatigue (81%), dyspnea (73.3%), pain (61.2%), weight loss (59.3%). Anxiety was reported by 54.7% of participants, 52.3% low mood and 48.8% anhedonia symptoms. After multivariable adjustment, only pain remained statistically significant with a hazard ratio (HR) 2.9 (95% CI 1.3-6.7; p = 0.01). For each 1 unit increase in GHS score, the HR for death was 0.987 (0.978-0.996; p = 0.006), indicating a worse reported QoL is related to shorter survival. Unmet needs were common: 25.9% wanted more information about their condition, 24.7% about their care and 21.2% about their treatment. 79.1% were concerned about the effect of their illness on family.
Conclusion: There is a high symptom burden in mesothelioma despite good baseline performance status. A worse QoL is associated with a worse survival. Unmet needs are common, perhaps highlighting a need for improved communication and information sharing.

Origine : SAGE Journals

Effects of S-1 combined with palliative care on immune function and quality of life of patients with advanced stomach cancer

WANG, Ying ; LI, Guozhong
Oncology letters, 08/2020, vol.20, n°2, p. 2021-2027

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Poor physical and mental health predicts prolonged grief disorder - a prospective, population-based cohort study on caregivers of patients at the end of life

LENGER, Maja Krarup ; NEERGAARD, Mette Asbjoern ; GULDIN, Mai-Britt ; NIELSEN, Mette Kjaergaard
PALLIATIVE MEDICINE, 23/08/2020, p. 1-9

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Evaluating the thresholds for clinical importance of the EORTC QLQ-C15-PAL in patients receiving palliative treatment

PILZ, Micha J. ; AARONSON, Neil K. ; ARRARAS, Juan I. ; CAOCCI, Giovanni ; EFFICACE, Fabio ; GROENVOLD, Mogens ; HOLZNER, Bernhard ; VAN LEEUWEN, Marieke ; LOTH, Fanny L. C. ; PETERSEN, Morten Aa ; RAMAGE, John ; TOMASZEWSKI, Krzysztof A. ; YOUNG, Teresa ; GIESINGER, Johannes M.
JOURNAL OF PALLIATIVE MEDICINE, 24/08/2020, Pagination inconnue

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