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Fins de vie, éthique et société

HIRSCH, Emmanuel
Erès , 2016 , 856 p.

Quality assessments of end-of-life care by medical record review for patients dying in intensive care units in Taiwan

LO, Mei-Ling ; HUANG, Chung-Chi ; HU, Tsung-Hui ; CHOU, Wen-Chi ; CHUANG, Li-Pang ; CHIANG, Ming Chu ; WEN, Fur-Hsing ; TANG, Siew Tzuh
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 07/07/2020, Pagination inconnue

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Effectiveness of a traditional training method in increasing long-term end-of-life care perception and clinical competency among oncology nurses - a pilot clinical trial

OMIDI, Khaled ; DEHGHAN, Mahlagha ; SHAHRBABAKI, Parvin Mangolian
Asia-Pacific journal of oncology nursing, 09/2020, vol.7, n°3, p. 287-294

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Goals of care in a pandemic - our experience and recommendations

ADAMS, Catherine
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 07/2020, vol.60, n°1, p. e15-e17

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Relationship between perceptions of treatment goals and psychological distress in patients with advanced cancer

EL-JAWAHRI, Areej ; FORST, Deborah ; FENECH, Alyssa ; BRENNER, Keri O. ; JANKOWSKI, Amanda L. ; WALDMAN, Lauren ; SERENO, Isabella ; NIPP, Ryan ; GREER, Joseph A. ; TRAEGER, Lara ; JACKSON, Vicki ; TEMEL, Jennifer
Journal of the national comprehensive cancer network, 07/2020, vol.18, n°7, p. 849-855

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Spiritual care provision to end of life patients - a systematic literature review

BATSTONE, Elizabeth ; BAILEY, Cara ; HALLETT, Nutmeg
Journal of clinical nursing, 09/07/2020, 16 p.

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What is good advance care planning according to hospitalized palliative patients and their families? - an explorative study

VANDERHAEGHEN, Birgit ; BOSSUYT, Inge ; MENTEN, Johan ; ROBER, Peter
JOURNAL OF PALLIATIVE CARE, 08/07/2020, Pagination inconnue

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A mixed-methods quasi-experimental study on perspectives among physicians and nurses regarding use of palliative care teams in the pediatric intensive care unit after out-of-hospital cardiac arrest

BROMAN, Alia ; WILLIAMS, Cydni ; MACAULEY, Robert ; CARNEY, Patricia A.
The American journal of hospice and palliative care, 08/07/2020, 8 p.

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Patient risk factor profiles associated with the timing of goals-of-care consultation before death - a classification and regression tree analysis

STARR, Lauren T. ; ULRICH, Connie M. ; JUNKER, Paul ; HUANG, Liming ; O'CONNOR, Nina R. ; MEGHANI, Salimah H.
The American journal of hospice and palliative care, 10/2020, vol.37, n°10, p. 767-778

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Development of a short form of the questionnaire quality from the patient's perspective for palliative care (QPP-PC)

SANDSDALEN, Tuva ; GRONDAHL, Vigdis Abrahamsen ; WILDE-LARSSON, Bodil
Journal of multidisciplinary healthcare, 2020, vol.13, p. 495-506

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Live discharge from hospice care - psychosocial challenges and opportunities

WLADKOWSKI, Stephanie P. ; WALLACE, Cara L.
Social work in health care, 02/07/2020, p. 1-15

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Examination and analysis of after-hours calls in hospice

MAYAHARA, Masako ; FOGG, Louis
The American journal of hospice and palliative care, 05/2020, vol.37, n°5, p. 324-328

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Participating in the personal care of a person living with a life-limiting illness in a hospice inpatient setting - the informal caregiver's perspective

MCPHERSON, Lorraine ; MILLIGAN, Stuart ; STEVENS, Elaine
International Journal of Palliative Nursing, 02/06/2020, vol.26, n°5, p. 246-257

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Thème : Soins.

RECHERCHE QUALITATIVE ; AIDANT ; UNITE SOINS PALLIATIFS ; SOIN

Methods: Using semi-structured interviews, this descriptive qualitative research study examined informal caregivers' perspectives of participating in the personal care of a person living with a life-limiting illness within one hospice inpatient setting. Some 10 principal, informal caregivers of hospice inpatients were recruited by means of purposive sampling, using posters displayed in the hospice inpatient unit. Thus, participation was entirely ‘opt-in’. A flash card was displayed at the beginning of each interview to determine a definition of personal care. Field notes and digital audio recording were used to capture data collected.
Results: Data were thematically analysed and demonstrated that informal caregivers' perceptions of personal care included everything that allowed the patient to remain the person they were. Informal caregivers reported an acceptable balance between being able to carry out personal care and hospice nursing staff involvement, despite no discussions being carried out to establish their wishes. Prior experiences of informal caregiving, and individual caregiver preparedness, contributed to negative and positive feelings about participating in personal care. Informal caregivers reported additional support and education needs associated with being able to participate in the personal care of patients on discharge and in the future.
Conclusions: The emergent themes provide palliative care practitioners with direction for professional practice and research around supporting informal caregivers participating in personal care. Healthcare professionals need to clarify terminology of personal care by having dialogues with informal caregivers and acting on these accordingly. However, not all informal caregivers want such conversations. Consequently, healthcare professionals should approach this topic sensitively. Healthcare professionals ought to be asking informal caregivers if they wish to participate in personal care. Hospice nurses need to engage, support and educate informal caregivers about personal care. Furthermore, they should help to maintain and develop the skills of those informal caregivers who want to continue to play this role and not allow them to become deskilled.

Origine : DOI.org (Crossref

Prendre le temps de la toilette mortuaire

BECQUET, Stéphanie ; CHOQUET, Camille ; GOUBIN, Maryline ; LECOANET, Claire ; SALGARELO, Eve-Laure ; VEYRET, Patricia
JALMALV JUSQU A LA MORT ACCOMPAGNER LA VIE, 25/06/2020, n°141, p. 69-77

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Prendre soin de la personne - pour une éthique de la personnalisation dans les pratiques soignantes

HONORE, Bernard
Seli Arslan , 05/2020 , 155 p.

Sex differences in "do not attempt resuscitation" orders after out-of-hospital cardiac arrest and the relationship to critical hospital interventions

PERMAN, Sarah M. ; SIRY, Bonnie J. ; GINDE, Adit A. ; GROSSESTREUER, Anne V. ; ABELLA, Benjamin S. ; DAUGHERTY, Stacie L. ; HAVRANEK, Edward P.
Clinical therapeutics, 01/01/2019, vol.41, n°6, p. 1029-1037

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Covid-19 - impact on cancer workforce and delivery of care

MAYOR, Susan
The Lancet. Oncology, 05/2020, vol.21, n°5, p. 633

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On being an elder in a pandemic

CHURCHILL, Larry R.
The Hastings Center, 13/04/2020, p. 1-2

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La fin de vie en EHPAD des personnes âgées psychodépendantes

DAVID-SOUCHOT, Véronique ; CAMUS, Tony-Marc
163 p.

Trends in place of death in a super-aged society - a population-based study, 1998-2017

KOYAMA, Toshihiro ; HAGIYA, Hideharu ; FUNAHASHI, Tomoko ; ZAMAMI, Yoshito ; YAMAGISHI, Miyu ; ONOUE, Hiroshi ; TERATANI, Yusuke ; MIKAMI, Naoko ; SHINOMIYA, Kazuaki ; KITAMURA, Yoshihisa ; SENDO, Toshiaki ; HINOTSU, Shiro ; KANO, Mitsunobu R.
JOURNAL OF PALLIATIVE MEDICINE, 07/2020, vol.23, n°7, p. 950-956

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