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The quality of dying and death for patients in intensive care units - a single center pilot study

CHOI, Yanghwan ; PARK, Myoungrin ; KANG, Da Hyun ; LEE, Jooseon ; MOON, Jae Young ; AHN, Heejoon
Acute and critical care, 08/2019, vol.34, n°3, p. 192-201

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Effects of expressing writing on organizational variables in palliative care health professionals - an explorative study

COSENTINO, Chiara ; CORTE, Cristina ; FIORESI, Elena ; MOLINA OJEDA, Fiorella ; PASTORE, Sonia ; SEVERGNINI, Fabiana ; SPACCI, Alessio ; ARTIOLI, Giovanna
Acta Bio-Medica, 11/11/2019, vol.90, n°11-S, p. 108-116

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Design and preliminary testing of the caregiver-centered communication questionnaire (CCCQ)

DEMIRIS, George ; DEKEYSER GANZ, Freda ; HAN, Claire J. ; PIKE, Kenneth ; PARKER OLIVER, Debra ; WASHINGTON, Karla
JOURNAL OF PALLIATIVE CARE, 07/11/2019, Pagination inconnue

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Commonly used screening instruments to identify frailty among community-dwelling older people in a general practice (primary care) setting - a study of diagnostic test accuracy

AMBAGTSHEER, Rachel C. ; VISVANATHAN, Renuka ; DENT, Elsa ; YU, Solomon ; SCHULTZ, Timothy J. ; BEILBY, Justin M. D.
The journals of gerontology. Series A, biological sciences and medical sciences, 05/11/2019, Pagination inconnue

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Australian long-term care personnel's knowledge and attitudes regarding palliative care for people with advanced dementia

LUCKETT, Tim ; LUSCOMBE, Georgina ; PHILLIPS, Jane ; BEATTIE, Elizabeth ; CHENOWETH, Lynnette ; DAVIDSON, Patricia M. ; GOODALL, Stephen ; POND, Dimity ; MITCHELL, Geoffrey ; AGAR, Meera
Dementia, 10/11/2019, Pagination inconnue

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Older people's preferences for prognostic information in a situation of serious illness with less than a year to live

JORGE, Rafaela ; TEIXEIRA, Andreia ; CALANZANI, Natália ; NUNES, Rui ; SOUSA, Liliana
Ciencia and saude coletiva, 2019, vol.24, n°11, p. 4313-4324

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More comprehensively measuring quality of life in life-threatening illness - the McGill quality of life questionnaire - expanded

COHEN, S. Robin ; RUSSELL, Lara B. ; LEIS, Anne ; SHAHIDI, Javad ; PORTERFIELD, Pat ; KUHL, David R. ; GADERMANN, Anne M. ; SAWATZKY, Richard
BMC palliative care, 31/10/2019, vol.18, n°1, p. 1-11

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Thème : Recherche - Evaluation - Méthodologie. Cote : eD15.00.02.02

QUALITE VIE ; MALADIE LETALE ; QUESTIONNAIRE ; CANADA

Background: Domains other than those commonly measured (physical, psychological, social, and sometimes existential/spiritual) are important to the quality of life of people with life-threatening illness. The McGill Quality of Life Questionnaire (MQOL) – Revised measures the four common domains. The aim of this study was to create a psychometrically sound instrument, MQOL – Expanded, to comprehensively measure quality of life by adding to MQOL-Revised the domains of cognition, healthcare, environment, (feeling like a) burden, and possibly, finance.
Methods: Confirmatory factor analyses were conducted on three datasets to ascertain whether seven new items belonged with existing MQOL-Revised domains, whether good model fit was obtained with their addition as five separate domains to MQOL-Revised, and whether a second-order factor representing overall quality of life was present. People with life-threatening illnesses (mainly cancer) or aged > 80 were recruited from 15 healthcare sites in seven Canadian provinces. Settings included: palliative home care and inpatient units; acute care units; oncology outpatient clinics.
Results: Good model fit was obtained when adding each of the five domains separately to MQOL-Revised and for the nine correlated domains. Fit was acceptable for a second-order factor model. The financial domain was removed because of low importance. The resulting MQOL-Expanded is a 21-item instrument with eight domains (fit of eight correlated domains: Comparative Fit Index = .96; Root Mean Square Error of Approximation = .033).
Conclusions: MQOL-Expanded builds on MQOL-Revised to more comprehensively measure the quality of life of people with life-threatening illness. Our analyses provide validity evidence for the MQOL-Expanded domain and summary scores; the need for further validation research is discussed. Use of MQOL-Expanded will enable a more holistic understanding of the quality of life of people with a life-threatening illness and the impact of treatments and interventions upon it. It will allow for a better understanding of less commonly assessed but important life domains (cognition, healthcare, environment, feeling like a burden) and their relationship to the more commonly assessed domains (physical, psychological, social, existential/spiritual).

Origine : PubMed

Dying in acute hospitals - voices of bereaved relatives

O COIMIN, Diarmuid ; PRIZEMAN, Geraldine ; KORN, Bettina ; DONNELLY, Sarah ; HYNES, Geralyn
BMC palliative care, 31/10/2019, vol.18, n°1, p. 1-16

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Brief English and Spanish survey detects change in response to advance care planning interventions

SHI, Ying ; BARNES, Deborah E. ; BOSCARDIN, John ; YOU, John J. ; HEYLAND, Daren K. ; VOLOW, Aiesha M. ; HOWARD, Michelle ; SUDORE, Rebecca L.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 17/09/2019, Pagination inconnue

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Quality of life in patients with advanced non-small-cell lung cancer receiving palliative chemotherapy

DAROSZEWSKI, Cyryl ; STASIEWICZ, Malgorzata ; JAZWINSKA-TARNAWSKA, Ewa ; RACHWALIK, Anna ; MURA, Ewa ; LUBOCH-KOWAL, Joanna ; DRYS, Andrzej ; BOGUCKI, Zdzislaw A. ; BRZECKA, Anna
Advances in experimental medicine and biology, 2019, vol.1160, p. 11-18

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An observational study on quality of life and preferences to sustain life in locked-in state

KUZMA-KOZAKIEWICZ, Magdalena ; ANDERSEN, Peter M. ; CIECWIERSKA, Katarzyna ; VAZQUEZ, Cynthia ; HELCZYK, Olga ; LOOSE, Markus ; UTTNER, Ingo ; LUDOLPH, Albert C. ; LULE, Dorothée
Neurology, 09/2019, vol.93, n°10, p. 938-945

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Psychometric assessment of the Chinese version of the problems and needs in palliative care questionnaire-short version in advanced cancer patients

WANG, Tao ; MOLASSIOTIS, Alex ; CHUNG, Betty Pui Man ; TAN, Jing-Yu
BMC palliative care, 06/08/2019, vol.18, n°1, p. 1-12

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Is the bereavement grief intensity of survivors linked with their perception of death quality?

WILSON, Donna M. ; COHEN, Joachim ; ELIASON, Cecilia ; DELIENS, Luc ; MAC LEOD, Rod ; HEWITT, Jessica A. ; HOUTTEKIER, Dirk
International Journal of Palliative Nursing, 08/2019, vol.25, n°8, p. 398-405

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Quality of life of older persons in nursing homes after the implementation of a knowledge-based palliative care intervention

BOKBERG, Christina ; BEHM, Lina ; AHLSTROM, Gerd
International journal of older people nursing, 12/07/2019, p. 1-11

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Présence d'un chat en unité de soins palliatifs - bénéfices et satisfaction pour les patients et les proches

BOESPFLUG, Olivia ; ADAM, Anne ; DUBOIS, Jocelyne ; SINCLAIR, Catherine ; ASTIER, Elsa
MEDECINE PALLIATIVE, 06/2019, vol.18, n°3, p. 143-148

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Critical care nurses' perceptions of parenteral and enteral nutrition at the end-of-life in South Korea

SEOL, Eun-Mi ; KOH, Chin Kang ; KIM, Eun Kyung
JOURNAL OF PALLIATIVE CARE, 18/07/2019, Pagination inconnue

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Which symptoms and problems do advanced cancer patients admitted to specialized palliative care report in addition to those included in the EORTC QLQ-C15-PAL? - a register-based national study

ROJAS-CONCHA, Leslye ; HANSEN, Maiken Bang ; PETERSEN, Morten Aagaard ; GROENVOLD, Mogens
Supportive care in cancer, 11/07/2019, p. 1-11

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Elements of intensive care bereavement follow-up services - a European survey

EGEROD, Ingrid ; KALDAN, Gudrun ; ALBARRAN, John ; COOMBS, Maureen ; MITCHELL, Marion ; LATOUR, Jos M.
Nursing in critical care, 07/2019, vol.24, n°4, p. 201-208

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How and how much is spirituality discussed in palliative care consultations for advanced cancer patients with and without a question prompt list?

BEST, Megan ; MCARDLE, Madeleine B. ; HUANG, Yi-Jing ; CLAYTON, Josephine ; BUTOW, Phyllis
Patient education and counseling, 19/06/2019, Pagination inconnue

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Attitude of nurses towards euthanasia - a cross-sectional study in Iran

SAFARPOUR, Hamid ; KEYKHA, Roghayeh ; VARASTEH, Saeideh ; SARGAZI, Venus ; MIRMORTAZAVI, Mahan ; TAVAKOLIAN, Najmeh
International Journal of Palliative Nursing, 06/2019, vol.25, n°6, p. 274-282

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