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An exploration of spousal caregivers’ well-being after the death of their partners who were older cancer patients - a phenomenological approach

VAN HOUT, E. ; PETERS, S. ; JANSEN, L. ; ROBER, P. ; VAN DEN AKKER, M.
European journal of oncology nursing, 01/08/2020, vol.47, p. 1-6

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Fostering existential maturity to manage terror in a pandemic

EMANUEL, Linda ; SOLOMON, Sheldon ; FITCHETT, George ; CHOCHINOV, Harvey Max ; HANDZO, George ; SCHOPPEE, Tasha ; WILKIE, Diana J.
JOURNAL OF PALLIATIVE MEDICINE, 17/06/2020, p. 1-7

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Improving care experiences for patients and caregivers at end of life - a systematic review

QUIGLEY, Denise D. ; MCCLESKEY, Sara G.
American journal of hospice and palliative medicine, 19/06/2020, Pagination inconnue

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Surrogate satisfaction with decision making after intracerebral hemorrhage

SAHGAL, Savina ; YANDE, Aneesha ; THOMPSON, Bradford B. ; CHEN, Emily P. ; FAGERLIN, Angela ; MORGENSTERN, Lewis B. ; ZAHURANEC, Darin B.
Neurocritical care, 15/06/2020, Pagination inconnue

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Thème : Soins.

PRISE DECISION ; PERSONNE CONFIANCE ; RESSENTI ; ETUDE PROSPECTIVE ; SATISFACTION

Background/Objective: Surrogate decision makers for patients with intracerebral hemorrhage (ICH) are frequently asked to make difficult decisions on use of life-sustaining treatments. We explored ICH surrogate satisfaction with decision making and experience of decision regret using validated measures in a prospective multicenter study.
Methods: Cases of non-traumatic ICH were enrolled from three hospitals (September 2015–December 2016), and surrogate decision makers were invited to complete a self-administered survey. The primary outcome was the 10-item decision-making subscale of the Family Satisfaction in the Intensive Care Unit scale (FSICU-DM, range 0–100, higher is greater satisfaction), and the secondary outcome was the decision regret scale (range 0–100, higher is greater regret). Linear regression models were used to assess the association between satisfaction with decision making and pre-specified covariates using manual backward selection.
Results: A total of 73 surrogates were approached for participation (in person or mail), with 48 surrogates returning a completed survey (median surrogate age 60.5 years, 63% female, 77% white). Patients had a median age of 72.5, 54% were female, with a median admission Glasgow coma scale of 10, in-hospital mortality of 31%, and 56% with an in-hospital DNR order. Physicians commonly made treatment recommendation (> 50%) regarding brain surgery or transitions to comfort measures, but rarely made recommendations (< 20%) regarding DNR orders. Surrogate satisfaction with decision making was generally high (median FSICU-DM 85, IQR 57.5–95). Factors associated with higher satisfaction on multivariable analysis included greater use of shared decision making (P < 0.0001), younger patient age (p = 0.02), ICH score of 3 or higher (p = 0.03), and surrogate relationship (spouse vs. other, p = 0.02). Timing of DNR orders was not associated with satisfaction (P > 0.25). Decision regret scores were generally low (median 12.5, IQR 0–31.3).
Conclusions: Considering the severity and abruptness of ICH, it is reassuring that surrogate satisfaction with decision making was generally high and regret was generally low. However, more work is needed to define the appropriate outcome measures and optimal methods of recruitment for studies of surrogate decision makers of ICH patients.

Origine : DOI.org (Crossref

"This is your golden time. You enjoy it and you’ve plenty time for crying after" - how dysphagia impacts family caregivers of people with amyotrophic lateral sclerosis - a qualitative study

LISIECKA, Dominika ; KELLY, Helen ; JACKSON, Jeanne
PALLIATIVE MEDICINE, 17/06/2020, Pagination inconnue

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Nurses’ experiences and perspectives on collaborative discharge planning when patients receiving palliative care for cancer are discharged home from hospitals

LUNDERENG, Elias David ; DIHLE, Alfhild ; STEINDAL, Simen A.
Journal of clinical nursing, 28/06/2020, p. 1-10

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Nurse graduates' perceived educational needs after the death of a patient - a descriptive qualitative research study

CADAVERO, Allen A. ; SHARTS-HOPKO, Nancy C. ; GRANGER, Bradi B.
The journal of continuing education in nursing, 01/06/2020, vol.51, n°6, p. 267-273

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Perceptions of adolescents with cancer undergoing palliative care about their illness process

GUIMARAES, Tuani Magalhães ; PACHECO, Sandra Teixeira de Araújo ; NUNES, Michelle Darezzo Rodrigues ; SILVA, Liliane Faria da
Revista gaúcha de enfermagem, 2020, vol.41, p. 1-9

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Management of decision of withholding and withdrawing life-sustaining treatments in French EDs

THE LAT GROUP ; DOUPLAT, Marion ; FRATICELLI, Laurie ; CLAUSTRE, Clement ; PEIRETTI, Alexandra ; SERRE, Patrice ; BISCHOFF, Magali ; JACQUIN, Laurent ; FREYSSENGE, Julie ; SCHOTT, Anne-Marie ; TAZAROURTE, Karim ; FRUGIER, Soizic ; KHOURY, Carlos E. L.
Scandinavian journal of trauma, resuscitation and emergency medicine, 08/06/2020, vol.28, n°1, p. 1-10

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Women experience with newly diagnosed cervical cancer in Indonesia

NASTITI, Aria Aulia ; PRADANIE, Retnayu ; SUSANTI, Erna ; TRISTIANA, Rr Dian
MEDECINE PALLIATIVE, 06/2020, vol.19, n°3, p. 160-167

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Allied health care providers participating in medical assistance in dying - perceptions of support

MILLS, Anneliese ; WORTZMAN, Rachel ; BEAN, Sally ; SELBY, Debbie
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 06/2020, vol.22, n°3, p. 220-228

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The relationship of perceptions of hospice and palliative care with emotional intelligence and cognitive empathy in nursing students

KANG, Se-Won ; CHOI, Eun-Jin
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 06/2020, vol.22, n°3, p. 213-219

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Confidence and competence in palliative care - a comparison of traditional and nontraditional transfer nursing students' lived learning experiences

ROTTER, Briana ; BRABAND, Barb
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 06/2020, vol.22, n°3, p. 196-203

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Living in the mo(ve)ment - an ethnographic exploration of hospice patients' experiences of participating in Tai Chi

BRADSHAW, Andy ; PHOENIX, Cassandra ; BURKE, Shauna M.
Psychology of sport and exercice, Elsevier, 07/2020, vol.49, pagination inconnue

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Personal narratives of nurses who care for patients at the end of life

PEREZ-VEGA, Maria Elena ; CIBANAL-JUAN, Luis
International Journal of Palliative Nursing, 01/2020, vol.26, n°1, p. 14-20

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Dealing with patient death on international health electives - a qualitative study of residents' experiences

BASHIR, M. Usmaan ; NORDHUES, Hannah C. ; MERRY, Stephen P. ; SAWATSKY, Adam P.
Academic Medicine, 01/01/2019, vol.94, n°8, p. 1170-1177

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Transitioning to life in a nursing home - the potential role of palliative care

HALIFAX, Elizabeth ; BUI, Nhat Minh ; HUNT, Lauren J. ; STEPHENS, Caroline E.
JOURNAL OF PALLIATIVE CARE, 27/02/2020, Pagination inconnue

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The life experiences among primary family caregivers of home-based palliative care

WU, Meng-Ping ; HUANG, Sheng-Jean ; TSAO, Lee-Ing
The American journal of hospice and palliative care, 01/03/2020, Pagination inconnue

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The rocks and hard places of MAiD - a qualitative study of nursing practice in the context of legislated assisted death

PESUT, Barbara ; THORNE, Sally ; SCHILLER, Catharine J. ; GREIG, Madeleine ; ROUSSEL, Josette
BMC nursing, 2020, vol.19, p. 1-14

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Areas of control desired by patients and families referred to hospice care - perspectives of hospice admissions staff

NOH, Hyunjin
Journal of applied gerontology, 01/01/2019, vol.38, n°5, p. 656-672

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