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SATISFACTION

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Survey of satisfaction regarding palliative care provided to patients who died at home or in a hospital

KATSUKI, Masaaki ; NAKAMATA, Momoka ; EZAKI, Arisa ; YAMANAKA, Sayaka ; IMAMURA, Sakiko ; HONDA, Chika ; KUBOTA, Toshio ; MORIUCHI, Hiroshi ; IRIKURA, Mitsuru
International Journal of Palliative Nursing, 02/08/2020, vol.26, n°6, p. 272-277

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Reliability and validity testing of the FAMCARE-2 scale - Thai translation

OORAIKUL, Ladarat ; WIROJRATANA, Virapun ; PHUACKCHANTUCK, Rochana ; CHOMPUKEAW, Payuree ; KHAISUWAN, Chiraporn
Asia-Pacific journal of oncology nursing, 09/2020, vol.7, n°3, p. 280-286

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Surrogate satisfaction with decision making after intracerebral hemorrhage

SAHGAL, Savina ; YANDE, Aneesha ; THOMPSON, Bradford B. ; CHEN, Emily P. ; FAGERLIN, Angela ; MORGENSTERN, Lewis B. ; ZAHURANEC, Darin B.
Neurocritical care, 15/06/2020, Pagination inconnue

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Thème : Soins.

PRISE DECISION ; PERSONNE CONFIANCE ; RESSENTI ; ETUDE PROSPECTIVE ; SATISFACTION

Background/Objective: Surrogate decision makers for patients with intracerebral hemorrhage (ICH) are frequently asked to make difficult decisions on use of life-sustaining treatments. We explored ICH surrogate satisfaction with decision making and experience of decision regret using validated measures in a prospective multicenter study.
Methods: Cases of non-traumatic ICH were enrolled from three hospitals (September 2015–December 2016), and surrogate decision makers were invited to complete a self-administered survey. The primary outcome was the 10-item decision-making subscale of the Family Satisfaction in the Intensive Care Unit scale (FSICU-DM, range 0–100, higher is greater satisfaction), and the secondary outcome was the decision regret scale (range 0–100, higher is greater regret). Linear regression models were used to assess the association between satisfaction with decision making and pre-specified covariates using manual backward selection.
Results: A total of 73 surrogates were approached for participation (in person or mail), with 48 surrogates returning a completed survey (median surrogate age 60.5 years, 63% female, 77% white). Patients had a median age of 72.5, 54% were female, with a median admission Glasgow coma scale of 10, in-hospital mortality of 31%, and 56% with an in-hospital DNR order. Physicians commonly made treatment recommendation (> 50%) regarding brain surgery or transitions to comfort measures, but rarely made recommendations (< 20%) regarding DNR orders. Surrogate satisfaction with decision making was generally high (median FSICU-DM 85, IQR 57.5–95). Factors associated with higher satisfaction on multivariable analysis included greater use of shared decision making (P < 0.0001), younger patient age (p = 0.02), ICH score of 3 or higher (p = 0.03), and surrogate relationship (spouse vs. other, p = 0.02). Timing of DNR orders was not associated with satisfaction (P > 0.25). Decision regret scores were generally low (median 12.5, IQR 0–31.3).
Conclusions: Considering the severity and abruptness of ICH, it is reassuring that surrogate satisfaction with decision making was generally high and regret was generally low. However, more work is needed to define the appropriate outcome measures and optimal methods of recruitment for studies of surrogate decision makers of ICH patients.

Origine : DOI.org (Crossref

Relatives of deceased patients with metastatic lung cancer’s views on the achievement of treatment goals and the choice to start treatment - a structured telephone interview study

MIERAS, Adinda ; ONWUTEAKA-PHILIPSEN, Bregje D. ; BECKER-COMMISSARIS, Annemarie ; BOS, Jose C. M. ; PASMAN, H. Roeline W.
BMC palliative care, 19/06/2020, vol.19, n°1, p. 1-9

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Improving care experiences for patients and caregivers at end of life - a systematic review

QUIGLEY, Denise D. ; MCCLESKEY, Sara G.
American journal of hospice and palliative medicine, 19/06/2020, Pagination inconnue

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The ACS-TQIP palliative care guidelines at two level I trauma centres - a prospective study of patient and caregiver satisfaction

VOGEL, Rebecca ; MCGRAW, Constance ; REDMOND, Diane ; BOURG, Pamela ; DREIMAN, Chester ; TANNER, Allen ; LYNCH, Neal ; BAR-OR, David
BMJ supportive and palliative care, 24/06/2020, Pagination inconnue

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Experiences of relatives with outpatient palliative care - a cross-sectional study

FRINGER, André ; STANGLE, Sabrina ; BISCHOFBERGER, Iren ; BUCHE, Daniel ; PRAXMARER, Renate ; CH. OTT, Stefan ; SCHNEPP, Wilfried
International Journal of Palliative Nursing, 02/06/2020, vol.26, n°5, p. 230-237

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Impact of a nurse-led advance care planning intervention on satisfaction, health-related quality of life, and health care utilization among patients with severe respiratory disease - a randomized patient-preference trial

SINCLAIR, Craig ; AURET, Kirsten Anne ; EVANS, Sharon Frances ; JANE, Fiona ; DORMER, Siobhan ; WILKINSON, Anne ; GREEVE, Kim ; KOAY, M. Audrey ; BRIMS, Fraser
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 04/2020, vol.59, n°4, p. 848-855

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Impact of informational and relational continuity for people with palliative care needs - a mixed methods rapid review

HUDSON, Briony F. ; BEST, Sabine ; STONE, Patrick ; NOBLE, Thomas Bill
BMJ Open, 01/01/2019, vol.9, n°5, p. 1-14

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Evaluation of measurement equivalence of the family satisfaction with the end-of-life care (FAMCARE) - tests of differential item functioning between hispanic and non-hispanic white caregivers

TERESI, Jeanne A. ; OCEPEK-WELIKSON, Katja ; RAMIREZ, Mildred ; KLEINMAN, Marjorie ; ORNSTEIN, Katherine ; SIU, Albert ; LUCHSINGER, Jose
Palliative and supportive care, 19/03/2020, p. 1-13

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Satisfaction with work-family balance mediates the relationship between workplace social support and depression among hospice nurses

BARNETT, Michael D. ; MARTIN, Kelly J. ; GARZA, Caitlin J.
Journal of nursing scholarship, 01/01/2019, vol.51, n°2, p. 187-194

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Evaluation des soins palliatifs à domicile - intérêt du regard croisé entourage/professionnels

WIRTH, Mathilde ; TAFFET, Lynda ; ROTH, Marianne ; EMY, Sylvain ; PICARD, Hervé
MEDECINE PALLIATIVE, 12/2019, vol.18, n°6, p. 287-292

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Until death do us part - the codevelopment of life satisfaction in couples preceding the death of one partner

WUNSCHE, Jenna ; WEIDMANN, Rebekka ; GROB, Alexander
Journal of personality and social psychology, 09/12/2019, Pagination inconnue

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Comfort and satisfaction with care of home-dwelling dementia patients at the end-of-life

TAY, Ri Yin ; HUM, Allyn YM ; ALI, Noorhazlina B. ; LEONG, Ian YO ; WU, Huei Yaw ; CHIN, Jing Jih ; LEE, Angel OK ; KOH, Mervyn YH
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 05/2020, vol.59, n°5, p. 1019-1032

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The experiences of family caregivers at the end of life: suffering, compassion satisfaction and support of health care professionals - experiences of caregivers at the end of life

ORTEGA-GALAN, Angela Maria ; RUIZ-FERNANDEZ, Maria Dolores ; CARMONA-REGA, Maria Inés ; CABRERA-TROYA, José ; ORTIZ-AMO, Rocio ; IBANEZ-MASERO, Olivia
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 10/2019, vol.21, n°5, p. 438-444

Satisfaction with hospital care at the end of life

ZAMORA MUNOZ, M. J. ; PRIEGO VALLADARES, M. ; VAN-DER HOFSTADT ROMAN, C. J. ; TIRADO GONZALEZ, S. ; PORTILLA-TAMARIT, I. ; RODRIGUEZ-MARIN, J.
Revista clinica Espanola, 08/11/2019, Pagination inconnue

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Communication quality predicts psychological well-being and satisfaction in family surrogates of hospitalized older adults - an observational study

TORKE, Alexia M. ; CALLAHAN, Christopher M. ; SACHS, Greg A. ; WOCIAL, Lucia D. ; HELFT, Paul R. ; MONAHAN, Patrick O. ; SLAVEN, James E. ; MONTZ, Kianna ; BURKE, Emily S. ; INGER, Lev
Journal of general internal medicine, 01/01/2018, vol.33, n°3, p. 298-304

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Family caregivers' satisfaction with specialized end-of-life care provided at home - assessment of the psychometric characteristics of the Icelandic version of the family assessment of treatment at the end of life questionnaire

HJORLEIFSDOTTIR, Elísabet ; EINARSDOTTIR, Audur ; OSKARSSON, Gudmundur Kristjan ; FRIMANNSSON, Gudmundur Heidar
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 10/2019, vol.21, n°5, p. 412-421

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Work satisfaction among hospice and palliative nurses

HEAD, Barbara ; MIDDLETON, Alyssa ; ZEIGLER, Craig
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 10/2019, vol.21, n°5, p. E1-E11

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After the burden is lifted - caregivers' recovery of life satisfaction after the death or recovery of a spouse

LANGNER, Laura A. ; FURSTENBERG, Frank F.
The Journals of gerontology. Series B, psychological sciences and social sciences, 10/09/2019, p. 1-26

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