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Geographic variation in knowledge of palliative care among US adults - findings from 2018 health information national trends survey

CHEN, Guanming ; HONG, Young-Rock ; WILKIE, Diana J. ; KITTLESON, Sheri ; HUO, Jinhai ; BIAN, Jiang
The American journal of hospice and palliative care, 06/08/2020, Pagination inconnue

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Medical assistance in dying (MAiD) in Canada - practical aspects for healthcare teams

WIEBE, Ellen ; GREEN, Stefanie ; WIEBE, Kim
Annals of palliative medicine, 10/08/2020, p. 1-8

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Regional variation in use of end-of-life care at hospitals, intensive care units, and hospices among older adults with chronic illness in the US, 2010 to 2016

MALEY, Jason H. ; LANDON, Bruce E. ; STEVENS, Jennifer P.
JAMA network open, 01/07/2020, vol.3, n°7, p. 1-4

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Specialist palliative care activity at an acute care tertiary hospital and its representation in administrative data

STUBBS, Joanne M. ; ASSAREH, Hassan ; ACHAT, Helen M. ; GREENAWAY, Sally ; MURUGANANTHAM, Poorani
The American journal of hospice and palliative care, 14/07/2020, Pagination inconnue

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Characteristics of decedents in home settings using Medicare place of hospice service codes

KARIKARI-Martin, Pauline ; ZHAO, Lirong ; MIESCIER, Lynn
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 08/2020, vol.22, n°4, p. 312-318

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Changing practices in the use of continuous sedation at the end of life - a systematic review of the literature

HEIJLTJES, Madelon ; VAN THIEL, Ghislaine ; RIETJENS, Judith ; VAN DER HEIDE, Agnes ; DE GRAEFF, Alexander ; VAN DELDEN, Johannes
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 26/06/2020, p. 1-43

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Should analyses of large, national palliative care data sets with patient reported outcomes (PROs) be restricted to services with high patient participation? - a register-based study

HANSEN, Maiken Bang ; PETERSEN, Morten Aagaard ; ROSS, Lone ; GROENVOLD, Mogens
BMC palliative care, 2020, vol.19, n°1, p. 1-11

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Do caregiver experiences shape end-of-life care perceptions? - burden, benefits, and care quality assessment

LUTH, Elizabeth A. ; PRISTAVEC, Teja
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 01/2020, vol.59, n°1, p. 77-85

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Cardiopulmonary resuscitation discussions with patients admitted to acute oncology wards - a national audit of current practice

TOL, Isabel ; CUMBER, Elspeth ; NAKAKANDE, Daphne ; WIJAYA, Silvana ; TURBERFIELD, Catherine ; BADRAN, Abdul ; SIDDIQUI, Safia ; SRIVASTAVA, Prakhar ; CHUNG, Bethany ; DINEEN, Molly ; DEVLIN, Cariosa ; WORRALL, Claire ; GREEN, Rebecca ; BENNETT, Emily ; GOLDING, Elizabeth ; LILLIS, Ashling ; SABHARWAL, Ami ; PROTHEROE, Andrew S. ; WATSON, Robert A.
European journal of cancer care, 26/03/2020, Pagination inconnue

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Collaborative data familiarisation and quality assessment - reflections from use of a national dataset to investigate palliative care for indigenous Australians

WOODS, John A ; JOHNSON, Claire E ; ALLINGHAM, Samuel F ; NGO, Hanh T ; KATZENELLENBOGEN, Judith M ; THOMPSON, Sandra C
Health information management journal, 27/03/2020, Pagination inconnue

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Ten-year trends in end-of-life hospitalizations of nursing home residents in Germany, 2006-2015

HOFFMANN, Falk ; ALLERS, Katharina
Maturitas, 04/2020, vol.134, p. 47-53

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End-of-life care in general practice - clinic-based data collection

DING, Jinfeng ; COOK, Angus ; CHUA, David ; LICQURISH, Sharon ; WOOLFORD, Marta ; DECKX, Laura ; MITCHELL, Geoffrey ; JOHNSON, Claire E.
BMJ supportive and palliative care, 17/02/2020, Pagination inconnue

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Trends in place of death for cardiovascular mortality related to heart failure in the United States from 2003 to 2017

CHUZI, Sarah ; MOLSBERRY, Rebecca ; OGUNSEITAN, Adeboye ; WARRAICH, Haider J. ; WILCOX, Jane E. ; GRADY, Kathleen L. ; YANCY, Clyde W. ; KHAN, Sadiya S.
Circulation. Heart failure, 02/2020, vol.13, n°2, Pagination inconnue

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The impact of population ageing on end-of-life care in Scotland - projections of place of death and recommendations for future service provision

FINUCANE, Anne M. ; BONE, Anna E. ; EVANS, Catherine J. ; GOMES, Barbara ; MEADE, Richard ; HIGGINSON, Irene J. ; MURRAY, Scott A.
BMC palliative care, 12/12/2019, vol.18, n°1, p. 1-11

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"Nothing about us, without us." - how community-based participatory research methods were adapted in an indigenous end-of-life study using previously collected data

FUNNELL, Sarah ; TANUSEPUTRO, Peter ; LETENDRE, Angeline ; BOURQUE BEARSKIN, Lisa ; WALKER, Jennifer
Canadian journal on aging, 20/11/2019, p. 1-11

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Noncurated data lead to misinterpretation of treatment outcomes in patients with prostate cancer after salvage or palliative radiotherapy

RUTZNER, Sandra ; GANSLANDT, Thomas ; FIETKAU, Rainer ; PROKOSCH, Hans-Ulrich ; LUBGAN, Dorota
JCO clinical cancer informatics, 10/2019, vol.3, p. 1-11

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Thème : Médecine.

CANCER URO NEPHROLOGIQUE ; RADIOTHERAPIE ; STATISTIQUE ; THERAPEUTIQUE ANTI CANCEREUSE

PURPOSE: Clinical data warehouses (cDWHs) and cancer registry databases have enabled researchers to conduct clinical analytics with structured electronic health record data. However, these secondary electronic health record sources are often limited in scope because they do not capture the clinical information needed to understand complex clinical questions. Thus, we evaluated the effect of additional curation of data.
MATERIALS AND METHODS: Clinical data sets of 149 patients with prostate cancer with biochemical recurrence after radical prostatectomy treated with salvage or palliative radiotherapy between 2008 and 2017 from our institutional cDWH and Gießener Tumor Documentation System (GTDS) were linked (data warehouse [DWH] population) for analyzing treatment outcomes. The linked data sets were manually curated (manual postprocessing [MPP], eg, incorporate data from established urologists). The primary outcomes were the impact on data quality of treatment outcomes and the time spent on data curation.
RESULTS: We obtained significantly more information on disease progression and patient survival (nonsignificant) when using curated data; the biochemical progression-free survival rate at 5 years for the DWH and DWH plus MPP populations was 63% v 30% (P = .001) and the overall survival rate was 84% v 81% (P = .479), respectively. The median deviation of completeness and the median concordance of clinical data values were 21.47% (range, 55.38%-100%) and 95.00% (range, 63.40%-100%), respectively. We spent 121 hours, 42 minutes on data curation, with most time required for laboratory values, accounting, for a total of 45 hours, 20 minutes (37.26%).
CONCLUSION: Our analysis indicates that time-to-event outcomes for patients with prostate cancer cannot be extracted using secondary data sources (cDWH plus GTDS) only. Outcomes data differed between the electronic data (DWH) and the second manual extraction (DWH plus MPP) because of a lack of follow-up data. When using such unique database resources, only baseline characteristics can reliably be extracted.

Origine : PubMed

Approaches to community-based palliative care provision by children's hospices in the UK

TATTERTON, Michael J.
Nursing children and young people, 03/09/2019, Pagination inconnue

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The rising frequency of continuous deep sedation in the Netherlands, a repeated cross-sectional survey in 2005, 2010, and 2015

RIETJENS, Judith A. C. ; HEIJLTJES, Madelon T. ; VAN DELDEN, Johannes J. M. ; ONWUTEAKA-PHILIPSEN, Bregje D. ; VAN DER HEIDE, Agnes
Journal of the American Medical Directors Association, 01/08/2019, Pagination inconnue

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Thème : Ethique et déontologie.

SEDATION PROFONDE ET CONTINUE JUSQU’AU DECES ; PAYS-BAS ; STATISTIQUE

OBJECTIVES: In the Netherlands, the use of continuous deep sedation at the end of life has sharply increased from 8.2% of all deaths in 2005 to 12.3% in 2010 to 18.3 % in 2015. We describe its clinical characteristics in 2015 and compare it with 2010 and 2005.
DESIGN: Questionnaire study in random samples of death reported to a central death registry.
SETTING AND PARTICIPANTS: A nationwide study in the Netherlands among physicians attending reported deaths.
METHODS: Continuous deep sedation characteristics (patient characteristics, drugs, duration, estimated shortening of life, and palliative consultation) from the Netherlands in 2015 were compared with continuous deep sedation characteristics of 2010 and 2005.
RESULTS: The response rate was 78% (n = 7277) in 2015, 74% (n = 6263) in 2010, and 78% (n = 6860) in 2005. The increased frequency of continuous deep sedation was notable in all patient subgroups, but mainly occurred among deaths attended by general practitioners, particularly in patients older than 80 years and patients with cancer. In 2015, continuous deep sedation was performed in 93% of the patients through administration of benzodiazepines. In 3% of the patients, the sedation lasted more than 1 week. Furthermore, 60% of the physicians reported that they had no intention to hasten death, 38% reported that they have taken hastening of death into account, and 2% reported their intention was to hasten death. For 1 in 5 patients, a palliative care expert was consulted prior to the start of sedation. These characteristics were comparable between 2015 and 2010.
CONCLUSIONS AND IMPLICATIONS: The increase in continuous deep sedation mainly occurred in deaths attended by general practitioners, especially in older patients and patients with cancer. As there are no major shifts in demographic and epidemiologic patterns of dying, future studies should investigate possible explanations for the increase predominantly in societal developments, such as increased attention to sedation in education and society, a broader interpretation of the concept of refractoriness, and an increased need of patients and physicians to control the dying process.

Origine : PubMed

The availability, uptake and impact of palliative home care - a population-level study using administrative data

MAETENS, Arno
Vubpress , 2019 , 247 p.

The national palliative care registry - a decade of supporting growth and sustainability of palliative care programs

ROGERS, Maggie ; MEIER, Diane E. ; HEITNER, Rachael ; ALDRIDGE, Melissa ; HILL SPRAGENS, Lynn ; KELLEY, Amy ; NEMEC, Stefanie R. ; MORRISON, R. Sean
JOURNAL OF PALLIATIVE MEDICINE, 09/2019, vol.22, n°99, p. 1026-1031

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