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""Through the eyes of the dying" - identifying who may benefit from bereavement follow-up: a qualitative study

PHILLIPS, Jane L. ; LOBB, Elizabeth A. ; BELLEMORE, Frances ; HAYS, Terrence ; CURROW, David
Collegian, 05/10/2019, Pagination inconnue

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Accompagner les membres d’une famille endeuillée - avec toujours plus de présence, respect, chaleur, compréhension empathique et authenticité

ZECH, Emmanuelle
MEDECINE PALLIATIVE, 09/2019, vol.18, n°4-5, p. 239-242

Family-centred end-of-life care and bereavement services in Swedish intensive care units - a cross-sectional study

FRIDH, Isabell ; ÅKERMAN, Eva
Nursing in critical care, 24/10/2019, Pagination inconnue

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Thème : Soins.

SUEDE ; SOIN INTENSIF ; FAMILLE ; FIN VIE ; SOUTIEN DEUIL

BACKGROUND: Post-intensive care syndrome-family is a common problem in relatives of patients who die in an intensive care unit. Family-centred end-of-life care with support for the family during and after the death is supposed to prevent suffering and avoid illness.
AIMS AND OBJECTIVES: This study aimed to investigate family-centred end-of-life care and bereavement follow-up services offered to family members of patients who die in Swedish intensive care units.
DESIGN, METHODS: A cross-sectional study using a 16-question survey based on family-centred end-of-life care was sent to all 81 adult intensive care units. Data were analysed by descriptive statistics and chi-square. Respondents were able to add individual comments to the questionnaire.
RESULTS: Although the majority (76.7%) offered some kind of follow up, this service was not always offered. Modes for invitation, timing, and contents in the follow up varied between the units. The staff tried to individualize the follow-up service according to the family's needs. Nurses and social workers were the only professionals who provided follow-up conversations on their own. Most of the intensive care units (97.3%) kept diaries that were handed over to the family when they left the unit after the patient's death or at a follow-up visit. Only 8.8% reported that they always offer the family the opportunity to be present during resuscitation. Most respondents reported that patients (60.6%) died in a private room.
CONCLUSIONS: Family-centred end-of-life care varied among the intensive care units, and some families were not offered any follow up at all. Timing, invitation, and elements in the follow up differ between the units. Diaries were commonly kept and usually given to the family. Few units offered the family to be present during resuscitation.
RELEVANCE TO CLINICAL PRACTICE: There is a need for national guidelines to ensure that all bereaved families receive equal and individual family-centred end-of-life care.

Origine : PubMed

“A mixed blessing” - social support as a coping resource for parents who lost a child in terrorist attacks in Israel

SAKA, Yael
OMEGA JOURNAL OF DEATH AND DYING, 2019, vol.80, n°2, p. 280-304

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Angels of courage - the experiences of mothers who have been bereaved by suicide

SHIELDS, Chris ; RUSSO, Kate ; KAVANAGH, Michele
OMEGA JOURNAL OF DEATH AND DYING, 2019, vol.80, n°2, p. 175-201

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Mort, mais pas dans mon coeur - Accompagner un jeune en deuil

MASSON, Josée
Desclée de Brouwer , 10/2019 , 396 p.

Module-based comprehensive approach for addressing heterogeneous mental health sequelae of violent loss survivors

RHEINGOLD, Alyssa A. ; WILLIAMS, Joah L.
DEATH STUDIES, 2018, vol.42, n°3, p. 164-171

Survivors’ perspectives on a modular approach to traumatic grief treatment

WILLIAMS, Joah L. ; RHEINGOLD, Alyssa A. ; MCNALLAN, Liana J. ; KNOWLTON, Alice W.
DEATH STUDIES, 2018, vol.42, n°3, p. 155-163

Pathfinders - promoting healthy adjustment in bereaved children and families

GRIESE, Brook ; BURNS, Michaeleen ; FARRO, Samantha A.
DEATH STUDIES, 2018, vol.42, n°3, p. 134-142

Grief, poetry, and the sweet unexpected

GOLD, Richard ; JORDAN, Elizabeth
DEATH STUDIES, 2018, vol.42, n°1, p. 16-25

SUTTLE, Markita L. ; GERHARDT, Cynthia A. ; FULTS, Marci Z.
OMEGA JOURNAL OF DEATH AND DYING, 2019, vol.79, n°4, p. 436-445

Same-sex partner bereavement - non-HIV-related loss and new research directions

PATLAMAZOGLOU, Lefteris ; SIMMONDS, Janette G. ; SNELL, Tristan L.
OMEGA JOURNAL OF DEATH AND DYING, 2018, vol.78, n°2, p. 178-196

Help-seeking experiences of bereaved adolescents - a qualitative study

ANDRIESSEN, Karl ; LOBB, Elizabeth ; MOWLL, Jane ; DUDLEY, Michael ; DRAPER, Brian ; MITCHELL, Philip B.
DEATH STUDIES, 2019, vol.43, n°1, p. 1-8

Cartography of factors influencing caregivers' experiences of loss - a promising tool to help social workers support caregivers

VAN PEVENAGE, Isabelle ; BLAMOUTIER, Margaux ; DURIVAGE, Patrick ; FREITAS, Zelda ; ORZECK, Pam ; VAN PEVENAGE, Claire
Journal of social work in end-of-life and palliative care, 26/09/2019, p. 1-12

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Accompagner les parents lors du décès d’un jumeau prématuré

FRA, Jessie
SOINS PEDIATRIE PUERICULTURE, 10/2019, vol.40, n°310, p. 31-33

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Potential use of ayahuasca in grief therapy

GONZALEZ, Débora ; CARVALHO, María ; CANTILLO, Jordi ; AIXALA, Marc ; FARRÉ, Magi
OMEGA JOURNAL OF DEATH AND DYING, 01/08/2019, vol.79, n°3, p. 260-285

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Qualitative exploration of emotional and social changes from diagnosis to bereavement for spousal caregivers of persons with dementia

GIBSON, Kirstian ; PEACOCK, Shelley ; BAYLY, Melanie
BMJ Open, 24/09/2019, vol.9, n°9, p. 1-9

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Pregnancy and infant loss - a survey of families' experiences in Ontario Canada

WATSON, Jo ; SIMMONDS, Anne ; LA FONTAINE, Michelle ; FOCKLER, Megan E.
BMC pregnancy and childbirth, 16/04/2019, vol.19, n°1, p. 1-14

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Thème : Deuil et travail du deuil. Cote : eD10.00

CANADA ; DEUIL PARENTAL ; SOUTIEN DEUIL ; DEUIL PERINATAL

BACKGROUND: Pregnancy and infant loss has a pervasive impact on families, health systems, and communities. During and after loss, compassionate, individualized, and skilled support from professionals and organizations is important, but often lacking. Historically, little has been known about how families in Ontario access existing care and supports around the time of their loss and their experiences of receiving such care.
METHODS: An online cross-sectional survey, including both closed-ended multiple choice questions and one open-ended question, was completed by 596 people in Ontario, Canada relating to their experiences of care and support following pregnancy loss and infant death. Quantitative data were analyzed descriptively using frequency distributions. Responses to the one open-ended question were thematically analyzed using a qualitative inductive approach.
RESULTS: The majority of families told us that around the time of their loss, they felt they were not adequately informed, supported and cared for by healthcare professionals, and that their healthcare provider lacked the skills needed to care for them. Almost half of respondents reported experiencing stigma from providers, exacerbating their experience of loss. Positive encounters with care providers were marked by timely, individualized, and compassionate care. Families indicated that improvements in care could be made by providing information and explanations, discharge and follow-up instructions, and through discussions about available supports.
CONCLUSIONS: Healthcare professionals can make a positive difference in how loss is experienced and in overall well-being by recognizing the impact of the loss, minimizing uncertainty and isolation, and by thoughtfully working within physical environments often not designed for the experience of loss. Ongoing supports are needed and should be tailored to parents' changing needs. Prioritizing access to specialized education for professionals providing services and care to this population may help to reduce the stigma experienced by bereaved families.

Origine : PubMed

Socio-economic correlates of bereavement among women - examining the differentials on social axes

ACHARYA, Sanghmitra S.
The Indian journal of medical research, 01/01/2018, vol.148, n°7, p. S27-S37

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Bereavement practices employed by hospitals and medical practitioners toward attending funeral of patients - a systematic review

KIM, Kwangtaek ; CHURILOV, Leonid ; HUANG, Andrew ; WEINBERG, Laurence
Medicine, 09/2019, vol.98, n°36, p. 1-11

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