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Expressivism at the beginning and end of life

REED, Philip
Journal of medical ethics, 08/2020, vol.46, n°8, p. 538-544

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The palliative care needs of adults with intellectual disabilities and their access to palliative care services - a systematic review

ADAM, Emily ; SLEEMAN, Katherine E ; BREARLEY, Sarah ; HUNT, Katherine ; TUFFREY-WIJNE, Irene
PALLIATIVE MEDICINE, 17/06/2020, Pagination inconnue

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Associations between unmet palliative care needs and cognitive impairment in a sample of diverse, community-based older adults

KOZLOV, Elissa ; WYNN, Matthew J. ; REID, M. Carrington ; HENDERSON, Charles R. ; DONG, XinQi ; SIREY, Jo Anne
Palliative and supportive care, 25/06/2020, p. 1-5

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Respect des volontés du résidant atteint de troubles cognitifs - les recommandations du conseil d’éthique

FÉDÉRATION GENEVOISE DES ETABLISSEMENTS MÉDICO-SOCIAUX (FEGEMS)
REVUE INTERNATIONALE DE SOINS PALLIATIFS, 12/2019, vol.34, n°4, p. 117-127

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Can there be wrongful life at the end of life? - German courts revisit an old problem in a new context

PFEIFER, Ulrich ; HORN, Ruth
Journal of medical ethics, 14/02/2020, Pagination inconnue

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End-of-life care among older cancer patients with intellectual disability in comparison with the general population - a national register study

SEGERLANTZ, M. ; AXMON, A. ; AHLSTROM, G.
Journal of intellectual disability research, 17/02/2020, p. 1-14

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Fin de vie et mort chez les sujets porteurs de handicaps psychiques - pensables ou impensables ?

TALPIN, Jean-Marc
" Handicap et mort ", Erès , 2019 , p. 213-228

Et si perdre la raison avait un sens ?

BOSQUET, Françoise
JALMALV JUSQU A LA MORT ACCOMPAGNER LA VIE, PUG, 09/2019, n°138, p. 65-71

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Se sentir vivant en long séjour

LEBLANC-BRIOT, Marie-Thérèse
JALMALV JUSQU A LA MORT ACCOMPAGNER LA VIE, PUG, 09/2019, n°138, p. 57-64

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Managing health changes for people with a learning disability in a residential care home setting

SCOTT, Sharon ; DENTON, Lilette ; CONWAY, Frances ; KINLEY, Julie
International Journal of Palliative Nursing, 11/2019, vol.25, n°11, p. 531-540

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End-of-life care for frail older people

HARWOOD, Rowan H. ; ENGUELL, Hannah
BMJ supportive and palliative care, 15/11/2019, Pagination inconnue

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Place of death of people with intellectual disabilities - an exploratory study of death and dying within community disability service settings

TODD, Stuart ; BRANDFORD, Sharon ; WORTH, Rhian ; SHEARN, Julia ; BERNAL, Jane
Journal of intellectual disabilities, 12/11/2019, Pagination inconnue

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Exploring a nursing home–specific interdisciplinary approach - toward palliative care for the demented and complex-disabled elderly

PARK, Min Sun ; LEE, Su Jung ; CHANG, Sung Ok
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 12/2019, vol.21, n°6, p. E9-E15

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Surrogates' end-of-life decision-making process in nursing homes for residents with a neurocognitive disorder: an integrative review

DANEAU, Stéphanie ; BOURBONNAIS, Anne ; LEGAULT, Alain
International journal of older people nursing, 15/10/2019, Pagination inconnue

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Thème : Soins.

AIDANT ; PRISE DECISION ; FIN VIE ; REVUE LITTÉRATURE ; TROUBLE COGNITIF

OBJECTIVE: The goal of this review is to analyse articles on the experience of surrogates who find themselves making end-of-life decisions for a relative with a major neurocognitive disorder in a nursing home.
DESIGN: An integrative review of the literature based on Whittemore and Knafl's method.
DATA SOURCES: This review used the CINAHL, PubMed, PsycInfo, Embase and Web of Science databases. A complementary search was also conducted via citation pearl searching, and the reference lists from the selected articles were manually verified.
REVIEW METHOD: The quality of the selected articles was assessed using the Crow Critical Appraisal Tool, and the data were extracted systematically and were then organised according to Mishel's uncertainty in illness theory. The data that did not correspond to any concept of the theory were excluded at this stage. Analysis was conducted using the method put forward by Miles, Huberman and Saldaña.
RESULTS: A total of 18 articles were selected: 11 qualitative, 5 quantitative and 1 using a mixed method, as well as 1 ethical argument. The subjects arising from the analysis of the articles were the types of decisions made, the support available for the surrogates, the role and involvement of the surrogates in the process and the factors that influence the decisions.
CONCLUSION: The results of this integrative review stimulate reflection on the needs of family members involved in making decisions, as well as on the nursing practice and research. Published literature is mainly from North America, and thus, more research is needed to better understand the impact of cultural and ethnic differences in the process, which was poorly covered by the existing literature. Also, exploring nurses' involvement in supporting surrogates may eventually better equip nurses for their interventions with surrogates.
IMPLICATIONS FOR PRACTICE: Describing the illness progression and the signification of palliative care to the resident with a NCD and their surrogate decision makers, as well as discussing end-of-life care preferences as early as possible are all nursing interventions that could potentially enhance surrogates' end-of-life decision-making process.

Origine : PubMed

Prolonged grief and cognitive decline - a prospective population-based study in middle-aged and older persons

PEREZ, Heidi C. Saavedra ; IKRAM, M. Arfan ; DIREK, Nese ; TIEMEIER, Henning
The American journal of geriatric psychiatry, 01/01/2018, vol.26, n°4, p. 451-460

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Offrir du beau jusqu'à la fin de la vie

PRAT, Corinne
ASP LIAISONS, 06/2019, n°58, p. 23-24

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Later-life trajectories of cognitive functioning among married and widowed older men and women of Mexican origin

MONSERUD, Maria A.
Journal of cross-cultural gerontology, 03/08/2019, p. 1-18

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Les services spécialisés en santé mentale pour des personnes âgées du CSSS Cavendish - déjà 10 ans

NOUR, Kareen ; BILLETTE, Véronique ; REGENSTREIF, Alain
FRONTIERES, 2012, vol.25, n°1, p. 152-178

Emerging from the haze - a pilot study evaluating feasibility of a psychoeducational intervention to improve cancer-related cognitive impairment in gynecologic cancer survivors

LIANG, Margaret I. ; ERICH, Bryce ; BAILEY, Charlotte ; JO, Mi-Yeoung ; WALSH, Christine S. ; ASHER, Arash
JOURNAL OF PALLIATIVE CARE, 01/2019, vol.34, n°1, p. 32-37

Trajectories of cognitive decline by widowhood status among Korean older adults

LYU, Jiyoung ; MIN, Joohong ; KIM, Giyeon
International journal of geriatric psychiatry, 05/07/2019, Pagination inconnue

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