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RESEAU SOINS PALLIATIFS

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Clinical care conditions and needs of palliative care patients from five Italian regions - preliminary data of the DEMETRA project

SCACCABAROZZI, Gianlorenzo ; AMODIO, Emanuele ; RIVA, Luca ; CORLI, Oscar ; MALTONI, Marco ; DI SILVESTRE, Grazia ; TURRIZIANI, Adriana ; MORINO, Piero ; PELLEGRINI, Giacomo ; CRIPPA, Matteo
Healthcare, 20/07/2020, vol.8, n°3, p. 1-9

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Manuel de soins palliatifs - clinique, psychologie, éthique

LE BERRE, Rozenn
Dunod , 08/2020 , 1260 p.

Les soins palliatifs en milieu rural, c’est possible!

HAUTOT, Alice ; COLOMBEL, Patricia
REVUE DE L'INFIRMIERE, 10/2019, vol.68, n°254, p. 33-35

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Impact of the regional pediatric palliative care network on the care of children on long-term ventilation - could the availability of a residential solution into the network reduce the duration of intensive care unit staying for these patients?

RUSALEN, Francesca ; AGOSTO, Caterina ; BRUGNARO, Luca ; BENINI, Franca
Journal of pediatric intensive care, 06/2018, vol.7, n°2, p. 75-80

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A mapping study to guide a palliative approach to care

SAURMAN, Emily ; LYLE, David ; WENHAM, Sarah ; CUMMING, Melissa
Rural and remote health, 02/2019, vol.19, n°1, p. 1-7

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Les évolutions de la démarche palliative - entretien avec Régis Aubry

SARTHOU-LAJUS, Nathalie ; VERSPIEREN, Patrick
" La fin de vie ", Société d'éditions de revues , 2018 , p. 73-89

Development of empirical recommendations for regional hospice and palliative care networks in Germany - a qualitative study

HERBST, Franziska A. ; HECKEL, Maria ; STIEL, Stephanie ; OSTGATHE, Christoph
Zeitschrift fur evidenz, fortbildung und qualitat im gesundheitswesen, 24/12/2018, Pagination inconnue

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Thème : Santé.

ALLEMAGNE ; RECHERCHE QUALITATIVE ; RECOMMANDATION ; UNITE SOINS PALLIATIFS ; RESEAU SOINS PALLIATIFS

BACKGROUND: Internationally, efforts are underway to develop coordinated and standardized approaches for palliative care service delivery by improving service quality in hospice and palliative care networks. German legal regulations explicitly demand networking between hospice and palliative care providers. However, there is little research on models of cooperation and the building and development of hospice and palliative care networks. Research-based recommendations for network building and advancement are lacking.
OBJECTIVE: The study aim was to develop empirical recommendations for the building of new and advancement of existing hospice and palliative care networks in Bavaria, Germany.
METHODS: The project utilized a qualitative approach. The research project was structured in six sequential phases: 1) semi-structured individual interviews on status quo of networks, 2) a workshop including a focus group to develop definitions of key terms and prioritize major network themes, 3) semi-structured face-to-face interviews on factors enabling and inhibiting cooperation, 4) drafting of a recommendation for regional hospice and palliative care networks, 5) an online consensus survey questionnaire to rate relevance and feasibility of the draft recommendation and an internal consensus meeting to revise the draft, and 6) an expert workshop to develop examples of realization. Coordinators and chairpersons of 12 hospice and palliative care networks constitute the study population for study phases 1 to 3, 5, and 6. Network representatives partook in one (n=6), two (n=6), three (n=4), four (n=2), or all five (n=1) of the study phases 1, 2, 3, 5, and 6. Further experts participated in one (n=10) or both (n=1) of the phases 5 and 6.
RESULTS: Recommendations were drafted for six thematic fields: (i) missions and aims, (ii) roles and responsibilities, (iii) coordination, (iv) communication and information channels, (v) public visibility, and (vi) funding. The whole set of recommendations was rated by 90% of the participants to be fully or somewhat important for network building and development. A total of 22 recommendations was approved.
CONCLUSIONS: The call for establishing and developing standards for hospice and palliative care networks was situated within the current policy climate of Germany and the broader international community. The present recommendations can aid implementation of this request and have a strong relevance for practice.

Origine : PubMed

Dossier de presse - soins palliatifs et lutte contre la douleur : bilan d'étape des deux plans gouvernementaux

Ministère de l'emploi et de la solidarité
19/06/2000, p.1-18

Guide régional des soins palliatifs - Grand Est

Fonds Pour les Soins Palliatifs ; Malakoff Médéric
07/2017 , 27 p.

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Guide régional des soins palliatifs - Occitanie

Fonds Pour les Soins Palliatifs ; Malakoff Médéric
07/2017 , 21 p.

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Guide régional des soins palliatifs - Auvergne-Rhône-Alpes

Fonds Pour les Soins Palliatifs ; Malakoff Médéric
07/2017 , 25 p.

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Guide régional des soins palliatifs - Pays de la Loire

Fonds Pour les Soins Palliatifs ; Malakoff Médéric
07/2017 , 23 p.

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Fin de vie d'un enfant à domicile - le rôle des hospitalisations à domicile (HAD) pédiatriques

DELCROIX, Christine ; GRELLIER, Anne ; LESCOEUR, Brigitte ; QUESTROY, M. ; AUSSANT, F.
Médecine thérapeutique pédiatrie, 05-06/2009, n°3, p. 138-142

Defining provider-prioritized domains of quality in pediatric home-based hospice and palliative care - a study of the Ohio pediatric palliative care and end-of-life network

THIENPRAYOON, Rachel ; ALESSANDRINI, Evaline ; FRIMPONG-MANSO, Millicent ; GROSSOEHME, Daniel
JOURNAL OF PALLIATIVE MEDICINE, 10/2018, vol.21, n°10, p. 1414-1435

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Integrated palliative care networks from the perspectives of patients - a cross-sectional explorative study in five European countries

DEN HERDER-VAN DER EERDEN, Marlieke ; EBENAU, Anne ; PAYNE, Sheila ; PRESTON, Nancy ; RADBRUCH, Lukas ; LINGE-DAHL, Lisa ; CSIKOS, Agnes ; BUSA, Csilla ; VAN BEEK, Karen ; GROOT, Marieke M. ; VISSERS, Kris ; HASSELAAR, Jeroen
PALLIATIVE MEDICINE, Sage publications, 06/2018, vol.32, n°6, p. 1103-1113

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Comment accompagner le recueil des directives anticipées chez les personnes âgées résidents en EHPAD ?

BILLIET, Caroline
2012 , 34 p.

Prise en charge à domicile des patients en soins palliatifs par le médecin généraliste - analyse des pratiques au sein d’un réseau de soins palliatifs dans le sud de l’Essonne

AUSSERT-RAYMOND, Frédérique
2004 , 123 p.

Les enjeux de santé publique des réseaux de santé à partir de l’évaluation externe d’un réseau de soins palliatifs à domicile

PLU, Isabelle
2004 , 133 p.

Recent evidence on the inclusion of hospice and palliative care physicians in medicare shared savings program accountable care organization networks

DRIESSEN, Julia ; WEST, Turner
JOURNAL OF PALLIATIVE MEDICINE, 03/2018, vol.21, n°3, p. 373-375

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Évaluation de la garde du réseau de soins palliatifs Ensemble - enquête auprès des patients, de leur entourage et des médecins traitants : avis d'un comité d'experts

BIGARE, Marc
2016 , 76 p.

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