VigiPallia : Résultats

SOIN

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Frailty differences in older adults’ use of informal and formal care

LAMBOTTE, Deborah ; DE DONDER, Liesbeth ; VAN REGENMORTEL, Sofie ; FRET, Bram ; DURY, Sarah ; SMETCOREN, An-Sofie ; DIERCKX, Eva ; DE WITTE, Nico ; VERTE, Dominique ; KARDOL, Martinus J. M.
Archives of gerontology and geriatrics, 01/11/2018, vol.79, p. 69-77

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Initial validation of a patient-reported measure of compassion - determining the content validity and clinical sensibility among patients living with a life-limiting and incurable illness

SINCLAIR, Shane ; JAGGI, Priya ; HACK, Thomas F. ; RUSSELL, Lara ; MAC CLEMENT, Susan E. ; CUTHBERTSON, Lena ; SELMAN, Lucy E. ; LEGET, Carlo
The patient, 22/01/2020, Pagination inconnue

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Thème : Soins.

COMPASSION ; SOIN ; EVALUATION ; QUALITE SOIN ; MALADIE LETALE

BACKGROUND: Although compassionate care is considered a cornerstone of quality palliative care, there is a paucity of valid and reliable measures to study, assess, and evaluate how patients experience compassion/compassionate care in their care.
OBJECTIVE: The aim was to develop a patient-reported compassion measure for use in research and clinical practice with established content-related validity evidence for the items, question stems, and response scale.
METHODS: Content validation for an initial 109 items was conducted through a two-round modified Delphi technique, followed by cognitive interviews with patients. A panel of international Subject Matter Experts (SMEs) and a Patient Advisory Group (PAG) assessed the items for their relevancy to their associated domain of compassion, yielding an Item-level Content Validity Index (I-CVI), which was used to determine content modifications. The SMEs and the PAG also provided narrative feedback on the clarity, flow, and wording of the instructions, questions, and response scale, with items being modified accordingly. Cognitive interviews were conducted with 16 patients to further assess the clarity, comprehensibility, and readability of each item within the revised item pool.
RESULTS: The first round of the Delphi review produced an overall CVI of 72% among SMEs and 80% among the PAG for the 109 items. Delphi panelists then reviewed a revised measure containing 84 items, generating an overall CVI of 84% for SMEs and 86% for the PAG. Sixty-eight items underwent further testing via cognitive interviews with patients, resulting in an additional 14 items being removed.
CONCLUSIONS: Having established this initial validity evidence, further testing to assess internal consistency, test-retest reliability, factor structure, and relationships to other variables is required to produce the first valid, reliable, and clinically informed patient-reported measure of compassion.

Origine : PubMed

Clinical trial participation and aggressive care at the end of life in patients with ovarian cancer

NITECKI, Roni ; BERCOW, Alexandra S. ; GOCKLEY, Allison A. ; LEE, Hang ; PENSON, Richard T. ; GROWDON, Whitfield B.
International journal of gynecological cancer, 06/01/2020, Pagination inconnue

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Directives anticipées et travail social - le rôle du moniteur éducateur dans la dimension éducative du soin

MIKANGA, Emmanuelle ; COSNARD, Stéphanie
JALMALV JUSQU A LA MORT ACCOMPAGNER LA VIE, PUG, 12/2019, n°139, p. 113-123

EAPC atlas of palliative care in Europe 2019

ARIAS-CASAIS, Natalia ; GARRALDA, Eduardo ; RHEE, John Y. ; LIMA, Liliana de ; PONS, Juan José ; CLARK, David ; HASSELAAR, Jeroen ; LING, Julie ; MOSOIU, Daniela ; CENTENO, Carlos
European association for palliative care , 2019 , 197 p.

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The experiences of family caregivers at the end of life: suffering, compassion satisfaction and support of health care professionals - experiences of caregivers at the end of life

ORTEGA-GALAN, Angela Maria ; RUIZ-FERNANDEZ, Maria Dolores ; CARMONA-REGA, Maria Inés ; CABRERA-TROYA, José ; ORTIZ-AMO, Rocio ; IBANEZ-MASERO, Olivia
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 10/2019, vol.21, n°5, p. 438-444

Intravenous lidocaine administered as twice daily bolus and continuous infusion for intractable cancer pain and wound care pain

KINTZEL, Polly E. ; KNOL, Jared D. ; ROE, Gretchen
JOURNAL OF PALLIATIVE MEDICINE, 03/2019, vol.22, n°3, p. 343-347

Patient-centred goal setting in a hospice - a comparative case study of how health practitioners understand and use goal setting in practice

BOA, Sally ; DUNCAN, Edward ; HARALDSDOTTIR, Erna ; WYKE, Sally
International Journal of Palliative Nursing, 01/01/2018, vol.24, n°3, p. 115-122

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Primary care clinicians' confidence, willingness participation and perceptions of roles in advance care planning discussions with patients - a multi-site survey

HOWARD, Michelle ; LANGEVIN, Jessica ; BERNARD, Carrie ; TAN, Amy ; KLEIN, Doug ; SLAVEN, Marissa ; BARWICH, Doris ; ELSTON, Dawn ; ARORA, Neha ; HEYLAND, Daren K.
Family practice, 19/09/2019, p. 1-8

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Identifying patients at risk of futile resuscitation - palliative care indicators in out-of-hospital cardiac arrest

COKLJAT, Mia ; LLOYD, Adam ; CLARKE, Scott ; CRAWFORD, Anna ; CLEGG, Gareth
BMJ supportive and palliative care, 17/09/2019, Pagination inconnue

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Advance care planning in frail older adult - a cluster randomized controlled trial

OVERBEEK, Anouk ; KORFAGE, Ida J. ; JABBARIAN, Lea J. ; BILLEKENS, Pascalle ; HAMMES, Bernard J. ; POLINDER, Suzanne ; SEVERIJNEN, Johan ; SWART, Siebe J. ; WITKAMP, Frederika E. ; VAN DER HEIDE, Agnes ; RIETJENS, Judith A. C.
Journal of the American Geriatrics Society, 01/01/2018, vol.66, n°6, p. 1089-1095

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End-of-life travel - a bucket list desire for patients with life-limiting illnesses

AISPORNA, Cheryl ; ERICKSON-HURT, Carma
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 10/2019, vol.21, n°5, p. 397-403

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Advance directives and intensity of care delivered to hospitalized older adults at the end-of-life

TYACKE, Marsha H. ; GUTTORMSON, Jill L. ; GARNIER-VILLARREAL, Mauricio ; SCHROETER, Kathryn ; PELTIER, Wendy
Heart and lung, 03/09/2019, Pagination inconnue

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Antimicrobial use and misuse at the end of life - a retrospective analysis of a treatment escalation/limitation plan

WILDER-SMITH, Adrian ; GILLESPIE, Thomas ; TAYLOR, D. Robin
The journal of the Royal College of Physicians of Edinburgh, 09/2019, vol.49, n°3, p. 188-192

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Caring as a source of death anxiety in palliative care

NYATANGA, Brian
British journal of community nursing, 02/09/2019, vol.24, n°9, p. 452

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Serious illness treatment preferences for older adults with advanced CKD

BADDOUR, Nicolas Awad ; SIEW, Edward D. ; ROBINSON-COHEN, Cassianne ; SALAT, Huzaifah ; MASON, Olivia J. ; STEWART, Thomas G. ; KARLEKAR, Mohana ; EL-SOURADY, Maie H. ; LIPWORTH, Loren ; ABDEL-KADER, Khaled
Journal of the American Society of Nephrology, 11/09/2019, Pagination inconnue

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The role of palliative care in acute care setting

KOUBA, Michal ; MACOVA, Iva ; KOPECKY, O. ; RUSINOVA, Katerina
Vnitrni Lekarstvi, 2019, vol.65, n°6, p. 449-455

Improving advance care planning in a resident primary care clinic

NASSIKAS, Nicholas J. ; BAIRD, Grayson L. ; DUFFY, Christine M.
The American journal of hospice and palliative care, 02/09/2019, Pagination inconnue

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Patient safety incidents in advance care planning for serious illness - a mixed-methods analysis

DINNEN, Toby ; WILLIAMS, Huw ; YARDLEY, Sarah ; NOBLE, Simon ; EDWARDS, Adrian G.K. ; HIBBERT, Peter ; KENKRE, Joyce ; CARSON-STEVENS, Andrew
BMJ supportive and palliative care, 28/08/2019, p. 1-8

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