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Fin de vie et mort chez les sujets porteurs de handicaps psychiques - pensables ou impensables ?

TALPIN, Jean-Marc
" Handicap et mort ", Erès , 2019 , p. 213-228

Managing health changes for people with a learning disability in a residential care home setting

SCOTT, Sharon ; DENTON, Lilette ; CONWAY, Frances ; KINLEY, Julie
International Journal of Palliative Nursing, 11/2019, vol.25, n°11, p. 531-540

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End-of-life care for frail older people

HARWOOD, Rowan H. ; ENGUELL, Hannah
BMJ supportive and palliative care, 15/11/2019, Pagination inconnue

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Place of death of people with intellectual disabilities - an exploratory study of death and dying within community disability service settings

TODD, Stuart ; BRANDFORD, Sharon ; WORTH, Rhian ; SHEARN, Julia ; BERNAL, Jane
Journal of intellectual disabilities, 12/11/2019, Pagination inconnue

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Exploring a nursing home–specific interdisciplinary approach - toward palliative care for the demented and complex-disabled elderly

PARK, Min Sun ; LEE, Su Jung ; CHANG, Sung Ok
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 12/2019, vol.21, n°6, p. E9-E15

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Surrogates' end-of-life decision-making process in nursing homes for residents with a neurocognitive disorder: an integrative review

DANEAU, Stéphanie ; BOURBONNAIS, Anne ; LEGAULT, Alain
International journal of older people nursing, 15/10/2019, Pagination inconnue

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Thème : Soins.

AIDANT ; PRISE DECISION ; FIN VIE ; REVUE LITTÉRATURE ; TROUBLE COGNITIF

OBJECTIVE: The goal of this review is to analyse articles on the experience of surrogates who find themselves making end-of-life decisions for a relative with a major neurocognitive disorder in a nursing home.
DESIGN: An integrative review of the literature based on Whittemore and Knafl's method.
DATA SOURCES: This review used the CINAHL, PubMed, PsycInfo, Embase and Web of Science databases. A complementary search was also conducted via citation pearl searching, and the reference lists from the selected articles were manually verified.
REVIEW METHOD: The quality of the selected articles was assessed using the Crow Critical Appraisal Tool, and the data were extracted systematically and were then organised according to Mishel's uncertainty in illness theory. The data that did not correspond to any concept of the theory were excluded at this stage. Analysis was conducted using the method put forward by Miles, Huberman and Saldaña.
RESULTS: A total of 18 articles were selected: 11 qualitative, 5 quantitative and 1 using a mixed method, as well as 1 ethical argument. The subjects arising from the analysis of the articles were the types of decisions made, the support available for the surrogates, the role and involvement of the surrogates in the process and the factors that influence the decisions.
CONCLUSION: The results of this integrative review stimulate reflection on the needs of family members involved in making decisions, as well as on the nursing practice and research. Published literature is mainly from North America, and thus, more research is needed to better understand the impact of cultural and ethnic differences in the process, which was poorly covered by the existing literature. Also, exploring nurses' involvement in supporting surrogates may eventually better equip nurses for their interventions with surrogates.
IMPLICATIONS FOR PRACTICE: Describing the illness progression and the signification of palliative care to the resident with a NCD and their surrogate decision makers, as well as discussing end-of-life care preferences as early as possible are all nursing interventions that could potentially enhance surrogates' end-of-life decision-making process.

Origine : PubMed

Prolonged grief and cognitive decline - a prospective population-based study in middle-aged and older persons

PEREZ, Heidi C. Saavedra ; IKRAM, M. Arfan ; DIREK, Nese ; TIEMEIER, Henning
The American journal of geriatric psychiatry, 01/01/2018, vol.26, n°4, p. 451-460

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Offrir du beau jusqu'à la fin de la vie

PRAT, Corinne
ASP LIAISONS, 06/2019, n°58, p. 23-24

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Later-life trajectories of cognitive functioning among married and widowed older men and women of Mexican origin

MONSERUD, Maria A.
Journal of cross-cultural gerontology, 03/08/2019, p. 1-18

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Les services spécialisés en santé mentale pour des personnes âgées du CSSS Cavendish - déjà 10 ans

NOUR, Kareen ; BILLETTE, Véronique ; REGENSTREIF, Alain
FRONTIERES, 2012, vol.25, n°1, p. 152-178

Emerging from the haze - a pilot study evaluating feasibility of a psychoeducational intervention to improve cancer-related cognitive impairment in gynecologic cancer survivors

LIANG, Margaret I. ; ERICH, Bryce ; BAILEY, Charlotte ; JO, Mi-Yeoung ; WALSH, Christine S. ; ASHER, Arash
JOURNAL OF PALLIATIVE CARE, 01/2019, vol.34, n°1, p. 32-37

Trajectories of cognitive decline by widowhood status among Korean older adults

LYU, Jiyoung ; MIN, Joohong ; KIM, Giyeon
International journal of geriatric psychiatry, 05/07/2019, Pagination inconnue

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Cognitive decline and distinction - a new line of fracture in later life?

LIBERT, Sébastien ; CHARLESWORTH, Georgina ; HIGGS, Paul
Ageing and society, 18/07/2019, p. 1-19

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Etre là

ECREPONT, Vincent
Les solitaires intempestifs , 07/2019 , 96 p.

Significance of advance care planning in nursing homes - views from patients with cognitive impairment, their next of kin, health personnel, and managers

SAEVAREID, Trygve Johannes Lereim ; FORDE, Reidun ; THORESEN, Lisbeth ; LILLEMOEN, Lillian ; PEDERSEN, Reidar
Clinical interventions in aging, 2019, vol.14, p. 997-1005

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Advance care planning for people with dementia - the role of general practitioners

BALLY, Klaus W. ; KRONES, Tanja ; JOX, Ralf J.
Gerontology, 18/06/2019, p. 1-7

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Author response - ethical, palliative, and policy considerations in disorders of consciousness

FINS, Joseph J. ; BERNAT, James L.
Neurology, 14/05/2019, vol.92, n°20, p. 974

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Reader response - ethical, palliative, and policy considerations in disorders of consciousness

SETHI, Nitin K.
Neurology, 14/05/2019, vol.92, n°20, p. 973-974

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Palliative care for patients with communication and cognitive difficulties

SUE, Kyle ; MAZZOTTA, Paolo ; GRIER, Elizabeth
Canadian family physician, 04/2019, vol.65, n°Suppl 1, p. S19-S24

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Thème : Médecine. Cote : eD03.03.04

DEMARCHE PALLIATIVE ; COMMUNICATION ; BESOIN FONDAMENTAL ; TROUBLE COGNITIF

OBJECTIVE: To help increase the confidence of both caregivers and clinicians in providing palliative care to adults with intellectual and developmental disabilities (IDD) using an easy-to-follow framework to improve and overcome barriers to effective palliative care in this population.
QUALITY OF EVIDENCE: A literature review was conducted to explore recent best evidence to address these palliative care needs and to allow for a focused opportunity to consider the details of implementing clinical practice guidelines in the palliative care context. Evidence ranges from level I to level III.
MAIN MESSAGE: Pain and psychological and emotional distress are important issues for individuals with IDD, as they can be difficult to assess and measure, and often present atypically, especially in those with limited communication skills. Further, little is known about end-of-life needs in the adult population with IDD, especially for those living in community residences. The conducted literature review of patient, caregiver, and clinician experiences exposed considerable barriers, including incorrect assumptions about patients' capacity to understand and discomfort of both caregivers and clinicians with open communication. This has resulted in exclusion of adults with IDD from their own care, which has proven harmful. Maximizing time in familiar surroundings and establishing trust and continuity are crucial. Sometimes trial and error with empiric use of comfort medications is necessary, but this can be mitigated with careful examination of distress patterns and judicious use of diagnostic testing. It is always best to integrate the palliative approach into the existing pattern of care.
CONCLUSION: The validated tools and recommendations provided will assist with communication, symptom interpretation, treatment decisions, advanced care planning, addressing grief, and important considerations in end-of-life care.

Origine : PubMed

Locked-in your heart-shaped box - familial-role and attachment orientation as predictors of grief in prolonged disorders of consciousness vs. death

YEHENE, Einat ; ZAKSH, Yael ; DAVIDIAN, Meital ; BAR-NADAV, Ofri ; ELYASHIV, Maya
DEATH STUDIES, 02/04/2019, 11 p.

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