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Smartphone-enabled, telehealth-based family conferences in palliative care during the Covid-19 pandemic - pilot observational study

WU, Yu-Rui ; CHOU, Tzu-Jung ; WANG, Yi-Jen ; TSAI, Jaw-Shiun ; CHENG, Shao-Yi ; YAO, Chien-An ; PENG, Jen-Kuei ; HU, Wen-Yu ; CHIU, Tai-Yuan ; HUANG, Hsien-Liang
JMIR mhealth and uhealth, 28/10/2020, vol.8, n°10, p. 1-10

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Designing a mission statement mobile app for palliative care - an innovation project utilizing design-thinking methodology

KAMRAN, Rakhshan ; DAL CIN, Arianna
BMC palliative care, 06/10/2020, vol.19, n°1, p. 1-6

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Proches de loin - le lien téléphonique au temps du corona

VIDAL-NAQUET, Pierre A.
JALMALV JUSQU A LA MORT ACCOMPAGNER LA VIE, 09/2020, n°142, p. 105-116

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Applying m-health to palliative care - a systematic review on the use of m-health in monitoring patients with chronic diseases and its transposition in palliative care

BIENFAIT, Florent ; PETIT, Marie ; PARDENAUD, Romain ; GUINEBERTEAU, Clément ; PIGNON, Aude
The American journal of hospice and palliative care, 07/2020, vol.37, n°7, p. 549-564

Mobile applications for advance care planning - a comprehensive review of features, quality, content, and readability

MCDARBY, Meghan ; LLANEZA, Danielle ; GEORGE, Login ; KOZLOV, Elissa
American journal of hospice and palliative medicine, 17/09/2020, Pagination inconnue

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Development of a palliative care toolkit for the covid-19 pandemic

DELIMA THOMAS, Jane ; LEITER, Richard E. ; ABRAHM, Janet L. ; SHAMEKLIS, Jaclyn C. ; KISER, Stephanie B. ; GELFAND, Samantha L. ; SCIACCA, Kate R. ; REVILLE, Barbara ; SIEGERT, Callie A. ; ZHANG, Haipeng ; LAI, Lucinda ; SATO, Rintaro ; SMITH, Lorie N. ; KAMDAR, Mihir M. ; GRECO, Lauren ; LEE, Kathleen A. ; TULSKY, James A. ; LAWTON, Andrew J.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 08/2020, vol.60, n°2, p. e22-e25

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"If you call them, they will come" - a telephone call reminder to decrease the no-show rate in an outpatient palliative medicine clinic

LAGMAN, Ruth L. ; SAMALA, Renato V. ; LEGRAND, Susan B. ; PARALA-METZ, Armida ; PATEL, Chirag ; NEALE, Kyle ; CARRINO, Cheryl ; RYBICKI, Lisa ; GAMIER, Pamela ; MAUK, Mary Ellen ; NOWAK, Molly
The American journal of hospice and palliative care, 26/08/2020, Pagination inconnue

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A novel narrative e-writing intervention for parents of children with chronic life-threatening illnesses - protocol for a pilot, open-label randomized controlled trial

HO, Andy Hau Yan ; DUTTA, Oindrila ; TAN-HO, Geraldine ; TAN, Toh Hsiang Benny ; LOW, Casuarine Xinyi ; GANAPATHY, Sashikumar ; CAR, Josip ; HO, Ringo Moon-Ho ; MIAO, Chun Yan
JMIR research protocols, 07/2020, vol.9, n°7, 14 p.

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The usefulness of patient-reported outcomes and the influence on palliative oncology patients and health services - a qualitative study of the prospective outcomes and support initiative

HOWARD, A. Fuchsia ; MEDHURST, Kerensa ; MANHAS, Domnick S. ; YANG, Linda Y. ; BROWN, Steven ; BROWN, Erika ; OLSON, Robert A.
Cancer nursing, 17/06/2020, Pagination inconnue

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Hospice advice and rapid response service for ambulance clinicians

DENT, Tom ; TIPPING, Inderia ; ANDERSON, Racquel ; DANIELS, Charles
BMJ supportive and palliative care, 27/03/2020, Pagination inconnue

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"A friend in the corner" - supporting people at home in the last year of life via telephone and video consultation-an evaluation

MIDDLETON-GREEN, L. ; GADOUD, A. ; NORRIS, B. ; SARGEANT, A. ; NAIR, S. ; WILSON, L. ; LIVINGSTONE, H. ; SMALL, N.
BMJ supportive and palliative care, 12/2019, vol.9, n°4, Pagination inconnue

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Community knowledge of law on end-of-life decision-making - an Australian telephone survey

TILSE, Cheryl ; WILSON, Jill ; WHITE, Ben ; WILLMOTT, Lindy ; LAWSON, Deborah ; DUNN, Jeffrey ; AITKEN, Joanne F. ; PEARCE, Angela ; FERGUSON, Michele
Journal of law and medicine, 12/2019, vol.27, n°2, p. 399-414

Elements of social convoy theory in mobile health for palliative care - scoping review

PORTZ, Jennifer D. ; ELSBERND, Kira ; PLYS, Evan ; FORD, Kelsey Lynett ; ZHANG, Xuhong ; GORE, M. Odette ; MOORE, Susan L. ; ZHOU, Shuo ; BULL, Sheana
JMIR mhealth and uhealth, 06/01/2020, vol.8, n°1, p. 1-11

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Thème : Soins. Cote : eD02.04.01

DEMARCHE PALLIATIVE ; TELEMEDECINE ; REVUE LITTÉRATURE ; TELEPHONE

BACKGROUND: Mobile health (mHealth) provides a unique modality for improving access to and awareness of palliative care among patients, families, and caregivers from diverse backgrounds. Some mHealth palliative care apps exist, both commercially available and established by academic researchers. However, the elements of family support and family caregiving tools offered by these early apps is unknown.
OBJECTIVE: The objective of this scoping review was to use social convoy theory to describe the inclusion and functionality of family, social relationships, and caregivers in palliative care mobile apps.
METHODS: Using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Review guidelines, a systematic search of palliative care mHealth included (1) research-based mobile apps identified from academic searches published between January 1, 2010, and March 31, 2019 and (2) commercially available apps for app stores in April 2019. Two reviewers independently assessed abstracts, app titles, and descriptions against the inclusion and exclusion criteria. Abstracted data covered app name, research team or developer, palliative care element, target audience, and features for family support and caregiving functionality as defined by social convoy theory.
RESULTS: Overall, 10 articles describing 9 individual research-based apps and 22 commercially available apps were identified. Commercially available apps were most commonly designed for both patients and social convoys, whereas the majority of research apps were designed for patient use only.
CONCLUSIONS: Results suggest there is an emerging presence of apps for patients and social convoys receiving palliative care; however, there are many needs for developers and researchers to address in the future. Although palliative care mHealth is a growing field, additional research is needed for apps that embrace a team approach to information sharing, target family- and caregiver-specific issues, promote access to palliative care, and are comprehensive of palliative needs.

Origine : PubMed

Effects of survey mode on consumer assessment of healthcare providers and systems (CAHPS) hospice survey scores

PARAST, Layla ; ELLIOTT, Marc N. ; HAMBARSOOMIAN, Katrin ; TENO, Joan M. ; ANHANG PRICE, Rebecca
Journal of the American Geriatrics Society, 01/01/2018, vol.66, n°3, p. 546-552

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Emergency medicine palliative care access (EMPallA) - protocol for a multicentre randomised controlled trial comparing the effectiveness of specialty outpatient versus nurse-led telephonic palliative care of older adults with advanced illness

GRUDZEN, Corita R. ; SHIM, Deborah J. ; SCHMUCKER, Abigail M. ; CHO, Jeanne ; GOLDFELD, Keith S. ; EMPALLA INVESTIGATORS
BMJ Open, 25/01/2019, vol.9, n°1, p. 1-8

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Prevalence of advance care directives in the community - a telephone survey of three Australian states

WHITE, Ben ; WILLMOTT, Lindy ; TILSE, Cheryl ; WILSON, Jill ; FERGUSON, Ms Michele ; AITKEN, Joanne ; DUNN, Jeffrey ; LAWSON, Deborah ; PEARCE, Ms Angela ; FEENEY, Rachel
Internal medicine journal, 20/02/2019, Pagination inconnue

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“I wish they could have answered their phones” - mobile communication in mass shootings

CUMISKEY, Kathleen M. ; HJORTH, Larissa
DEATH STUDIES, 2019, vol.43, n°7, p. 414-425

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Mobile health, information preferences, and surrogate decision-making preferences of family caregivers of people with dementia in rural Hispanic communities - cross-sectional questionnaire study

XIE, Bo ; CHAMPION, Jane Dimmitt ; KWAK, Jung ; FLEISCHMANN, Kenneth R.
Journal of medical internet research, 10/12/2018, vol.20, n°12, p. 1-15

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Mobile technology applications in cancer palliative care

FREIRE DE CASTRO SILVA, Sandro Luis ; GONCALVES, Antonio Augusto ; CHENG, Cezar ; FERNANDES MARTINS, Carlos Henrique
Studies in health technology and informatics, 2018, vol.249, p. 199-202

Decision-making in the moments before death - challenges in prehospital care

WALDROP, Deborah P. ; MCGINLEY, Jacqueline M. ; DAILEY, Michael W. ; CLEMENCY, Brian
Prehospital emergency care, 05/09/2018, p. 1-25

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