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Si la mort t'a pris quelque chose rends-le - le livre de Carl

AIDT, Naja Marie
Do Editions , 09/2020 , 184 p.

Sortir de l'ombre - les frères et soeurs d'enfants gravement malades

SCIBILIA, Muriel
Editions Slatkine , 09/2020 , 222 p.

Riding an elephant - a qualitative study of nurses' moral journeys in the context of medical assistance in dying (MAiD)

PESUT, Barbara ; THORNE, Sally ; STORCH, Janet ; CHAMBAERE, Kenneth ; GREIG, Madeleine ; BURGESS, Michael
Journal of clinical nursing, 22/07/2020, p. 3870-3881

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I may never see the ocean again - loss and grief among older adults during the covid-19 pandemic

ISHIKAWA, Rachel Zack
Psychological trauma, 08/2020, vol.12, n°S1, p. S85-S86

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Caregiving experience and other factors associated with having end-of-life discussions - a cross-sectional study of a general Japanese population

HANARI, Kyoko ; SUGIYAMA, Takehiro ; INOUE, Megumi ; MAYERS, Thomas ; TAMIYA, Nanako
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 19/08/2020, p. 1-51

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Experiences of participation in bereavement groups from significant others' perspectives - a qualitative study

NAPPA, Ulla ; BJORKMAN-RANDSTROM, Kerstin
BMC palliative care, 16/08/2020, vol.19, n°1, p. 1-10

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"The challenge of joining all the pieces together" - nurses' experience of palliative care for older people with advanced dementia living in residential aged care units

PENNBRANT, Sandra ; HJORTON, Cecilia ; NILSSON, Caroline ; KARLSSON, Margareta
Journal of clinical nursing, 15/07/2020, Pagination inconnue

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Introducing the trajectory Touchpoint technique - a systematic methodology for capturing the service experiences of palliative care patients and their families

SUDBURY-RILEY, Lynn ; HUNTER-JONES, Philippa ; AL-ABDIN, Ahmed
BMC palliative care, 10/07/2020, vol.19, n°1, 13 p.

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Experience of caregivers supporting a patient through voluntarily stopping eating and drinking

LOWERS, Jane ; HUGHES, Sean ; PRESTON, Nancy
JOURNAL OF PALLIATIVE MEDICINE, 09/07/2020, Pagination inconnue

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Impacts of social distancing on cancer care during covid-19 pandemic - Hong Kong experience

CHAN, Wing-Lok ; HO, Patty ; YUEN, Kwok-Keung
Palliative and supportive care, 29/06/2020, 8 p.

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"I could never prepare for something like the death of my own child" - parental perspectives on preparedness at end of life for children with complex chronic conditions

BOGETZ, Jori F. ; REVETTE, Anna ; ROSENBERG, Abby R. ; DECOURCEY, Danielle
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 03/07/2020, 10 p.

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"if I were to do this, how would I experience it?" developing a theoretical framework for exploring pharmacists' practice in the domain of assisted dying

WOODS, Phillip ; KING, Michelle A. ; MEY, Amary ; SCHINDEL, Theresa J.
Research in social and administrative pharmacy, 02/06/2020, Pagination inconnue

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An exploration of spousal caregivers’ well-being after the death of their partners who were older cancer patients - a phenomenological approach

VAN HOUT, E. ; PETERS, S. ; JANSEN, L. ; ROBER, P. ; VAN DEN AKKER, M.
European journal of oncology nursing, 01/08/2020, vol.47, p. 1-6

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Surrogate satisfaction with decision making after intracerebral hemorrhage

SAHGAL, Savina ; YANDE, Aneesha ; THOMPSON, Bradford B. ; CHEN, Emily P. ; FAGERLIN, Angela ; MORGENSTERN, Lewis B. ; ZAHURANEC, Darin B.
Neurocritical care, 15/06/2020, Pagination inconnue

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Thème : Soins.

PRISE DECISION ; PERSONNE CONFIANCE ; RESSENTI ; ETUDE PROSPECTIVE ; SATISFACTION

Background/Objective: Surrogate decision makers for patients with intracerebral hemorrhage (ICH) are frequently asked to make difficult decisions on use of life-sustaining treatments. We explored ICH surrogate satisfaction with decision making and experience of decision regret using validated measures in a prospective multicenter study.
Methods: Cases of non-traumatic ICH were enrolled from three hospitals (September 2015–December 2016), and surrogate decision makers were invited to complete a self-administered survey. The primary outcome was the 10-item decision-making subscale of the Family Satisfaction in the Intensive Care Unit scale (FSICU-DM, range 0–100, higher is greater satisfaction), and the secondary outcome was the decision regret scale (range 0–100, higher is greater regret). Linear regression models were used to assess the association between satisfaction with decision making and pre-specified covariates using manual backward selection.
Results: A total of 73 surrogates were approached for participation (in person or mail), with 48 surrogates returning a completed survey (median surrogate age 60.5 years, 63% female, 77% white). Patients had a median age of 72.5, 54% were female, with a median admission Glasgow coma scale of 10, in-hospital mortality of 31%, and 56% with an in-hospital DNR order. Physicians commonly made treatment recommendation (> 50%) regarding brain surgery or transitions to comfort measures, but rarely made recommendations (< 20%) regarding DNR orders. Surrogate satisfaction with decision making was generally high (median FSICU-DM 85, IQR 57.5–95). Factors associated with higher satisfaction on multivariable analysis included greater use of shared decision making (P < 0.0001), younger patient age (p = 0.02), ICH score of 3 or higher (p = 0.03), and surrogate relationship (spouse vs. other, p = 0.02). Timing of DNR orders was not associated with satisfaction (P > 0.25). Decision regret scores were generally low (median 12.5, IQR 0–31.3).
Conclusions: Considering the severity and abruptness of ICH, it is reassuring that surrogate satisfaction with decision making was generally high and regret was generally low. However, more work is needed to define the appropriate outcome measures and optimal methods of recruitment for studies of surrogate decision makers of ICH patients.

Origine : DOI.org (Crossref

"This is your golden time. You enjoy it and you’ve plenty time for crying after" - how dysphagia impacts family caregivers of people with amyotrophic lateral sclerosis - a qualitative study

LISIECKA, Dominika ; KELLY, Helen ; JACKSON, Jeanne
PALLIATIVE MEDICINE, 17/06/2020, Pagination inconnue

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Fostering existential maturity to manage terror in a pandemic

EMANUEL, Linda ; SOLOMON, Sheldon ; FITCHETT, George ; CHOCHINOV, Harvey Max ; HANDZO, George ; SCHOPPEE, Tasha ; WILKIE, Diana J.
JOURNAL OF PALLIATIVE MEDICINE, 17/06/2020, p. 1-7

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Improving care experiences for patients and caregivers at end of life - a systematic review

QUIGLEY, Denise D. ; MCCLESKEY, Sara G.
American journal of hospice and palliative medicine, 19/06/2020, Pagination inconnue

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Nurses’ experiences and perspectives on collaborative discharge planning when patients receiving palliative care for cancer are discharged home from hospitals

LUNDERENG, Elias David ; DIHLE, Alfhild ; STEINDAL, Simen A.
Journal of clinical nursing, 28/06/2020, p. 1-10

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Nurse graduates' perceived educational needs after the death of a patient - a descriptive qualitative research study

CADAVERO, Allen A. ; SHARTS-HOPKO, Nancy C. ; GRANGER, Bradi B.
The journal of continuing education in nursing, 01/06/2020, vol.51, n°6, p. 267-273

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Perceptions of adolescents with cancer undergoing palliative care about their illness process

GUIMARAES, Tuani Magalhães ; PACHECO, Sandra Teixeira de Araújo ; NUNES, Michelle Darezzo Rodrigues ; SILVA, Liliane Faria da
Revista gaúcha de enfermagem, 2020, vol.41, p. 1-9

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